I am afraid to die because Lyme. Please help!

Hello everyone

I do not know how to start. I'm so tired I can not tell you any more but I will try.

I've been sick for 3 years and for 9 months I'm treating myself.
It was hard to get to this diagnosis, especially because in my country there are only two doctors specializing in lyme. I have had many heavy symptoms during the antibiotic period. Now I'm in the 7-day break and then following Minocycline and Ciprofloxacin, the turn you get when you're at the end of Lyme treatment. That's what doctors say here. I followed Zithromax and tinizol, then Doxycycline and Cyprofloxacin, then Levaquin and Rimfapin, all with 7-day breaks between. You'll probably say I should be glad, I'm close to terminating the antibiotic shifts.
My LDD says after Mino, then will be just 2 more rounds of abx but no so hard to pass.
What scares and terrifies me is the pain in my heart. Since the Levaquin shift I have remained with this pain that is sharp, stabbing. Of course I have been readind here about this.
Did all the controls at the heart. EKG Holter, Echography a lot of emergency visits by measuring my heart enzymes. All right. CT scanner. All right.
But the pain is still there. And I am afraid day by day. It is been more than a months with that.
My LDD is not worried, she says that will pass at Mino.


I just need some advice, please. am constantly afraid and ask if anyone can help me with some advice please.

The two things I did that helped the most was aggressively treat parasite and I went to a biological dds who did a cavitat and found infection my normal dds clearly missed. The last two months I am starting to feel sicker so I am going back for another cavitat scan.

Hey... Thank you for responding. With all my heart. I started treatment in November 2017.
I followed a month of natural supplements, ALIVE, HEPATOPROTECT, VIT C AND D, SERRA.
Then Valtrex and Aciclovir for 1 month, because I had some viruses: Coksakie (sorry I do not know exactly how to write), rubella virus and the Zoster virus.
Then the antibiotic, every 28 days each of them.
During the tours I did 2 surgeries, appendicitis and ovarian cyst.
It took longer because the surgery.
I have also Bartonella forgot to say.
I live in Romania.
Here Lyme is treated for only 28 days and is no longer considered to be chronic since 2006.
My heart worries me because of the pain, the big pulse 160 in the morning, I take the beta blocker.
And the plethora of symptoms that are in thechest area, I feel my heart beating hard, pain, numbness, trembling.

I did not know the risks of drugs, my doctor said he would be fine does not give me too much information I think he does not want to scare me.
about detoxification .. He said to drink lots of water, salt baths and walks.

I take q10 coenzyme and drink effervescent magnesium.
Hope to help in some way.

Ioana - Re: LLMD's. I do have some information - on possibly 3 LL Dr.'s. Maybe two are the ones you know of...and the third one I have is maybe no longer treating.


You can email me and I can give you the information.

Just in case you do need another opinion.

Now there are only two doctors, there were 3, or at least so much I know.

I did not have heart problems before treatment.
It is a big problem that?
That scares me the most.
I do not know, all the good heart tests and I have these symptoms. Can be bad for myself?

I want to stop abx for a month at least to go to the other doctor but I'm thinking about doing the worse: ( like that.
Sorry I am really so scared and with any answer.
I do not want to disturb you or someone else.

Thank you for your answer.
I have this happening from 1 month, when I took Levaquin and Rimfapin. My doc says is due to the fact the parasites are in the rib cage.
I wish it was just an allergy.

LymeIoana said...
Thank you for your answer.
I have this happening from 1 month, when I took Levaquin and Rimfapin. My doc says is due to the fact the parasites are in the rib cage.
I wish it was just an allergy.

I had them for 7 days and if i didnt take the risk to take an antihistamine i would continue to have the symptoms. It wa not a common allergy, i had extreme chest pain, shortness of breath, pressure in my head, taxychardia around 130 and nerve pain in my hands. I was needing a fan to hit my face without it the air felt like poison and as you i was afraid to die. I am not trying to manipulate you but you could try . It could be something as minor as an allergy