Bartonella Diagnosis

Hi Everyone,

So I just saw my LLMD yesterday and was diagnosed with bartonella along with an active yersinia e. infection. They also are suspecting a yeast infection as my stool tests showed some inflammation and yeast in my gut. My bartonella h and q titers were very high positive (>1:256) for IGG via galaxy diagnostics as well as quest back in april. Surprisingly, they are saying that I do not have lyme but bartonella itself...is that possible?

The treatment plan that they put me on is this:
-Minocycline 100mg twice a day + rifampin 300mg twice a day for the bart
-Bactrim DS once a day to take care of the yersinia.
-Nystatin 500,000u, 3 times a day for yeast infection

For bart patients out there...what was the treatment plan that your LLMD put you through? Has it been successful? What is the typical treatment length before you feel better?

I'm a little nervous as I just started the nystatin yesterday and will slowly phase in the mino/rifampin in the next couple days along with the bactrim.

Also, what do you guys typically do to detox for bart?


Can't wait to kick this thing in the butt as I have been sick since december and have been going through multiple diagnoses from influenza, to viral encephalitis, to me/cfs, to lyme, now bart... hopefully I reach the end of the road soon...


Thanks again everyone!

Well, doing a good bart protocol should take care of lyme anyway. Except you may need to add in biofilm and cyst busters that may not be prescribed when treating bart.

You could take xylitol and lactoferrin for biofilms on your own.
Maybe your Dr. would give you a few weeks of tinidazole or flagyl for cyst form...take a couple days per month.

The bactrim, riffy and mino is a good protocol for bartonella.

I had many symptoms disappear on Rifampin/mino. (also switched the mino for biaxin for a few months)

Some symptoms I remember that left or diminished greatly that I can attribute to bart treatment:
tailbone pain, swollen lymph nodes subsided, rib pain, foot pain, shoulder pain, knee pain, weight loss

there's more I'm sure.

Oh wow. Yes I have heard of lactoferrin from a friend who suggested it to me as it has iron-binding properties...didn't know they were also effective for biofilms? Haven't heard too much about tinidazole or flatly though?

Definitely have the rib pain, swollen lymph nodes, and the foot pain...but my most bothersome sx are air hunger/shortness of breath, chest pain, fatigue, and flu-like body aches. -_-

Thanks so much Girlie, you are the best!

That combo is going to pack quite a punch against bart. How were you instructed to take them?

LilaJ said...
Girlie
Do these reduce the burnjng pain in palms and soles too? I'm finding these the hardest l think
Plus the anxiety and agitation !

I had sore bottoms of feet - especially in the morning getting out of bed. But it never was burning pain.
I have nerve pain in other areas and so far not better even after bart treatment, unfortunately

Hoping after my current Babs treatment - I’ll be back treating Bart and that will eliminate my nerve pain.

xpeetzax said...
The mino + rifampin was twice a day in the morning and evening. Nystatin 3 times a day with meals. Bactrim once a day at night. Still trying to figure out where to put in my vitamins and probiotics...any recommendations?

Currently it looks like this:

After breakfast ~730a:
-mino, 100mg
-rifampin, 300mg
-nystatin, 500,000u

after lunch ~1130a:
-vitamin c, 500mg
-vitamin d/k
-probiotic

after evening snack ~4p:
-nystatin, 500,000u
-vitamin c, 500mg
-vitamin d/k
-probiotic

after dinner ~7p:
-nystatin, 500,000u
-mino, 100mg
-bactrim

after dinner ~9p:
-rifampin, 300mg

Try to take Rifampin before your meals - even if it’s just half hour - as it’s one that is better on empty stomach.
How come you’re not taking second dose of riffy sams time with the mino?

Thank you girlie, I will try taking the rif before meals. And you are right, I plan to take the probiotic right before bed. Haven't started on the rifampin yet to see how the nystatin and mino is working out...gonna cycle in rif soon on 7/7. Can't wait to get better....I know I will..

Some more questions I guess just for morale:
-have you spoken with people who have made a full recovery from bart/lyme?
-Is it reasonable for me to assume I would be able to return to work around this fall (sept or oct) bar no setbacks?
-is it helpful to exercise if you can?

My case is interesting as I feel like I haven't been sick as long as most people here (almost 7 months now) and I was extremely healthy and fit/athletic otherwise before as well as I am on the younger side (28)... with all those going for me I'm hoping to make a fast recovery...

xpeetzax said...

Some more questions I guess just for morale:
-have you spoken with people who have made a full recovery from bart/lyme?
-Is it reasonable for me to assume I would be able to return to work around this fall (sept or oct) bar no setbacks?
-is it helpful to exercise if you can?

My case is interesting as I feel like I haven't been sick as long as most people here (almost 7 months now) and I was extremely healthy and fit/athletic otherwise before as well as I am on the younger side (28)... with all those going for me I'm hoping to make a fast recovery...

Yes, besides the people on this forum who have gotten well, I know some personally in my location. One lady in particular treated for 2 1/2 years (If i'm remembering correctly) for lyme/bart and has been in remission for 2-3 years now. No issues...no relapses.

I can't say how you will be in Sept or October. it all depends on your symptoms and how long it takes for them to resolve.

I have had many symptoms go with lyme/bart treatment, but I still have a few that are bad enough to keep me from working, and resuming a 'normal' life.

Yes, exercise is good - in moderation. Dr. Burrascano (in his guidelines) says no aerobic exercise...but I think once you start to feel better you may be able to. You can try - see how it feels. If it makes you feel worse...and recovery is slow...then it's too soon.

I exercise regularly. I do lots of theraband strengthening, some light weights, use an Eliptical machine.
I also go for fairly long walks (an hour long)

Being sick for just 7 months may help you - when I look back to how I was at 7 months in...I wasn't as sick as I was at 16 months when I finally started treatment.
I was also in really good shape - although not young like you...but I had serious muscle atrophy and weight loss in the first 6 weeks of the infection.

I wouldn't put pressure on yourself about wanting to get back to work in a couple months...that could set you up for disappointment.
I kept doing that - over and over again...but it added to my stress.

Maybe make the goal a bit further out at least...and if you get better sooner...then great!