Horrible Virus on top of Lyme and Co

I think I'm just looking for some reassurance here. I have been really really sick with mast cell and lyme disease and Co infections and mold poisoning for about 4 years now. I caught my daughters virus on top of everything last Wednesday. Was in the hospital all day Thursday bc fever and heart rate were very high. Then my period hit and I still have a lingering cough. No more fever. However, the fatigue is absolutely horrible. Its the kind where you think you need the ER, but the ER can't do anything for you.

Have you all felt like this? I know I have before and it's so hard when you're in it. So sure you won't ever come back out of it.

Ps. We're not treating for lyme right now until we get into a safer environment...then we will begin treating the lyme again. My doc says my body is too weak right now and it will only backfire.

Thanks and love you guys
Leah

Yes my husband takes care of me. Thank God. And my mom and dad help with my little girl. I'm usually just skimming the ER all the time. Maybe a few days in there where I don't need it. I have been getting IV saline every other day for months now, but at hospital my heart rate was in 150s so they gave me alot more. Today is just that horrible fatigue where I can't get up. Like just sitting up and eating is such hard work. I'm Praying it's just the set back from the virus and lack of sleep so lyme is flaring. Only immune system booster I can take is Vitamin D and I am taking that.
My llmd said to ride it out.

Thank you for responding❤

Acute illness and stress suppresses T3, there could also be mitochondrial dysfunction. Liothyronine, carnitine fumurate or acetyl-l-carnitine, and CoQ10 treat those conditions. I think some LLMDs get too focused on the bugs and miss the complications that can develop.

Leah2013 said...
I sometimes have to go. I hate going lol. All they usually do is give me fluids and check my heart and lungs. Sometimes my sodium does drop and my adrenals sometimes give out. Do you all have the literally bed ridden fatigue some days? I feel like I forget sometimes I have a complex case with lyme and mold and I need to not try to push my body so much. I'm just so sick of being stuck in bed.

I def have mitochondrial dysfunction.

I've been fortunate that fatigue is not one of my symptoms.

Leah2013 said...
Girlie...that is awesome! This is like oh my goodness my body is going to stop fatigue. I know we all battle different horrible things, but I'm grateful you don't have to experience this on top of everything.

Well - while I don’t have fatigue - I have bad nerve pain -

Yeah I can relate to this, both currently and before with the ER thing.

Before I had really bad air hunger, like no matter how many breaths I would take it felt like my body was being starved or robbed of oxygen. So I went to ER, not wanting to because of expense and likelihood of poor treatment, they got my insurance mixed up, gave me a mask with the same meds as asthma rescue inhalers...then from that sent me a bill for 1500 USD that I had to contest to be waived (!)

I still don't know how to explain to people, doctors, disability claims representatives, that my cells' energy and oxygen was/is being robbed at the mitochondrial level by TBI and co-infection.

Also am currently battling an extreme virulent cough/flu, spending 12 hours in bed each day, coughing up some green nasties, lost my voice temporarily from the coughing fits... Cold/Flu is likely from visiting relatives and family, or seasonal influx of tourists where i live.

Couldn't tell if the aches were from normal everyday TBI & co-infection flare up or the flu cold taking up residency in my system also, as if it (the flu bug) was saying "hey perfect, this guy's immune system is already weakened, no real defenses, I'll just waltz right in!"

Anyway, it seems like I'm getting over it but the aches seem to linger (like my TBI n Co-infection is saying, hey this is my guy! get out of here, Cold or Flu! lol)