Hey everyone I'm new here! I'm gonna give you a little bit of my history to see if you think I have Lyme disease or not.
First off I have been diagnosed with Lyme now for 6 months, & I am uncertain to whether it's a correct diagnosis because I have don't think I have herxed.
It all began for me a year & a half ago when I was just moving out and beginning my life as an adult! I moved into a apartment & the 2nd day I woke up & felt Foggy/spaced out/slightly drunk. This wasn't the first time I had felt this way as I had felt this way in the past but it wasn't chronic. This time it was!
I had done all sorts of blood work and sleep studies & scans on my brain. NOTHING!
I just felt mentally off, almost like I hadn't slept in 3 or 4 days. I felt as if I was stoned! I couldn't get a diagnoses and this went on for a little while but I began to notice more and more problems! Over the course of a year & a half I noticed I had these symptoms.
1. Unrefreshing sleep, i wake up every single day dying to go back to sleep. I just never feel charged no matter how much I sleep. Sometimes it actually seems like I feel better if I get little sleep like a couple hours.
2. Fatigue- basically all day and gets worse when I eat something unhealthy, or if I stuff myself too much.
3. Daytime sleepiness- this usually hits me soon after waking up sometimes around 12 am. Sometimes it's worse then others. Sometimes I can fight through it other times I can barley keep my eyes
open.
4. Mentally foggy or drunk- this is by far the most annoying symptom. My vision just isn't right it's like my vision is slightly drunk but my body isn't. I also can't remember words, memory loss, concentrating problems, learning problems. These mental prOblems are my biggest problem.
5. Constantly staring into space- I do this all day long. It's like my eyes & mind just zone out all day long & im left sitting there looking like a zombie. I just feel disconnected from life
6. Muscle twitching- usually happens when I lay down & is usually legs or arms.
7. Random pain- this pain is sometimes different and comes quick & leaves quick. It sometimes feels like a stinging pain and sometimes feels like a burning pain.
8. Insomnia
9 problem with dim lighting
10. Light sensitivity, the only thing my eyes are sensitive to is the sun! I can barley
open my eyes at all.
11. Frequent urination, I pee alllllllll dayyyyyyyyyu longggggggggggg
12. Random testicular pain
13. Anxiety & social anxiety, fortunately I never had anxiety my whole life but unfortunately i have it now and it's awful!!! I get anxiety talking to people I have known my whole life or I overthink what I'm gonna say to people. Basically anything I don't do on a daily basis I get anxiety about
now.
14. Depression & suicidal thoughts. This is quite scary.
15. Irritability, best way to put it in very hateful and I hate what my life has been the last couple of years.
16. Stay hotter then everybody else. I also notice I sweat very easy but don't wake up sweating or anything. Just any physical activity I sweat.
17. Not feeling like myself- I don't know if you could call this a symptom but I really feel like a different person. I'm the total opposite that I use to be and I hate it. I want my life back.
18. Unorganized- I feel like I constant loose stuff and things are always going bad for me. I'm constantly losing my wallet or forgetting something. In this 2 years I have lost 2 wallets. I also notice if I go to Walmart or something I have a hard time finding what I'm looking for.
19. Unmotivated
20. Poor circulation
21. Eating binges & weight gain
22. Crawling sensations
23. Low testosterone, I'm 21 years old!!!!!!!!
24 low vitamin D
25 low fsh hormone
Sooo as you can see I have my hands full. Lol
Also my western blot came back negative with only one band positive, band 23 igg which my doctor said only Lyme disease could cause.
My reasoning for doubting my diagnoses is because I don't herx. All I notice is some days I feel better then others. Some days I feel decent energy wise and other days I'm glued to the couch and depressed and hopeless. This isn't herxing is it?
I'm really hoping the Lyme community can help me figure this out. Thank you all for being here.
Post Edited (LLLLX) : 7/14/2018 10:47:37 PM (GMT-6)