Biofilm

Megan H said...
Sorry for posting so much. I have so many questions. Is teasel root any good for busting biofilms? I really want to bring them out of hiding so I can get a cdc positive but I don’t know what would be best. Any advice is appreciated.

Just in recent years, the big guns for biofilm busters tend to be leaning towards the herbs and plants that have a sweetness too them, not all of them, but some of the top ones... Such as Stevia and Xylitol, there's numerous studies suggesting how taking sugar with anitibiotics makes the bacteria come out of hiding.
https://www.livescience.com/14124-sugar-improves-antibiotic-treatment-persistent-bacterial-infections.html

Now there's others saying they've had success with such as Lactoferrin(Dr. J), along with oregano oil by Dr. H, but I don't remember teasel root ever being mentioned. I highly recommend using what the top LLMDs are using, because there were plenty of assumptions in the past that enzyme supplements like serrapeptase and nattokinase were big biofilm busters in the past, but now they're barely talked about on the forums or rarely used by most patients these days. Go with what's being used!!! As we're starting to learn, what works in a petri dish may not translate over in the body, meaning get through the gut and into the bloodstream... Highly doubtful any of those enzymes reach the bloodstream, let alone the tissue where spirochetes dig in deep. And it was always said you should take enzymes on an empty stomach, what's the probability of most patients doing that? When taking enzymes on an empty stomach will probably make you more hungry.

Neither of the enzyme supplements did anything for me, Stevia and Xylitol was one of the first times I felt the feeling of doing damage to biofilms, I felt a rush of energy, clear headedness, and major herxing. But here's the thing, most LLMDs suggest modern day biofilm busters should be paired up with persister cell antibiotics, if you don't do pharmaceutical, read the new article that sheds light on what essential herbs erradicate the persister cells and you might want to try pairing something up like cinnamon bark with xyltiol or stevia.

Post Edited (Charlie55) : 12/9/2018 4:17:40 PM (GMT-7)

Girlie said...
I think I’ve read on this forum that Cistus Tea is good for dissolving biofilms.

I take xylitol and lactoferrin - my LLMD has see results with that duo.

https://klinghardtinstitute.com/lyme-disease/dr-klinghardt-biological-lyme-protocol/
https://www.healingwell.com/community/default.aspx?f=30&m=2546544

Cistus Tea tends to be from the Dr. K side of treatment, which some of his treatments tend to be very controversial without major studies backing them, but here is a study on Cistus Tea and biofilms https://www.ncbi.nlm.nih.gov/pubmed/18468764

This study was initially on traditional bacterial biofilms, not spirochete biofilms...

Through my own experience dealing with this disease for almost a decade now, give a herb a try, if you don't feel anything like a herx in the next few days, drop it, then keep testing and search for a protocol that works for you. Everybody's body is different, along with the coinfections and strain of borrelia you might have contracted. But you should pair a biofilm buster with a persister cell antibiotic or another biofilm buster/round body form antibiotic like Flagyl/Tindamax or you may not feel anything....

Personally I think Dr. K bases a lot of his treatment protocols on his own theories, and not enough on studies and science related to Lyme Disease. I wonder if that guy has adapted to using Stevia or any of the essential oils revealed to kill of borrelia persister cells through the John Hopkins study, or if he's still in the same method of using just parasites protocols and blocking off electromagnetic radiation by covering your home in EMF shielding paint? I think there's even stubbornness coming from the alternative side of treatment not willing to adapt to recent findings.... Funny thing is, some of these other alternative camps say Stevia doesn't work on biofilms, interesting, considering most of them use herbs throughout the years...
http://www.klinghardtacademy.com/images/stories/event/emf_products_%26_recipe_klinghardts_2013_10.pdf

Again go with what's being used by the top LLMDs and backed by recent Lyme studies... This is the group that has been leading the game in Chronic Lyme since the beginning!

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It does seem like Dr. has adapted using Sweet Stevie, some brand stevia I hadn't heard of in the UK... Wonder who owns kiscience.com?

https://klinghardtinstitute.com/lyme-disease/dr-klinghardt-biological-lyme-protocol/
Some of those other supplements he's mentioned, I haven't heard of being used on biofilms... Hyaluronic Acid?

Ummm, yeah, highly doubtful!

Dr. K said...
Hyaluronic Acid teases microbes out of protected hiding places; nutrient for joints and connective tissue. The Ki-Science product has the exact Dalton molecular size for complete sublingual uptake. Take 3

Ki Science? So this means it's backed by science because the company has science in the title? Bit manipulative?

But hey, I like the dude because he thinks out of the box and he has been right on some of the antiparasitic drugs working on Chronic Lyme, but some of the stuff he uses is wishy washy, be aware of that. I'm always skeptic of a Doctor that pushes his own supplement line, because right off the bat he has conflicts of interest what works and what doesn't due to financial interest. Remember, that's what corrupted the CDC, it can corrupt any human being on the planet!

I'll second Dr. H, how I've learned he's promoting Cowden's Nutramedix overpriced supplements, the SweatLeaf Whole Leaf brand of Stevia for $10 will work just find, that's what the study was originally based on by Dr. Sapi. And that's another thing, don't get sucked in to having to buy top dollar supplements, research a good concentrated brand or product and you'll be fine! I think Lyme patients have been getting taken for for a long time with the whole TOA free Samento conjecture, that was being repeated for a long time until I think Stephen Buhner stepped in and said traditional Cats Claw will work just fine. Always interesting how fads come and go within the Lyme community... But hey, we're all looking for a new protocol to try aren't we, lol....

Post Edited (Charlie55) : 12/9/2018 5:04:44 PM (GMT-7)

Girlie said...
Charlie - the TOA Cat's Claw is only being pushed by Cowden, right?

Far as I know, correct me if I'm wrong, I mean I know at one point Dr. H talked about the benefits of prima una de gato... He might of mentioned using toa free cats claw... But you don't hear him bringing up Cats Claw quite often anymore do you? Or considering the popularity on the lyme forums anymore? Makes me wonder if this product was ever that effective against lyme? I mean I know some say they herx on Cats Claw, along with the Dr. Sapi's study on Samento and Banderol in vitro. But the hype seemed to have faded with the Cats Claw herb/supplement, by the way never did anything for me, at least from what I feel... Again, know everyone's different, just don't see it talked about much by LLMDs or patients anymore...

What would be worth trying is an essential oils form of Cats Claw, anyone carry that, probably not? I noticed a big difference in trying traditional oregano oil vs essential oil oregano oil, but again, gotta be careful digesting such a concentrated form due to toxicity...

Again, go with what's trending and working, has science backed up by it! You start trying all types of products, before you know it you'll be bankrupt, if ya got money to blow and you're rich, go for it!!! Everyone should realize you're in it for the long haul, using what works and is reasonably price... Even if that means risking using TOA included cats claw... lol

Post Edited (Charlie55) : 12/9/2018 5:18:55 PM (GMT-7)

Megan H said...
Thankyou for your replies! I am definitely not rich lol which is why I really want to find something that works ASAP. Plus I really need to get a positive bc I am terribly afraid I might have passed it to my children in utero as they are all under 6. That’s probably the scariest part to me is that I gave it to my babies and No one will help us without a cdc positive.

Megan - even with a CDC positive you most likely won’t get enough treatment from a regular doc or even an ID Dr.
Plus - it’s doubtful that they’d look into it being passed to your kids in uterine.

Megan H said...
So what do I do for them? I’m going to have a western blot drawn on them all but will they need to go to LLMD doctor too? Insurances won’t pay for LLMDs right?

If you want lab testing done, you can go order it from health-tests-direct.com or anylabtestnow.com

If you want antibiotics, you can go order it from InhousePharmacy or AllDayChemist.

No one is stopping you from doing this.

Megan H said...
So what do I do for them? I’m going to have a western blot drawn on them all but will they need to go to LLMD doctor too? Insurances won’t pay for LLMDs right?

If they need treatment then they should also see a LL Dr.
Most LL Docs don’t take insurance from what I’ve read.

Are you getting them tested with Igenex lab?

My oldest has unexplained fevers and my second child’s hair is falling out. So that’s why I’m worried they might have something. How do I get them Igenex tested.

Is the Igenex the same as the regular western blot? I will definitely will ask. What tests check for coinfections?

you should see a LLMD or LLND as soon as possible because all these types of questions can be answered in 5 minutes, if you haven't seen one.

I typed in "LLND" (because LLMD is banned in Oregon) and "<Largest City>" which was portland into google and called the first one. This ended up being the best thing for me to do.

bluelyme said...

Megan H said...
Thankyou for your replies! I am definitely not rich lol which is why I really want to find something that works ASAP. Plus I really need to get a positive bc I am terribly afraid I might have passed it to my children in utero as they are all under 6. That’s probably the scariest part to me is that I gave it to my babies and No one will help us without a cdc positive.

even with cdc pos test no one will treat children for any more than 30 days of monotherapy . Dr jones was the only pedatric llmd. Breaking biofilm without sufficient killer on board may increase symptoms and the test is a immune response ...

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Just to clarify - there are llmd’s now who treat children. (Besides Dr J)

Megan H said...
Unfortunately I live no where near any LLMD doctors. I have 3 children. 2 in school and I live no where near family as My husband was in the military and we live far from any family. I don’t believe in my kids missing school so I don’t have many options. Which is why I am trying to gain all the knowledge that I can from people in this support group.

I understand you not wanting your kids to miss school - but if missing a day or two is the only option for them to get treatment.....
you need to consider it.

Megan H said...
I know.😢

Megan - I know it’s overwhelming - there’s so much for you to think about... just take it one day at a time.

Come here to vent and get support - keep reading posts - feel free to email me, too...