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Posted 7/11/2018 5:21 PM (GMT 0)
Djd
Posted 7/11/2018 5:31 PM (GMT 0)
?
Posted 7/11/2018 11:06 PM (GMT 0)
Hi OriolCarol, just checking to see if you are ok?
Posted 7/12/2018 9:46 PM (GMT 0)
I had a severe episode of desorientation... It was not paranoia, but i didn't remember anything...

Doctors are incompetents and ruled me to home, like ever without a solution.... They said i have a paranoic, anxoety, bipolar, tripolar, quadripolar **** syndrome..... Just kidding... But something like this... A lot of tecnic words to diagnose anything...

I have my left ventricle inflamed, myocarditis.. Surelly it's caused by bartonella, but i don't have hope in rifampin and rifabutin because i took it several times alone without any other abx... I've been stupid.

I don't have hope, i belive i'm going to die....

I don't know what to do to stop this myocarditis... I think i'm going to take 300 minocin, 1000 cipro and 500 x2 pyrazinamide... I don't have fear... I hope not to die from abx toxicity... I'm tired and i don't want to live more with this disease....

Thank you for worry smile

Post Edited (OriolCarol) : 7/12/2018 3:50:34 PM (GMT-6)

Posted 7/12/2018 10:10 PM (GMT 0)
Oriol - Im so sorry you’re feeling defeated.

Just because you took Rifabutin and Rifampin alone doesn’t mean that it’s developed resistance to them - remember these bacterias replicate slower and that is one other reason that resistance doesn’t happen.

Please don’t do more than what’s prescribed - I don’t know the Pyrazinamide dose

Is Cipro usually prescribed with the PZ?

You do need to give the protocols more time - how long is it now? 5 months you’ve been treating?

If you give up on abx - then why not an herbal protocol ?
Posted 7/12/2018 10:38 PM (GMT 0)
I hope the Cardiologist is monitoring your heart.
Posted 7/12/2018 11:13 PM (GMT 0)
Hi OriolCarol,
I understand that you are suffering and feel let down by these doctors and their words ...please don't give up...and push the garbage that they have said out...you know the truth.

Just take one moment at a time, and every second that you do make it through, count it as a victory.

Let your soul feel this happiness and build from there.

It can be so very difficult and discouraging for some of us, not making headway and suffering all the time.

But the a ray of light shines through and we hear of someone having a breakthrough or finding a treatment that helps... so please keep fighting.

Have you researched the herbal Hawthorne that helps to protect the heart from Bartonella. maybe it would offer some protection.

You take care and I hope and pray that you get some relief from these symptoms and infections soon.
Posted 7/13/2018 2:31 AM (GMT 0)
Hi Girlie

I don't know but horowitz use dapsone with quinolones. In some patient he used minocin 200mg, avelox 400 mg, rifampin, and dapsone.

I've desperate, i'm at ER now, i have the feelling to enter in a coma, i don't have sensation in my extremities...

Thank you goshawk, i have hawthorne tincture, i'll take it.

I hope not to have toxicity with this meds... But i feel like if i'm near to dead than life... sad
Posted 7/13/2018 2:33 AM (GMT 0)
I think cipro is safer than levaquin but anyway it's a quinolone...

I don't have fear to take cipro, i feel like if i'm not going to survive more than a week without and efective abx

At past i used ofloxacin eye drops and the next weeks i had qt prolongation but i don't know if it was a side effect of abx or lyme... Because i didn't treat lyme and i was ill.

Post Edited (OriolCarol) : 7/12/2018 8:52:05 PM (GMT-6)

Posted 7/13/2018 12:34 PM (GMT 0)
OriolCarol, i believe you need to keep moving forward with some treatment. it sucks and is hard to have faith in the medical community, with all we face daily with this disease, but we must each dig deep to get through this.

there is a lot of medical case reports of heart conditions improving through antibiotic treatment. i have read quite a bit of them on pubmed and other reputable sites. i believe your condition will improve too, with continued treatment.
Posted 7/13/2018 4:14 PM (GMT 0)
I have no courage to take cipro sad

I'll try again rifampin, combined with mino and pyz.
Posted 7/13/2018 4:18 PM (GMT 0)
OriolCarol, I have felt like you many times in the past. More than I am proud to count. And yet, here I am.

What you said about rifampin and rifabutin is not entirely true. They can be combined with other abx or even herbs to make them effective again.

I will give you an example. There are some forms of Candida that laugh at Fluconazole, It just doesn't affect them. But combine Fluconazole with Ibuprofen (Advil) and suddenly, these forms of Candida are killed instantly.

I know that it is so hard to deal with these bugs. But keep this in mind: Every day that you take something for them, even if it just detoxing, it is a day that you are impeding their growth. It may take weeks, months, years, but eventually you will get enough of them to eventually get better.

Another thing: The reason that you feel sick is because the bugs are feeding off of you. What makes you feel sick, other than their toxicity, is that your body has been robbed of certain nutrients that it needs to feel good. If you begin to replace these nutrients, your body will slowly begin to heal. And as a plus, the bugs would rather feed off of what you are supplementing than to work hard at digging that stuff out of your body.

Many people focus so much on killing them that they don't focus on making their bodies whole again. I did that for years. Now, I am slowly healing my body, and although it does take a lot of time to heal, it does heal.

Hang in there. You are not alone in this.
Posted 7/13/2018 5:14 PM (GMT 0)

OriolCarol said...
I have no courage to take cipro sad

I'll try again rifampin, combined with mino and pyz.

You need to stick with a protocol...even if it's a pulsed one like Dr. J. does.

I don't know enough about the PYZ as far as safety goes...monitoring...etc. Isn't there regular blood work that needs to be done when on it?
(maybe I'm confusing it with Daraprim or Dapsone)


If you can get Rifabutin...why not stick with that? I think it's superior to Rifampin.
Posted 7/13/2018 5:24 PM (GMT 0)
also, if there is a dire concern about heart, your doctors may suggest gentamicin for 14 days.

of course that comes with its own otoxicity concerns, but may give you the relief you immediately desire.
Posted 7/13/2018 10:13 PM (GMT 0)
I'll try rifabutin but i'm worried about it.

Seven ER mutants were obtained after 2 to 16 subcultures (Table ​(Table1).1). Interestingly, for one strain (BhM), in the first experiment of in vitro selection, we found a resistant subpopulation after the first passage with several colonies growing in close contact to the antibiotic disk and other colonies around the zone of growth inhibition. The strain was homogeneously resistant to erythromycin after the second passage. The seven ER mutants obtained were also resistant to telithromycin, clarithromycin, and azithromycin (data not shown).

What are passages? I've stoped macrolides and rifampin more thant two times sad
Posted 7/13/2018 10:22 PM (GMT 0)
Yes Girlie, PYZ is like dapsone and works similar, but pyz have activity against bartonella (maybe)
Posted 7/13/2018 11:50 PM (GMT 0)
OriolCarol - I may be wrong...and forgive me if I am...but you seem to be jumping around a lot with your protocols.

You need to decide which ones to take - weigh out the risks/benefits and be at peace with what you choose. (Remembering that serious side effects are rare)

Then stick with it for several months. (unless of course you do have a side effect that can't/shouldn't be tolerated).

And, think about what protocol you will want to take after that one.
Posted 7/13/2018 11:56 PM (GMT 0)
Yes Girlie, I know I should do this, but I have previously 'played' withantibiotics that I believe in and I am obsessed with having a bartonella resistant to rifampicin / macrolides ....

I would like to go back in time, and start over.
Posted 7/14/2018 12:00 AM (GMT 0)

Michael26 said...
Yes Girlie, I know I should do this, but I have previously 'played' withantibiotics that I believe in and I am obsessed with having a bartonella resistant to rifampicin / macrolides ....

I would like to go back in time, and start over.

Michael - I wasn't talking to you...lol...I was talking to OriolCarol.

Did you mean to post on your thread?

Here's your thread:

/www.healingwell.com/community/default.aspx?f=30&m=4034831

It's totally fine you posted here...but I was wondering if you thought I was saying you shouldn't be jumping around and stick to a protocol...when I wasn't... tongue
Posted 7/14/2018 12:25 AM (GMT 0)
Lol jajajaja Michael26, I think you have posted in the wrong thread.

Girlie, I'll stick on mino/rifabutin/pyz and see what happen and of course, to be patient to see results.
Posted 7/14/2018 2:27 AM (GMT 0)
I hope you start feeling better soon.
Posted 7/14/2018 2:49 AM (GMT 0)

OriolCarol said...
Lol jajajaja Michael26, I think you have posted in the wrong thread.

Girlie, I'll stick on mino/rifabutin/pyz and see what happen and of course, to be patient to see results.


I’m rooting for you OriolCarol!!
Posted 7/14/2018 1:58 PM (GMT 0)
Today i've had a severe episode of tachycardia but it has subside with valium... But it wasn't anxiety... I don't know why it works if it's not anxiety... I was at 200 bpm at rest plus aire hunger, paresthesias.... Absolutelly horrible... I took 10mg of valium and now i feel like a baby jajaj
Posted 7/14/2018 2:00 PM (GMT 0)
Can it be autonomic nervious system? I don't know if valium has any effect on that.

It has been magic! 15 minutes later of valium my heart rate was 65 bpm

about abx protocol, can i take houttyunia, cumanda and banderola without risk of any interaction with abx?

I've been reading Why i can't get better and horowitz says that it works sinergically with abx.. What do you think?

Post Edited (OriolCarol) : 7/14/2018 8:24:12 AM (GMT-6)

Posted 7/14/2018 3:22 PM (GMT 0)
I took houtynnia and cat's claw when I was on antibiotics and I didn't have any trouble.
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