dizziness, faint feeling, heart pounding, air hunger, with physical activity and Lyme??

Hi whitetail. Welcome!

The tilt test should have shown if you have POTS but maybe test yourself.
Do you have a BP/heart rate monitor?

If not, you can at least test your heart rate with a watch or phone or second hand clock.

Sit down and take pulse. Then stand up and take it again. If your heart rate goes up 30 bpm or more its pots.

I have mild pots. When I stand up my heart rate goes up to 100-105 bpm - it used to go to over 120 bpm.
So it’s getting better.

Lyme causes autonomic nervous system dysfunction - and heart rate and blood pressure regulation are part of the ANS

Ginger tea helps my heart racing issues it really calms you down also thins the blood this is probably your issue hypercoagulation, my llmd says 93 percent of Lyme patients he sees has it. Told me that at first appointment and he had me do test at my home lab and sure enough I got it bad lucky to be alive. My fibrin was 1833 high is 300. All my d-dimmer etc was crazy bad. I started thinning my blood and felling somewhat better. Still got a way to go. The fibrin clogs up the caps and you can not get the blood into them and the borrelia hides under it. So the meds do not work. He wants me to use heparin but I am too scared to. I use honey, fish oil, ginger tea, to thin my blood and I am trying to build the nerve up to take nattokinase or serrapeptase to bust the fibrin. U may need to test and see for yourself it is the cause of pots too.

So your heart isn't beating fast? no high heart rate?

Do you have a Lyme literate Dr.?

yes heart starts beating fast, pounding, and sometimes slows to a flutter. normally is accompanied with dizziness and air hunger and body gets weak like its gonna shut down, muscles arms and legs go limp, but sometimes they all come separately...

whitetail said...
yes heart starts beating fast, pounding, and sometimes slows to a flutter. normally is accompanied with dizziness and air hunger and body gets weak like its gonna shut down, muscles arms and legs go limp, but sometimes they all come separately...

Are the tops of your feet a reddish color?


My diagnosis of POTS was because when I stood up my heart rate went up. I can't remember if my blood pressure lowered...that can also happen.. The tops of my feet were a bit reddish.
The reason your heart rate goes up is because most of your blood stays in the lower body when you stand up. This makes the heart beat faster - to get blood to your brain.
Sometime blood pressure will drop at the same time.

POTS is diagnosed on symptoms that you can have:

- feel dizzy or faint
- Feel dizzy or faint
- Have blurry vision
- Feel nauseous or shaky
- Sweat a lot
-Have brain fog

BTW antibiotics are not a waste of time if you have chronic lyme.
I have had close to 40 symptoms...am down to about 8 now.

I also haven't treated mold or yeast. (I do take Diflucan 2 days per month though)

Antibiotics do get through the blood/brain barrier.

Did the Lyme Dr.'s not say your symptoms were from lyme and co-infections?
I'm surprised not one of the 4 LLMD's treated you with abx.

I'll search for some threads on Envita and Sponaugle. One of them had some bad reviews.

didn't mean antibiotics are a complete waste, but some people think that's all that's needed. YOU HAVE to bust through the biofilm and blood brain barrier so antibiotics can go to work. people who are on antibiotics for years is ridiculous. Spanaugle has treated over 10k patients and have guaranteed a 85 /93% success rate of bringing people back to normal. Its a big claim but true ive investigated for 6 months. The ones who failed treatment didn't stay the required time. Envita claims I only need 8 weeks of aggressive treatment where Spanaugle says 16 weeks. ones 60k and the other is 88k, which doesn't include your stay or food. it will take a miracle to get there as I may not ever make it to either.


im glad you antibiotics are working, some lyme patients aren't plagued with the mold, yeast and others. I just want some relief from these symptoms so I can function a little

whitetail said...
BTW. the tops of my feet are not red... at least not yet. didn't mean to insult you on the antibiotics comment but yes, a lot of people feel better on long term antibiotics and most symptoms go away only to return when antibiotics are stopped. After talking to Dr. Jemsek and Dr Horowitz its their understanding that the long term is only putting people in a temporary remission not eradicating the disease. The only place doing that at this time is in Germany at St. George Clinic where they are actually killing Lyme and coinfections with heat... sucks they wont help us here... only want to treat us

I know several people who have stayed in remission after abx are stopped - not including the members on this forum who have healed. People in my location.
I see Dr J and he did not say that to me - what he did say is the pulsed approach allows the immune system to start working so that when you wean off the abx the immune system can keep you in remission.

We have a forum member who went to Germany for the hyperthermia treatment.
They told her that it only treats Lyme - but not the coinfections.
Last she posted - her daughter was doing well but she didn’t get the same results.

whitetail said...
didn't mean antibiotics are a complete waste, but some people think that's all that's needed. YOU HAVE to bust through the biofilm and blood brain barrier so antibiotics can go to work. people who are on antibiotics for years is ridiculous. Spanaugle has treated over 10k patients and have guaranteed a 85 /93% success rate of bringing people back to normal. Its a big claim but true ive investigated for 6 months. The ones who failed treatment didn't stay the required time. Envita claims I only need 8 weeks of aggressive treatment where Spanaugle says 16 weeks. ones 60k and the other is 88k, which doesn't include your stay or food. it will take a miracle to get there as I may not ever make it to either.


im glad you antibiotics are working, some lyme patients aren't plagued with the mold, yeast and others. I just want some relief from these symptoms so I can function a little

Yes - I do take something for biofilms for one week per month.