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Chronic Inflammatory Response Syndrome (CIRS)??

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Posted 8/8/2018 3:16 PM (GMT 0)
I see some of you were diagnosed with this. My Drs always mentioned specific issues and kind of stayed away from "buzz terms" besides leaky gut.

Is there a definite set of symptoms with SPECIFIC tests for this? Or is this used as another blanket term? I guess if a "syndrome" has no defined cure path, it doesn't matter what we call it.


Is it always mold related?

Its usually on mold websites:
howirecovered.com/mold-toxicity/

My immune, autoimmune, and endo system are screwed up. Doesnt seem to be a fix. Dont know if there is a blanket term for this, or if it matters. All this AFTER lyme treatment. Tested every bug there is, all negative.

thanks for clarification
Posted 8/8/2018 3:58 PM (GMT 0)
Mold seems to be the key player.

Yes there are a set of tests to run. As far as symptoms go, they overlap with lyme symptoms, so it can be difficult to distinguish between them.

There is a visual contrast test which is measuring a specific symptom. Other than that you will have these tests run.


MSH
MMP-9
C4a
ADH
TGF Beta 1
HLA DR
AGA IgA/IgG
ACTH/Cortisol
VEGF
ACLA IgA/IgG/IgM
Leptin
Posted 8/8/2018 4:18 PM (GMT 0)
great article here

https://www.selfhacked.com/blog/the-root-causes-of-mold-problems-msh-sirt1-socs3-and-hypoxia/

its basically a fancy name for extreme mold allergy. If you dont have big reactions to anything molds its likely you dont have CIRS
Posted 8/8/2018 4:52 PM (GMT 0)
astroman,

CIRS is a well defined illness with lab biomarkers that are used for both diagnosis and treatment monitoring. The Shoemaker protocol is a defined protocol that must be followed in specific sequence. If followed partially or out of sequence, it is not likely to be as effective and will waste time and money.

NO, it is NOT JUST MOLD. But it often is mold and Lyme combined.

CIRS is not a clinical diagnosis. It must be diagnosed with set lab testing.

If you are going to look into this for yourself, I would strongly advise you to see a Shoemaker certified practitioner. Don't waste your time or money on people trying to do it their way.

www.survivingmold.com is Shoemaker's website. Not very user friendly.

The only other site besides Shoemaker certified physicians' sites that I feel is an accurate reflection of Shoemaker's work is biotoxinjourney.com
Posted 8/8/2018 4:56 PM (GMT 0)

Lapis_29 said...
great article here

https://www.selfhacked.com/blog/the-root-causes-of-mold-problems-msh-sirt1-socs3-and-hypoxia/

its basically a fancy name for extreme mold allergy. If you dont have big reactions to anything molds its likely you dont have CIRS

Both statements here are INCORRECT.

CIRS is most definitely NOT a mold allergy. Furthermore, those with CIRS are often unaware that mold is triggering any symptoms until they go through a period of removal from mold exposure.
Posted 8/8/2018 5:29 PM (GMT 0)
Ok, so it is a mold "related" with lyme acronym. Talk about confusing.

I did have Dr test a lot of shoemakers preferred tests a couple years ago. Never got the MSH test though
- on my list since it points to other things too.
Posted 8/8/2018 5:31 PM (GMT 0)
How did your other test results look?
Posted 8/8/2018 6:57 PM (GMT 0)
They looked good except for human transforming growth factor beta 1. Dont remember if it was high or low.

That can be other things to and was never followed up on. Not much about htgf beta 1 online. Has to do with gut, and virusis, and regulates T cells somehow. My T cells are toast. Gut feels good, no virises found.

And C4a was very high but diet fixed it.

Post Edited (astroman) : 8/8/2018 1:00:19 PM (GMT-6)

Posted 8/8/2018 9:11 PM (GMT 0)

astroman said...
They looked good except for human transforming growth factor beta 1. Dont remember if it was high or low.

That can be other things to and was never followed up on. Not much about htgf beta 1 online. Has to do with gut, and virusis, and regulates T cells somehow. My T cells are toast. Gut feels good, no virises found.

And C4a was very high but diet fixed it.

Great. Sounds like you were pretty much cleared for cirs.

There is an online VCS test you can do for free one time if you are interested.

/www.vcstest.com
Posted 8/8/2018 10:48 PM (GMT 0)
If you want to see if there is inflammation in the body, then you should do the following two tests. - erythrocyte sedimentation rate and C-reactive protein. I believe that Lyme and other illnesses can cause the immune system to go haywire, and cause many autoimmune disorders.
Posted 8/8/2018 11:43 PM (GMT 0)
I had a temporary flare of CIRS, after cleaning out my dying father's 1950's mold infested rust bucket trailer that he'd been living in for years.

It was late summer 2017, and it wrecked havoc on my Lyme treatment = meaning I had to cease Lyme & Co's treament and deal w/the mold toxins.

Per my LLND....
The toxins are 'held' in the gut and gets recycled causing the CIRS, which inturn can cause POTS and/or MCAD> of which MY symptoms are GONE since taking a month of rifaximin.
Posted 8/9/2018 12:21 AM (GMT 0)

mcspike said...

Per my LLND....
The toxins are 'held' in the gut and gets recycled causing the CIRS, which inturn can cause POTS and/or MCAD> of which MY symptoms are GONE since taking a month of rifaximin.

Are you saying you had POTS and MCAD symptoms that your doc thought was from mold toxins, but taking rifaximin get rid of the symptoms while CIRS treatment didn't?

What is rifaxamin for - bart, Lyme, babs???
Posted 8/9/2018 4:40 AM (GMT 0)
Erythrocyte sedimentation rate and C-reactive protein are the most basic inflammation tests there are, yet they dont seem to find inflammation when its right there.

These have never been elevated in me despite active autoimmune inflammation via antibodies and organ destruction for 20 years, and then lyme.
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