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Stabbing head pain....your opinions??

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Posted 10/25/2018 6:13 PM (GMT 0)
Three days after finishing Week 1 (cycle 3) of the persister protocol (Dapsone, Daraprim, Rifabutin, Ceftin) I was woken early morning hours with a stabbing pain behind my right ear - just above where the jaw bone ends.

The 'stabs' were every 20 seconds...not a dull ache... Debilitating.

24 hours later - they had lessened in severity...but were still there...same frequency.

Today - still happening.

I'm wondering if I should see a Doc? But what can a Dr. do?
Am I wrong assuming it is toxins....but three days later? Maybe it's possible with the long half-life of Daraprim being 96 hours and the Dapsone being 10-50 hours that it could be a delayed herx?

I'm hoping that since the severity has dropped...that it will eventually go away completely..and that is also a sign it's from toxins...

I delayed my Week 2 meds...by a couple days - started them today. (Not dapsone/daraprim)



Your thoughts/opinions welcomed.... SIGH
Posted 10/25/2018 6:15 PM (GMT 0)
Also wondering - is this what an ice-pick headaches are? I've read about them with bartonella.
But, not sure I could call this a headache...as it's intermittent...
Posted 10/25/2018 6:21 PM (GMT 0)
I have gotten this pain in that area. In my case it was the lymph nodes behind my ears flaring due to strong herx. I get it behind both ears but most especially behind my left ear, at its worst it feels like a knife stabbing pain. Probably a lot of toxins being processed from die-off... I'd put my money on delayed herx. The fact that the symptom is improving is a good sign imo.

I don't have a good guess on the ice-pick headache, I'd also think it's linked to the herx but not sure which infection.

I hope it keeps improving!
Posted 10/25/2018 6:33 PM (GMT 0)

sebreg said...
I have gotten this pain in that area. In my case it was the lymph nodes behind my ears flaring due to strong herx. I get it behind both ears but most especially behind my left ear, at its worst it feels like a knife stabbing pain. Probably a lot of toxins being processed from die-off... I'd put my money on delayed herx. The fact that the symptom is improving is a good sign imo.

I don't have a good guess on the ice-pick headache, I'd also think it's linked to the herx but not sure which infection.

I hope it keeps improving!

Did your's last several days? I'm on Day 3 now...I guess I need to be more patient....
Posted 10/25/2018 6:43 PM (GMT 0)
oh yes, mine have lasted a while before, can take quite a few days to settle back down. It's a brutal sensation especially when it lasts for days.

In your case, does it feel like the lymph nodes? that would be my guess, I often also get a pulsing, swollen sensation in those lymph nodes when I herx.
Posted 10/25/2018 6:45 PM (GMT 0)
If it's happening every 20 seconds or so that would led me to think spasm. It could be a muscle or tendon spasm caused from tension in the area due to inflammation or pain. Try a heating pad and then take your thumb under your jaw line all the way up almost to your ears and press to relieve the tension there.

Ice pick headaches are usually ones that feel like an ice pick is shoved in your eye, right at the bridge of your nose. At least that's been my experience. All headaches are truly miserable. I've found my heating pad to be the most help.
Posted 10/25/2018 6:49 PM (GMT 0)

sebreg said...
I have gotten this pain in that area. In my case it was the lymph nodes behind my ears flaring due to strong herx. I get it behind both ears but most especially behind my left ear, at its worst it feels like a knife stabbing pain. Probably a lot of toxins being processed from die-off... I'd put my money on delayed herx. The fact that the symptom is improving is a good sign imo.

I don't have a good guess on the ice-pick headache, I'd also think it's linked to the herx but not sure which infection.

I hope it keeps improving!


I thought at first lymph nodes...I don't/didn't feel any swelling there.
It moved - at first it was just behind the ear lobe. Next day it moved upward to above my ear...
Now, it seems to be back down again.
Posted 10/25/2018 6:51 PM (GMT 0)

jrpsf said...
If it's happening every 20 seconds or so that would led me to think spasm. It could be a muscle or tendon spasm caused from tension in the area due to inflammation or pain. Try a heating pad and then take your thumb under your jaw line all the way up almost to your ears and press to relieve the tension there.

Ice pick headaches are usually ones that feel like an ice pick is shoved in your eye, right at the bridge of your nose. At least that's been my experience. All headaches are truly miserable. I've found my heating pad to be the most help.

It feels 'nervy' not muscle. I have been pushing/presssing...rubbing...etc. Haven't tried heating pad.
I'm thinking maybe ice...as if it's nerves that may help... That did work for my shoulder blade nerve pain.

Okay - so not an ice pick headache...as it's definitely not in the front.
Posted 10/25/2018 6:52 PM (GMT 0)
Now that I think about it, when it got really bad (the stabbing pain) it was mainly in my lymph node but would also extend through my ear at times. It could be something different in your case if it doesn't feel like it involves the lymph nodes... either way, it's good if it seems to be improving as the days go by. I think those meds you are taking given your previous responses are triggering some strong herxes that are drawing out various types of symptoms...
Posted 10/25/2018 9:35 PM (GMT 0)

Girlie said...

jrpsf said...
If it's happening every 20 seconds or so that would led me to think spasm. It could be a muscle or tendon spasm caused from tension in the area due to inflammation or pain. Try a heating pad and then take your thumb under your jaw line all the way up almost to your ears and press to relieve the tension there.

Ice pick headaches are usually ones that feel like an ice pick is shoved in your eye, right at the bridge of your nose. At least that's been my experience. All headaches are truly miserable. I've found my heating pad to be the most help.

It feels 'nervy' not muscle. I have been pushing/presssing...rubbing...etc. Haven't tried heating pad.
I'm thinking maybe ice...as if it's nerves that may help... That did work for my shoulder blade nerve pain.

Okay - so not an ice pick headache...as it's definitely not in the front.

I get the same thing pretty often. Ice used to help but now hurts. I think it's connected to spasms and blood flow so heat helps a ton. Try both for 10 minutes while laying down and relaxing and see which helps.
If heat helps-I use the sunbeam shoulder heating pad. I can tuck one edge under my under arm and run it up my neck extending it up the side of my head. Makes a world of difference.
Posted 10/25/2018 9:44 PM (GMT 0)

jrpsf said...

Girlie said...

jrpsf said...
If it's happening every 20 seconds or so that would led me to think spasm. It could be a muscle or tendon spasm caused from tension in the area due to inflammation or pain. Try a heating pad and then take your thumb under your jaw line all the way up almost to your ears and press to relieve the tension there.

Ice pick headaches are usually ones that feel like an ice pick is shoved in your eye, right at the bridge of your nose. At least that's been my experience. All headaches are truly miserable. I've found my heating pad to be the most help.

It feels 'nervy' not muscle. I have been pushing/presssing...rubbing...etc. Haven't tried heating pad.
I'm thinking maybe ice...as if it's nerves that may help... That did work for my shoulder blade nerve pain.

Okay - so not an ice pick headache...as it's definitely not in the front.

I get the same thing pretty often. Ice used to help but now hurts. I think it's connected to spasms and blood flow so heat helps a ton. Try both for 10 minutes while laying down and relaxing and see which helps.
If heat helps-I use the sunbeam shoulder heating pad. I can tuck one edge under my under arm and run it up my neck extending it up the side of my head. Makes a world of difference.

It’s calmed down some - but I suspect it will ramp up this evening as most of my symptoms do..
I’ll get a heating pad ready to use - see if it helps.
Posted 10/25/2018 9:54 PM (GMT 0)
Have you called the clinic to ask about it? I hope it lets up soon.
Posted 10/25/2018 9:54 PM (GMT 0)
Do you have any Red Root or Danshen? Might be worth a try. What Buhner recommends for lymph nodes.

Ever try mixing a little baking soda with water? Stopped two herx headaches for me recently. I just used 1/2 tsp - 1 tsp in a tall glass of water.
Posted 10/25/2018 9:56 PM (GMT 0)

Dahlias said...
Have you called the clinic to ask about it? I hope it lets up soon.

No - I haven’t called them. If it doesn’t resolve in the next couple days - I’ll probably call them.

It has significantly improved though.
Posted 10/25/2018 10:03 PM (GMT 0)

WalkingbyFaith said...
Do you have any Red Root or Danshen? Might be worth a try. What Buhner recommends for lymph nodes.

Ever try mixing a little baking soda with water? Stopped two herx headaches for me recently. I just used 1/2 tsp - 1 tsp in a tall glass of water.

I missed your post. I don’t have red root or danshen.
I think I have some alka seltzer gold left - I will take that and see what happens.

Been taking Jernigan’s Neuro anti tox II CNS/PNS plus taking Epsom salt baths, act charcoal, apple cider vinegar , Quercetin.....lots of water
Posted 10/25/2018 10:06 PM (GMT 0)

Girlie said...

WalkingbyFaith said...
Do you have any Red Root or Danshen? Might be worth a try. What Buhner recommends for lymph nodes.

Ever try mixing a little baking soda with water? Stopped two herx headaches for me recently. I just used 1/2 tsp - 1 tsp in a tall glass of water.

I missed your post. I don’t have red root or danshen.
I think I have some alka seltzer gold left - I will take that and see what happens.

Been taking Jernigan’s Neuro anti tox II CNS/PNS plus taking Epsom salt baths, act charcoal, apple cider vinegar , Quercetin.....lots of water

For what it's worth, Alka-seltzer Gold never does much for me, but the baking soda really did. Not sure what made the difference.
Posted 10/25/2018 10:10 PM (GMT 0)

WalkingbyFaith said...

Girlie said...

WalkingbyFaith said...
Do you have any Red Root or Danshen? Might be worth a try. What Buhner recommends for lymph nodes.

Ever try mixing a little baking soda with water? Stopped two herx headaches for me recently. I just used 1/2 tsp - 1 tsp in a tall glass of water.

I missed your post. I don’t have red root or danshen.
I think I have some alka seltzer gold left - I will take that and see what happens.

Been taking Jernigan’s Neuro anti tox II CNS/PNS plus taking Epsom salt baths, act charcoal, apple cider vinegar , Quercetin.....lots of water

For what it's worth, Alka-seltzer Gold never does much for me, but the baking soda really did. Not sure what made the difference.

The ASG is baking soda plus a few other things
Posted 10/25/2018 10:30 PM (GMT 0)
Girlie,

Glad to hear your head pain is improving.

If you are bracing when having the pain, you could cause other muscles to tense up in the area.

Hope trying ice or heat will give you some relief.

Let us know how you are doing tomorrow.

Take care.
Posted 10/26/2018 12:54 AM (GMT 0)
I'm really curious if they've seen that as a herx symptom. I'm glad it's improving though.
Posted 10/26/2018 1:55 AM (GMT 0)

Dahlias said...
I'm really curious if they've seen that as a herx symptom. I'm glad it's improving though.

I should call and ask them...but not in the mood to do anything that takes any effort ...lol.
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