burning skin/neuropathy driving me crazy

Hi Springsjean! I have it and it DOES drive one crazy! It's strange I've had a lot of symptoms get better but that one eludes me still.

Over the past few weeks it has gotten slightly better, but it's still there. I read somewhere that Cipro can cause it and mine did start while taking it and hasn't gone away since, but there is no way of knowing for sure if that was it or not. I, too, have Bart.

Sometimes a detox bath will help me--but not all the time. Eating dairy makes it flare worse, but abstaining from dairy doesn't make it go away either. No rhyme or reason to it as far as I can tell. It's annoying. Hope you find relief soon.

My legs have improved since taking Doxy and Rifampin for the past few months. I still have some tingling but rarely ever any more burning plus no flare-ups where they would tighten up making it difficult to go up and down stairs without limping.

Can't say for sure it's the abx or just a coincidence but I've definitely seen improvement in that area.

I got rid of 95 % of my body stuff including severe chronic nerve burning in bone in cheekbones, top of head and top of brain and extra orbital bone around eyes, and gums. All burning gone.

I used all the herbs abx in my sig. I had to start pharma for the encephalitis. My herbs abx I still do and my protocol started Mar 2012 - 2013 with plant abx and then pharma abx I just introduced which is bringing down brain head physical inflammation down which changed my brain function.

I have always done very very strict diet no sugar, no carbs in veggies or breads, little fruit, hardly any and of course no other sugar. Plus strict detox and colonics and sauna every other day I can finally go, but went at least 3 times per week.

All of this is how I believe I got rid of amost all of that first year. My calves twitching/vibrations and knots in calves and toes curling gone too, and most of the body vibes gone save for mild hand tingling and sporadic mild parts of body hits, which are going down now more with pharma abx added.

My brain head physical is primary so still non functional as good as all that sounds which left. My head/brain stuff in sig is what is not good still.

Bill, keep in mind that Flagyl is known to cause skin burning sensations so if it has gotten worse since taking it then you may want to consider stopping it.

Magoo- I know I need to make this decision myself, but I'd like your opinion. If you were me, would you completely avoid the antibiotic route completely?
Really feel like I'm dying from this stuff. I haven't been able to get out of bed in four days. Thanks in advance!

Thanks again !!!!
Invaluable!

What stopped it? Mine getting unbearable, constant and intense
Ugh!

My neuropathy has gotten way better.

Absolutely no wheat, gluten or sugar

Lots of chia smoothies for healthy omegas, apple cider vinegar 1 oz in a cup of water 1-2 x per day I find counteracts the amonia neurotoxin effects , serrapeptase 3x 3 x per day melts the biofilm, and b-12 ....3-3x per day,

Try try try to walk 30-60 minutes per day.

have you ever treated parasite-aggressively? My tingling sensations went away with this.

Ed, do you have nerve pain from small fibre neuropathy?

And, what prompted the biopsy of the skin?

I've had EMG and NCS done...but a skin biopsy wasn't offered.

Yes, it is a bart symptom. I have neuropathy...and it's my worst symptom. Take that one away and I'll be functioning quite well.
Seems to be one of my last symptoms after almost 4 years of treatment with a LL Dr.
( had close to 40 and am down to about 8 symptoms)


Problem with taking Cipro. Two of the black box warnings (it has three) is 1) peripheral neuropathy and 2) CNS issues

The neuropathy can be from either of those I believe.

So...is it a herx - which is to be expected when taking an antibiotic that is killing off the bart...or is it a side effect of the Cipro...which would indicate possibly stopping the Cipro