HealingWell
Search Close Search
☰

PICC lines and Ozone therapy

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/25/2016 3:59 PM (GMT 0)
Happy holidays everyone,

My teen daughter has Chronic Lyme, Babesia, Bartonella, etc. and she is considering a PICC line for therapies. We are wondering if anyone has received ozone therapy via a PICC line and if you would share your experience with the therapy.

Hyperbaric MultiPass Auto Hemo Ozone Therapy (HMAHOT is not an options, she becomes vasovagal with lab draws, has passed out twice and had a vasovagal seizure once.

We are interested in Major AutoHemoTherapy (MAHT) or ozonated IV solution.

Thanks for your help!
Posted 12/25/2016 4:38 PM (GMT 0)
Welcome Mamta. With it being Christmas, you might not get too many people seeing this post today.

You have come to a good place to get information. Someone will be along that has first hand experience.
Posted 12/25/2016 7:05 PM (GMT 0)
I just did a search on the forum for similar posts - while I doubt every ozone therapy post will be about what you are talking about, there still may be some good information on the subject for you and your daughter:
/goo.gl/yQ9ZhD
Posted 12/25/2016 7:37 PM (GMT 0)
We use our ports to do ozone therapy here ..the catheder is a little different ..and shorter .if it mixed with blood and heparin i imagine it would not be caustic to the plastic that is the picc line ..

if its for a few months of therapies a picc can last 6 to 12 months with weekly dressing changes ..

if treatment is for 2-3 years or life, consider a port ...can be imersed after access is withdrawn ...piroette has some good post on this subject .

welcome sorry merry xmas ..how sick is your girl..?how long has she had it ?
Posted 12/26/2016 7:15 AM (GMT 0)
Hi bluelyme,

Thank you for your help. Our daughter may have contracted Lyme at an early age, possibly as a
3-4 y/o. The Lyme began to emerge with the upswing of hormones, middle school and life stressors.

Her immune system began to decline in January and February 2015, and she become primary homebound-bed bound in March 2015. It did take 10-12 doctors and 6-7 months to be clinically diagnosed by a LLND. Progress has been slow, incremental; she is a sensitive soul and does not tolerate many of the antibiotics.

The Neuro Lyme is the most concerning and frustrating. I made a commitment to following all recommendations of our LLND for one year and if improvement was not significant that we would pursue other avenues to health and healing. We are willing to travel for optimal treatment and healing.

By ports, do you mean portacaths? What does "can be imersed after access is withdrawn" mean? M
And may I ask where "here" might be?

Very much appreciate finding the Healing Well Lyme forum, the community is a wealth of knowledge and support.

Mamta
"motherly love"
Posted 12/26/2016 7:17 AM (GMT 0)
Thanks PeteZa and Traveler!
Posted 12/26/2016 9:47 AM (GMT 0)
Im in the south west ..yes.they are implanted caths .."smart port"..a hubor needle is placed on infusion days then can be removed for showering and swimming etc ..picc lines cannot get wet but they make sleeves ..the learning curve is steep with iv treatments and care ..insurance will only cover a month of care if you are cdc positive ...some doc have used alternative icd 10 codes like pdn or other demyleinating disorders ..

The bee venom has been effective for neuro lyme ..have you done coinfectuon testing yet?...dna connexions does 12 microbes no doc needed .happy holidays ...read rowing moms posts ahe got her daughter well through 5 years of various tx
Posted 12/26/2016 7:04 PM (GMT 0)
The first positive test was IgG mycoplasma (past infection)March 2015, then Babesia May 2015, but when a babesia PCR came back negative the MD's said that she did not have babesia.

I advocated for retesting, asking "what if the PCR is a false negative", but my voice was not heard. Also, the Western blot came back negative according to IDSA And CDC guidelines. I had wanted to consult a naarby ND known for treating Lyme, but since my husband is conservative, he only believes in MDs and scientifically proven research and beacuse my daughter was so extremely sick with fever, temperature disregulation, body aches, a feeling of increased gravity, extreme fatigue and weakness, etc., I felt I needed to pursue all western medicine options prior to consulting the ND.

A few month later, in August, the Bartonella set in and was diagnosed, a definite sign post to pursue the possibility of Lyme disease. Sept. 30, 2015 she had her appt with the ND and was clinically diagnosed.

She did have iGenex testing following the appt and just a few weeks ago had the DNA Connexions test, we are awaiting reuslts.

It is a complex situation with SNPs, food sensitivity, intolerance of many antibiotics and medicines, low cortisol, low neurotransmitters, leaky gut, candida, and we are awaiting clostrium lab results.
Posted 12/27/2016 12:25 AM (GMT 0)
So sorry about your daughter. However all of the issues that you listed right above these posts regarding, low cortisol, food sensitivities, leaky gut, etc., are commonplace when the body is overloaded and dealing with these infections be it bacterial, viral, etc. When the immunity goes down, it becomes a breeding ground for opportunistic invaders that may normally be dormant in the body.

As far as the PICC line, I had one in my left arm. You do have to flush and clean the line on the days that you don't do ozone or any services. And it has to be covered when showering. I used plastic wrap and a sleeve when showering.

Personally I didn't like it and had it removed after 2 weeks.

As with everything there are risks. Infection, blood clots, etc. At the clinic I was at, some just opted for not getting one placed, but still did their ozone treatments. Not everyone develops issues with PICC lines, but you should at least be aware of the potential risks.
Posted 12/27/2016 1:14 AM (GMT 0)
Hi Krimpet,

Thanks for sharing your experience. Did you go on to get a port-a-cath or just do IV's for treatments?
Posted 8/17/2018 2:49 PM (GMT 0)
Hey Bluelyme,

How was your experience with doing ozone through a picc line??
Posted 8/17/2018 6:51 PM (GMT 0)
I did about a month of mah 3 x a week ,few times with uv light few times with silver ...it was making me more fatigued and irritating my vasculitis so i switched to iv curcumin and glute and relied on venom and rife to kill after i was done with roceph ...btw i used a smartport not a picc line ...i chose this for many reasons

I have heard of people damaging the line with caustic ozone directly not sure the plastic is up to par
✚ New Topic ✚ Reply