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babesia, a bab, breathing, testing

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Posted 9/18/2018 1:01 AM (GMT 0)
hi I am currently thinking I am having a babesia flare due to an increased difficulty in breathing. I had a terrible episode 2 yrs ago with extreme air hunger. I was only able to resolve it after another visit to the hansa center and a protocol they put me on.

Flash forward to now-- I have been having an increase in tight breathing-- it just feels like my ribs lungs and diaphragm are gripped up tight. I am back on some of the herbals I was on the other year- and then a couple days ago I tried some a bab. I tried about 1/3 a dropper two days in a row. IT seemed to make my breathing much worse. I then read a lot on line of ppl having terrible herxes to a bab. I am wondering if it even helps at all?

so I have never had a blood test for babesia. When I had it before I had really low iron. I am getting a test tomorrow for iron, cbc and also babesia- but I have heard the basic test I am getting is not great or reliable ( it is the one insurance covers).
Anyway-
-what have peoples experiences been with a bab?

I am also taking: 3 Jernigan remedies ( lymogen, borellogen, neuro antitox), then curcumin, black seed oil, and the buhner cryptolepsis, sida acuta and bidens. I am taking a bit of iron and wil see how my irn levels are

I am hoping this is not a babesia flare but it has been terrible breathing again so it likely is. I hate this! any wisdom or comments? considering a short course of abx to knock back the babesia but not sure if a short course will help and not willing to do a long course. what are the best abx for babesia? I read about a new test in development that can test for all co infections in one test, waiting for that.
I have never been tested for co infections.
also considering a out of pocket igenex babesia test, I guess depending on how much it costs and what the other results are.
Posted 9/18/2018 1:39 AM (GMT 0)
the other weird thing about this tho is that my diaphragm has also been really tight. And I also tested positive for SIBO so for a while I thought it was maybe a hiatal hernia or sibo related. But I have had the hiatal hernia pulled down a bunch by a practicioner and the sibo doesn't seem too bad- and I still just have this gripped up band of tightness around my ribs. it is pretty relentless for the last two months and getting worse. So I am suspecting babesia. I guess I will just continue the herbal protocol and hope it works.
Any thoughts on any of this?
I also get this weird pressure in my abdomen- it is like bloat but no gas- just pressure--

I am scared to take the a bab since things have gotten worse with my breathing since then--- what have others found with a bab and breathing trouble? does it help or harm?

Post Edited (flowergarden) : 9/17/2018 7:48:06 PM (GMT-6)

Posted 9/18/2018 2:13 AM (GMT 0)
For Babesia - you need an antimalarial med.

Mepron or Malarone combined with an antibiotic is a common treatment.

But you need to treat for a minimum of 4 months.

I also had the feeling of a tight band around my ribs.
Posted 9/18/2018 2:15 AM (GMT 0)
Welcome to our community!

Sorry I didn’t realize you are new here.

How was your experience at the Hansa Centre?
Posted 9/18/2018 2:25 AM (GMT 0)
hansa was great in a lot of ways-- when I had my severe air hunger two yrs ago the r there wa the only one who could help me. they also helped me when I first had lyme and the abx didn't work, I went there and got a lot better. I went a few times where it didn't help too much- and I guess over all I have had lyme for 5 years and been pretty decent since hansa except for the breathing- which is the worst! And so they helped me with it but it did not last forever since I am back with breathing difficulty. Also they are very expensive so I spent too much money going there thining they would get me all the way better.
Right now the three main drs form hansa just left and are starting a new clinic in Wichita. so it opens in a couple months I think- I think it will be called the institute for restorative health.
If $$ were no issue I would see my hansa dr ( at the new clinic) like twice a year- but I cant afford to go there anymore. If I absolutely cant get rid of this babesia over a long period of time I guess I would go back to the hansa dr when his new clinic opens as he was able to get me beter for a good whle from it two years ago when no one else can.
I did the abx first 5 years ago and they didn't work for me.
I am hoping the herbals work for me as I cannot stand this tight breathing feeling it is so hideous. I am doing a basic version of the treatment- my hansa dr suggested. But also adding in the buhner stuff. I hope it works.
Posted 9/18/2018 2:46 AM (GMT 0)

flowergarden said...
hansa was great in a lot of ways-- when I had my severe air hunger two yrs ago the r there wa the only one who could help me. they also helped me when I first had lyme and the abx didn't work, I went there and got a lot better. I went a few times where it didn't help too much- and I guess over all I have had lyme for 5 years and been pretty decent since hansa except for the breathing- which is the worst! And so they helped me with it but it did not last forever since I am back with breathing difficulty. Also they are very expensive so I spent too much money going there thining they would get me all the way better.
Right now the three main drs form hansa just left and are starting a new clinic in Wichita. so it opens in a couple months I think- I think it will be called the institute for restorative health.
If $$ were no issue I would see my hansa dr ( at the new clinic) like twice a year- but I cant afford to go there anymore. If I absolutely cant get rid of this babesia over a long period of time I guess I would go back to the hansa dr when his new clinic opens as he was able to get me beter for a good whle from it two years ago when no one else can.
I did the abx first 5 years ago and they didn't work for me.
I am hoping the herbals work for me as I cannot stand this tight breathing feeling it is so hideous. I am doing a basic version of the treatment- my hansa dr suggested. But also adding in the buhner stuff. I hope it works.

Isn’t Dr Jernigan the main Dr at the Hansa centre?
Posted 9/18/2018 2:53 AM (GMT 0)
has anyone tried mc bab 1 or mc bab 2 from beyond balance? I am seeing a new llnd this week so I will check with her too--- feel like I am maybe throwing too many herbs at it-- was reading someone said the mc bab 2 helped with their air hunger so now I want that--- still scared of the a bab I just spent a ton of $ on-- still trying too much but I know something has to work
Posted 9/18/2018 6:03 AM (GMT 0)

flowergarden said...
has anyone tried mc bab 1 or mc bab 2 from beyond balance? I am seeing a new llnd this week so I will check with her too--- feel like I am maybe throwing too many herbs at it-- was reading someone said the mc bab 2 helped with their air hunger so now I want that--- still scared of the a bab I just spent a ton of $ on-- still trying too much but I know something has to work

Hi flowergarden. Been trying to decide which thread to respond to your recent posts and thought this one would be most apt. Admittedly my knowledge and experience on the matter is fairly limited, but I would say make sure you give supplements and herbs time to make their mark before moving on. If you're experiencing unpleasant symptoms after taking a herb that's meant to be effective against Lyme or one of the cos, that *usually* means it's working. My wife's been on A-BAB for 3 weeks (her first go at treating Babesia, as it was the only one that came up positive) and has just come out of her first really bad herx after upping the dosage to 10-12 drops twice a day. From what I've read and now the experience my wife has had, the stuff is POTENT - but apparently it works. All you can is use your best judgement and try to persevere. If you're concerned, spend some time sifting through this forum and others to find A-BAB success stories.

Sorry to hear of your relapse, and all the best with your new protocol
Posted 9/18/2018 2:41 PM (GMT 0)
thanks very much for your kind response!
I was able to treat the babesia two yrs ago but only by going to the hansa ctr and I cant afford it again.
I am seeing a new llmd this week who is supposed to be very experienced so I will see what she suggests.

My main symptom is band f tightness around my ribs. It is weird as it has been bothering me for months but mostly in my diaphragm-- and I wasn't sure if it was a tick thing. I had a new person work on doing some diaphragm releasing last week, and the diaphragm is a bit better but now the band of tightness is around the ribs and lungs more and I know for sure it is a tick borne flare babesia or something)
But yeah I took like 1/2 a dropperful of a bab and then a 1/3 dropperful a few days ago and it has been SO tight ever since.
I also added in the buhner herbs and black seed oil and curcumin.

I get the theory of herx but it doesn't make sense to me. If I am fighting an infection and throwing meds at it, it should be getting betternot worse. I kinda feel like the herx idea is a bit of a catch all- like oh you stil feel terrible, it is just a herx. I don't know. I am glad I am seeing a new llmd ( llnd) on Friday- and until then I am staying away from the a bab but staying on the other things.

Have you really heard a bab eventually works? It was in one of my formulas form hansa yrs ago but mixed in, and I assume in a tiny dosage. I want it to work! I need to be free of thi so I can breathe an relax again I am so consumed by this again it has taken over my life and I am exhausted, tight in the breathing area. so sad.
Posted 9/18/2018 3:44 PM (GMT 0)

flowergarden said...
thanks very much for your kind response!
I was able to treat the babesia two yrs ago but only by going to the hansa ctr and I cant afford it again.
I am seeing a new llmd this week who is supposed to be very experienced so I will see what she suggests.

My main symptom is band f tightness around my ribs. It is weird as it has been bothering me for months but mostly in my diaphragm-- and I wasn't sure if it was a tick thing. I had a new person work on doing some diaphragm releasing last week, and the diaphragm is a bit better but now the band of tightness is around the ribs and lungs more and I know for sure it is a tick borne flare babesia or something)
But yeah I took like 1/2 a dropperful of a bab and then a 1/3 dropperful a few days ago and it has been SO tight ever since.
I also added in the buhner herbs and black seed oil and curcumin.

I get the theory of herx but it doesn't make sense to me. If I am fighting an infection and throwing meds at it, it should be getting betternot worse. I kinda feel like the herx idea is a bit of a catch all- like oh you stil feel terrible, it is just a herx. I don't know. I am glad I am seeing a new llmd ( llnd) on Friday- and until then I am staying away from the a bab but staying on the other things.

Have you really heard a bab eventually works? It was in one of my formulas form hansa yrs ago but mixed in, and I assume in a tiny dosage. I want it to work! I need to be free of thi so I can breathe an relax again I am so consumed by this again it has taken over my life and I am exhausted, tight in the breathing area. so sad.

I wish I could say I know A-BAB works, but I can't. As we're newcomers to treating Lyme, we're trying to just go with the advice of the practitioner although I have some doubts. A few people on here have used it though.

Completely get what you're saying around herxing, and it's certainly pretty scary because once it's happening, there is that voice in your head saying 'what if this isn't actually a herx and something more serious is happening?'. The science behind the herxheimer reaction though is pretty sound. You kill off bad things, they release toxins into your bloodstream (including acetaldehyde, a form of ethanol, aka alcohol) that make you feel dog rough, thus the need for detox. I like to see it as a really bad hangover, but then again it's not me that experiences them so who am I to comment? I think ultimately, the hope is that everything gets killed off and expelled from the body, and you're sorted - but easier said than done.

Sorry to hear of your symptoms though - can't be pleasant. Can't say my wife has experienced that before (although her symptoms are in the dozens so maybe she has), but everyone's symptoms are unique. Like I say, give it a chance to work. We were advised that A-BAB may have to be taken diluted first off, i.e. put one dropper in to 4x water, and only consume 25% of the mixture! My wife seemed to tolerate it well up until a point, but once again, that's the mystery of the illness, and why everyone seems to respond so differently to different things. Stick with it and keep detoxing hard. If you're feeling worse from it, to an extent, it should mean it's helping in the long run. All the best
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