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Who Else Sees Dr. J in DC?

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Posted 6/30/2018 8:34 PM (GMT 0)
I have never taken Clindamycin. My antibiotics now are Rifabutin, Augmentin, Minocycline, Septra, and Artemisia/Cryptolepsis. So I think that's bart treatment, right?

No...no one gave me that time range or anything. I just have been in treatment for a year and a half and think it's going to need to last at least 2.5 more years. So I gather 5-10 years is a good guess for Lyme treatment.

It seems like Lyme only goes into remission if anything and that we will always have to be watching out for it. Like if our immune system's get out of whack again, then Lyme will rear it's ugly head.
Posted 6/30/2018 8:46 PM (GMT 0)
Lvg - remind me - how long did the practitioner at the J clinic have you on Mepron for Babesia?
Posted 7/1/2018 10:22 PM (GMT 0)

Girlie said...
Lvg - remind me - how long did the practitioner at the J clinic have you on Mepron for Babesia?

Hey girlie!! So I did mepron for about 9 months (I think) with Dr. J? I can't remember fully. It might have been a year. For the first 6 months I was doing just the double teaspoon of mepron...and since I was still sweating and had air hunger, daraprim was added in and I did a few rounds with daraprim and it knocked the babesia out of the water. And the sweating completely stopped.

It's possible it's your adrenals, but you can have your adrenals checked easily to find out and narrow it down. My intuition says the sweating is babesia since babesia is essentially malaria...and sweating is one of the main symptoms.

It is great your spleen and liver are fine...but I think with babesia, the liver and spleen only gets enlarged when babesia is exceptionally bad. If your adrenals check out and you do several months of babesia protocol and the sweating hasn't stop, I'd probably ask to see Kim and see if she will add daraprim to knock it out of the water.

Once the babesia is fully gone you will feel much much better, especially since you aren't dealing with fatigue. And the bart protocol will lower your neuro symptoms but I think babesia needs to be fully under wrap before the bart protocol. Also, my intuition is saying if they put you on double teaspoon of mepron the PA still thinks babs is a problem.

For a long time I thought my fatigue and everything was from adrenals but all of my adrenal tests were normal. I even tried herbs to help adrenals but they did nothing so it confirmed it wasn't adrenals. Although our adrenals are def taxed from the Lyme and co-infections.

On another note, I just bought the Generator X from Spooky2!! I will let you know if it helps.
Posted 7/1/2018 11:32 PM (GMT 0)
I went on the 2 tsp of Mepron dose right away - it was my first protocol - they give all patients that dose.(unless perhaps a patient can’t handle the full dose right away)

My cortisol and dhea were recently tested and are in range but it wasn’t the 4 pt saliva test - just the blood test.
I had done the saliva test a few years ago when I was treating with a LLND and the Dhea was a little low on one.

I’m just not sure if it’s related to Babesia because my dysautonmia could be from Bartonella - and that could be causing the sweating.

Also I did about 7 months of Mepron in 2017 - just one tsp dosing (2 x day) and the sweating was horrible plus the pressure behind my eyes was really bad.

But now after four months on 2 tsp dosing the head pressure is about 80-90% better and sweating is minimal.

I am scheduled to see Dr J himself for my next appt and then will get assigned a new NP since T has left the practice.

Hoping that if they want me to continue Babs past the 5/6 months that I will do a combo Babs and Bart protocol - bart for two weeks (Rifabutin), Babs for one week and one off.
Posted 7/1/2018 11:43 PM (GMT 0)
Lvg123 - when you took Mepron with daraprim - do you mean on the same weeks? Or Mepron one week and daraprim the next week.
Posted 7/1/2018 11:56 PM (GMT 0)

Girlie said...
Lvg123 - when you took Mepron with daraprim - do you mean on the same weeks? Or Mepron one week and daraprim the next week.

It was daraprim with Mepron. It's a single pill and I took it the first MWF of the two week protocol. And the second week I didn't use daraprim.

But I can say definitively that daraprim is what removed the babesia. I started feeling better right after daraprim was added. Like just one round of it and a month later the sweats went away! It's a very strong drug and normally used for Toxoplasmosis but is also used for malaria.
Posted 7/2/2018 12:52 AM (GMT 0)
I can't wait to get to the JSC. Such a level up of treatment than anywhere else.
Posted 7/2/2018 5:29 AM (GMT 0)

Girlie said...
I went on the 2 tsp of Mepron dose right away - it was my first protocol - they give all patients that dose.(unless perhaps a patient can’t handle the full dose right away)

My cortisol and dhea were recently tested and are in range but it wasn’t the 4 pt saliva test - just the blood test.
I had done the saliva test a few years ago when I was treating with a LLND and the Dhea was a little low on one.

I’m just not sure if it’s related to Babesia because my dysautonmia could be from Bartonella - and that could be causing the sweating.

Also I did about 7 months of Mepron in 2017 - just one tsp dosing (2 x day) and the sweating was horrible plus the pressure behind my eyes was really bad.

But now after four months on 2 tsp dosing the head pressure is about 80-90% better and sweating is minimal.

I am scheduled to see Dr J himself for my next appt and then will get assigned a new NP since T has left the practice.

Hoping that if they want me to continue Babs past the 5/6 months that I will do a combo Babs and Bart protocol - bart for two weeks (Rifabutin), Babs for one week and one off.

It sounds like you are on a really good path then. My eye pressure was HORRIBLE with babesia...I dind't even realize it was the babesia...but it sounds like everything is getting better. I think with babs you have to treat 3 months after symptoms are gone so it is a long haul. It took a long time but I am glad to be off of Mepron.

Your protocol is 3 weeks on 1 week off? I have only done the 2 weeks on 2 weeks off.

That's exciting you get to see Dr. J. I look forward to hearing about it!
Posted 7/2/2018 7:19 AM (GMT 0)
No, my current protocol is 2 on and 2 off - but both babesia.
I had done 2 on and 1 off for the first couple of months after my initial consult.

First week is M/W/F

Second week I take mepron 5 days in a row...but the 2 abx M/w/F

But, i'm thinking if they want to switch me to bart but keep babs going for insurance...maybe it will be a 3 week on schedule...we'll see what they come up with...lol.

I know I have bart - with the positive test, and I think most of my symptoms are bart.
Posted 7/7/2018 6:04 PM (GMT 0)
Question for Dr. J patients...if you see this:


I'm going to an in-person appointment in August. (I have phone consults every other appt due to the long distance)

This is my third appt. But, I have several questions...will I be rushed? I'm wondering if I'll even have an opportunity to ask my questions.

My 2nd appt. which was 9 weeks after my initial consult was cut short...I only got about 45 minutes and it was with a Practitioner who didn't have a lot of answers...lol.
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