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Experiences with moxifloxacin (avelox)?

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Posted 2/16/2017 3:04 AM (GMT 0)
If anyone has been on this what were your side effects?

It gives me severe anxiety, everything is twitching more, and it hurts so bad when I pee. I heard these can be side effects but I wonder if its that common?
Posted 2/16/2017 3:39 AM (GMT 0)
Heatherhcc - Do you know that it comes with a black box warning for risk if tendon rupture and peripheral neuropathy (that could be permanent)?

Are you using it to treat bartonella?
Posted 2/16/2017 8:41 AM (GMT 0)
I had a bad experience on bactrim...maybe allergic but my theory is it killed so many bugs so quik that nerve damage and vasculitis followed ..

i sting myself with bees on a regular basis and i am scared of the flouroquinalones ....here is a link to the fda warning.they can shorten telomeres and cause aortic ruptures etc etc

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/130342?
Posted 2/16/2017 10:01 AM (GMT 0)
Flouroquinolones can also cause toxic reactions to the central nervous system which can cause long term effects. Two doses caused over 90 symptoms with severe anxiety and mega panic attacks.

Patty
Posted 2/16/2017 1:42 PM (GMT 0)
black box warnings and side effects aside, there are many folks who've used the drugs in this class and done very well with them. as they say with all things your reaction to it is unique. i was able to tolerate cipro but not levaquin yet they're very similar composition wise. go figure.
Posted 2/16/2017 4:16 PM (GMT 0)
May want to try d-mannose for the urinary issues. I found a probiotic on amazon that has it and I take max dosages when my urinary issues flare.
/www.amazon.com/gp/aw/d/B00MVYY3C4/ref=sxts1_a_it?ie=UTF8&qid=1487261781&sr=1
Posted 6/21/2018 11:43 AM (GMT 0)
Totally agree with this theory Bluelyme - I do think that it can cause extreme die off symptoms of Lyme, Enterococcus & Ureaplasma bacterias as well as others. From personal experience it does seem that the Enterococus is linked to the peripheral neuropathy symptoms as well. My stool test shows I have over 100x normal amounts of Enterococcus in the colon and I had a terrible reaction to moxifloxacin after only 1 or 2 doses, but I have also had a bad reaction to amoxicillin in the past. I also have a Ureaplasma which is resistant to Azithromycin and am awaiting results of my Lyme test. I am going to try and start out slowly this time in attempting treatment and build up to the full dose to see if that helps rather than getting the extreme die off symptoms all at once as Moxifloxacin is a strong drug.

bluelyme said...
I had a bad experience on bactrim...maybe allergic but my theory is it killed so many bugs so quik that nerve damage and vasculitis followed ..

i sting myself with bees on a regular basis and i am scared of the flouroquinalones ....here is a link to the fda warning.they can shorten telomeres and cause aortic ruptures etc etc

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/130342?

Posted 6/21/2018 2:08 PM (GMT 0)
Funny enough my experience we lyme started with Avelox. I was being treated for a sinus infection (that in hind sight was likely caused by excess mucus when I came down with lyme) with Avelox. The sinus infection cleared up by I continued to feel tired, have muscle spasms and joint pain. I initially thought these were side effects of the Avelox (there are weird side effects that are similar to lyme). Finally I got tested for lyme which came back positive. So its hard to say what symptoms were lyme and what were side effects of medication. I experienced the following: fatigue, muscle spasms, mild tendonitis, detachment.
Posted 6/21/2018 4:43 PM (GMT 0)

lorazapora1 said...
Totally agree with this theory Bluelyme - I do think that it can cause extreme die off symptoms of Lyme, Enterococcus & Ureaplasma bacterias as well as others. From personal experience it does seem that the Enterococus is linked to the peripheral neuropathy symptoms as well. My stool test shows I have over 100x normal amounts of Enterococcus in the colon and I had a terrible reaction to moxifloxacin after only 1 or 2 doses, but I have also had a bad reaction to amoxicillin in the past. I also have a Ureaplasma which is resistant to Azithromycin and am awaiting results of my Lyme test. I am going to try and start out slowly this time in attempting treatment and build up to the full dose to see if that helps rather than getting the extreme die off symptoms all at once as Moxifloxacin is a strong drug.

bluelyme said...
I had a bad experience on bactrim...maybe allergic but my theory is it killed so many bugs so quik that nerve damage and vasculitis followed ..

i sting myself with bees on a regular basis and i am scared of the flouroquinalones ....here is a link to the fda warning.they can shorten telomeres and cause aortic ruptures etc etc

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/130342?

Hi lorazapora - welcome!

i've read that supplementing with magnesium is important when taking the fluoroquinolones.
But, not sure if that is just for the risk of tendon rupture, or if the mag also helps for the Peripheral neuropathy and CNS damage that this class of meds can cause.
Posted 6/21/2018 10:41 PM (GMT 0)
What's the stadistic of cases of cns damage? 1/100 1/1000? I'm curious about that.... i've read that it can cause qt prolongation... what's the rate?
Posted 6/22/2018 12:24 AM (GMT 0)
I don’t know the stats - I’ve read it’s rare but because it can be so devastating I’m not willing to try them.

I’m more concerned about the CNS and Neuropathy risks - than the tendon rupture.

My regular dr told me a few months ago she had a patient recently have a tendon rupture in lower leg from those meds and the man was having surgery to repair it.
Posted 7/24/2018 11:10 AM (GMT 0)
Thanks for the Magnesium advice, I will start taking some, as I am currently on the Avelox again to try and kill the Ureaplasma off. My Lyme test came back in with a positive only for Babesia, which is good to know and I am glad to be able to start treatment for that now. I think the Babesia must have been from the bed bugs bites I got in London as I don't particularly remember being bitten by a tick before and I had awful reactions to the bed bug bites and have been ill ever since really. It also explains maybe why I have had so many problems with my teeth as well since. My body is a bit stronger now than it was before, now that I am starting to tackle the Babesia & Enterococcus, so I am not getting anywhere near as bad side effects as when I had to stop last time after 2 days of Moxi and I have stopped doing vigorous workouts in the gym to help prevent any tendinitis. The potassium, I have found is the most helpful tool to reducing the side effects. Whenever I feel any side effects coming on again, I eat a banana and take a potassium supplement which seems to knock the side effects on the head very rapidly!
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