HealingWell
Search Close Search
☰

Feeling down

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 6/30/2018 10:38 PM (GMT 0)
Hey everyone I neee some word of encouragement please. I am treating and haven't seen a good day in quite sometime now. When I heard treating Lyme was a roller coaster I expected a few bad days mixed in with some good days. For me it's been 2 or 3 good days & the rest just feeling unmotivated, sleepy all day, & depressed.

Why haven't I seen anymore good days? That doesn't mean my protocol isn't working does it?

I basiacltt wake up everyday feeling kinda decent but get hit with daytime sleepiness all day. Also most of my problems are in my head! Bad brain fog, anxiety, depression, just feeling of not being myself.

Is this what herxing feels like? Could herxing just be feeling sloppy and tired?

Why am i not having very many good days?? It's been like 3 weeks. I don't have a crazy amount of symptoms I just feel tired.

Post Edited (BBN!!) : 6/30/2018 5:49:47 PM (GMT-6)

Posted 7/1/2018 1:23 AM (GMT 0)
I don't know . . . But just being tired is probably a good sign. Brain fog anxiety and depression all sound like herxing. When I took antibiotics I felt fine for the most part-but it didn't end up helping in the end.

Are you detoxing enough? Some diatomaceous earth and taking milk thistle has really helped me.
Posted 7/1/2018 1:30 AM (GMT 0)
Sometimes when treatments were overaggressive I'd never get a break from herxing. It took me some time to figure out that dynamic, if I was feeling horrible for endless stretches I learned that I should pull back on treatments. Bad herxing for me would just be endless pain in lymph nodes, super exhaustion maddeningly combo'd with insomnia, inability to concentrate, anxiety, depressed and dead inside, etc...

Cutting down antimicrobials in those situations would almost always help bring me back closer to a manageable baseline. If I didn't it would get too suffocating mentally and physically, pulling back was like a way to catch my breathe.
Posted 7/1/2018 1:34 AM (GMT 0)
I hope I'm herxing. At least I'd know something is coming out of this. I have a difficult time telling whether I'm herxing or not. I feel this way all the time other then when I have good days.

& as far as detoxing, I walk about 2 or 3 miles every day, drink plerty of water, epsom baths, & activated charcoal. I guess that's enough. & ive heard a lot about milk thistle! I may try that out.
Posted 7/1/2018 1:37 AM (GMT 0)
Sebreg, that makes sense! I may talk to my doctor about that.

I don't really know how to put it on a scale how I feel. I know everybody with Lyme is different. I do feel tired, I feel unmotivated, & depressed but I don't feel any pain really.
Posted 7/1/2018 7:49 AM (GMT 0)

BBN!! said...
Sebreg, that makes sense! I may talk to my doctor about that.

I don't really know how to put it on a scale how I feel. I know everybody with Lyme is different. I do feel tired, I feel unmotivated, & depressed but I don't feel any pain really.

Sorry to hear you're feeling depressed. You're fortunate not to have pain as well.

i have pain...and when I was depressed and had pain...it was horrible...trying to dig myself out of the doom and gloom every day.
My saving grace is I haven't had the fatigue. (trying to remind myself that...when I'm down)

This is a really difficult disease...and just trying to make it through the day is tough sometimes.

Hope you have some good days in the near future, BBN. Just keep telling yourself that this isn't forever.
Posted 7/1/2018 2:48 PM (GMT 0)
The burnjng pain is getting worse and the anxiety prevents sleeping and eating totally
Hardly able to drink
Freaked out by the level.of burning skin,Bartonella maybe?
Is there an easy to start treatment,l can't travel to see a llmd as becoming too anxious and pain too extreme
Literally unable to sleep
Bit a year ago
Now dishevelled and exhausted,can't work of cook due to o pain ,hands feel.like stung by nettles
Posted 7/1/2018 3:43 PM (GMT 0)

LilaJ said...
The burnjng pain is getting worse and the anxiety prevents sleeping and eating totally
Hardly able to drink
Freaked out by the level.of burning skin,Bartonella maybe?
Is there an easy to start treatment,l can't travel to see a llmd as becoming too anxious and pain too extreme
Literally unable to sleep
Bit a year ago
Now dishevelled and exhausted,can't work of cook due to o pain ,hands feel.like stung by nettles

So my doc is a believer in minimizing stress and making sure patients get sleep. I mentioned this in other thread, but when I was in that hell storm of symptoms I couldn't take anything to treat I was soooo sensitive, it would ratchet my already unbearable pain even higher... so the first step was trying to stabilize my body. Hence doc put me on gabapentin and wanted to put me on cymbalta (can help for neuropathy) but I was already on lexapro so I didn't do that. I know that might not be options for you if you don't have access to a doc willing to script those meds or if you just don't feel comfortable taking them. But I'd look into it at least, it could help get your symptoms under control.

The other thing is exploring sleep aids (I imagine you already have). There's the general stuff, melatonin, herbal things, and even things like anti-anxiety (lorazapem, etc) can help for that... I think Horowitz has written about some of his strategies to help his patients get sleep, might be worth researching? if you'd like I can try and look it up in his books to see what he recommends.

Could also look at some of the Buhner herbs, they can help with immune system modulation and that could be a potential angle that could help in your case? then could segway into some of the antimicrobial herbs as well?

Just throwing thoughts out there! Keep hanging in there!
✚ New Topic ✚ Reply