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Two Questions Vitamin D Herx? And thoughts on Picc Lines

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Posted 9/24/2018 2:48 PM (GMT 0)
I had to quit gluten last week...developed celiac disease. I think I am withdrawaling sort of hard. I also have mast cell and I have super low vitamin d and vitamin bs. We started the vitamin d slowly. 1,000iu and it’s only in olive oil. Can vitamin d cause a herx? I have to take it because I’m at a 16...and it’s seriosuly affecting my mood and memory. I just have been getting the Lyme herx or more so babesia herx symptoms lately. I am too weak to do any other treatment right now so we are going to place a picc line possibly to do IV saline as needed which is usually every day and potassium possibly as needed. Then, as my gut heals from the celiac disease my doc is hoping I absorb the nutrients and start to regain strength before we do IV antibiotics. Any thoughts on herx from D and also thoughts on picc line?

Thanks
Leah
Posted 9/24/2018 3:22 PM (GMT 0)
Vitamin D gave me fatigue when my FT3 was too low, now I'm able to take high doses without any ill effect.
Posted 9/24/2018 3:59 PM (GMT 0)
My free t3 is okay but my reverse t3 is really high....and tag is hypothyroid. But doc is hoping cutting gluten will heal that
Posted 9/28/2018 9:25 PM (GMT 0)
Anyone else get herxing type reaction from D3?
Posted 9/28/2018 11:46 PM (GMT 0)
low dosages can give herx through rapid conversion into calcitriol(active metabolite)
Posted 9/29/2018 12:41 AM (GMT 0)
My vitamin levels were at 13 when I had them checked in the beginning. The doctor gave me D2 but I never took it. I read up on vitamin D and found that vitamin D3 is better. So I started taking 400Iu and every few days I would up the dosage until I got to 2,000Iu a day. At my next appointment, it had gone up to 25. Eventually I got it into the upper normal range.

I can't say if I herxed from it or what the low dosage was doing to me because I was so sick that I could not tell what was causing what. I was also trying out so many different antibiotics that I was herxing from everything.

I continue to take 1,200Iu a day to keep my levels normal.
Posted 9/29/2018 1:29 AM (GMT 0)
My llmd test monthly about vit d and is real adamant that I have to get it above 80 that’s right above 80 and maintain it there til I am healed. I can not post pics here to show his statements on this. My hands hurt awful tonight just finished a sauna treatment and new symptom of hands hurting bad. Just explaining why I am not posting his notes a lot to type on it.
Posted 9/30/2018 1:27 AM (GMT 0)
I feel horrible when taking Vit D.

I become incapacitated and just sit all day with muscles flaring.

I won’t take it.
Posted 9/30/2018 5:23 AM (GMT 0)

Donjr said...
My llmd test monthly about vit d and is real adamant that I have to get it above 80 that’s right above 80 and maintain it there til I am healed. I can not post pics here to show his statements on this. My hands hurt awful tonight just finished a sauna treatment and new symptom of hands hurting bad. Just explaining why I am not posting his notes a lot to type on it.

I think the range of sufficient vitamin d levels is 40-100

I’ve tested several times and lately it’s between 50-75

I supplement with sublingual vit d - taking 2000- 3000 iu every few days.
Posted 9/30/2018 5:24 AM (GMT 0)

Mark FW said...
I feel horrible when taking Vit D.

I become incapacitated and just sit all day with muscles flaring.

I won’t take it.

Do you know what your level is?

Do you get a lot in the spring and summer months?
Posted 9/30/2018 9:51 PM (GMT 0)

Girlie said...

Mark FW said...
I feel horrible when taking Vit D.

I become incapacitated and just sit all day with muscles flaring.

I won’t take it.

Do you know what your level is?

Do you get a lot in the spring and summer months?

Been tested twice. Both times level was 18.

Had a lot of sun prior to the second one.

In fact it was this reaction that led me to this site and ultimately my Lyme diagnosis.

Seems my reaction is not that unusual.
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