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Can’t tolerate any treatments :(

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Posted 12/25/2018 4:53 PM (GMT 0)
Hi,

Haven’t posted here in a long time, forgot my other username. But long story short, I have been ill for going on six years now. about 2-3 years in, I was feeling 90% better for a long stretch of time, until I began plummeting about a year ago after not treating my body so well (stupid, I know).

At this point, my sensitivity to treatments is at an all time high. Bartonella seems to be my biggest issue, as I have lesions on my skin and pretty consistent depression/anxiety. If I try to take more than 100mg of Doxy or 150Mg of rifampin every other day, the mental symptoms become so intense it’s hard to work. The discomfort is hard to endure.

I’ve tried some herbs (Cowden, Buhner) and the sensitivities are just as pronounced. Has anyone found a way to deal with their sensitivities so they can tolerate the treatment they need?

Thanks and Merry Christmas!
Posted 12/25/2018 5:19 PM (GMT 0)
Hi Crosscountry89, Merry Christmas!

May want to look into MCAS (mast cell activation syndrome). It affects quite a few lyme/coinfections patients to some degree. Lonnie Marcum wrote a good article on it a little while back: https://www.lymedisease.org/lyme-sci-mcas-agony/

You could experiment with both natural and or over the counter antihistamines. I've found things like allegra and zyrtec helpful. The herxes used to be crazy, but I find the antihistamines help make them more manageable. My guess is some of us have immune hypersensitivity to the pathogen toxins/die-off which makes treatment somewhat trickier.
Posted 12/25/2018 5:36 PM (GMT 0)
Histamine reactions and intolerance was at its worst when i cleared my biome then parasites took over ...all gut particles where literally leaking .
I did a real test not with gp or gi duc but a real test. ..then treated accordingly. ..vsl3 and homemade kombucha helped too. Take a demulcient like slippery elm and see if symptoms allieviate momentarily.
On treating bart ., you must have the liver capacity and function to handle tx. And there must be "room for treatment toxin wise .... are you methylating ,do u detox in any way?
Maybe consider plasma rife as a treatment modality
Posted 12/25/2018 5:54 PM (GMT 0)

sebreg said...
Hi Crosscountry89, Merry Christmas!

May want to look into MCAS (mast cell activation syndrome). It affects quite a few lyme/coinfections patients to some degree. Lonnie Marcum wrote a good article on it a little while back: https://www.lymedisease.org/lyme-sci-mcas-agony/

You could experiment with both natural and or over the counter antihistamines. I've found things like allegra and zyrtec helpful. The herxes used to be crazy, but I find the antihistamines help make them more manageable. My guess is some of us have immune hypersensitivity to the pathogen toxins/die-off which makes treatment somewhat trickier.

Hi, thank you for the response. I tried anti histamines for MCA and didn’t really notice anything positive or negative. They didn’t really seem to improve my sensitivities, unfortunately, but I’ll check out the article!
Posted 12/25/2018 6:01 PM (GMT 0)

bluelyme said...
Histamine reactions and intolerance was at its worst when i cleared my biome then parasites took over ...all gut particles where literally leaking .
I did a real test not with gp or gi duc but a real test. ..then treated accordingly. ..vsl3 and homemade kombucha helped too. Take a demulcient like slippery elm and see if symptoms allieviate momentarily.
On treating bart ., you must have the liver capacity and function to handle tx. And there must be "room for treatment toxin wise .... are you methylating ,do u detox in any way?
Maybe consider plasma rife as a treatment modality

I take magnesium, exercise/sauna, and take milk thistle but this doesn’t appear to be enough. I’ve taken abx for about 4-5 years total (often low dose, but still) so I’m sure I have leaky gut. I have had slippery elm recommended to me several times, I’ll check it out! Thanks.
Posted 12/25/2018 6:36 PM (GMT 0)

sandyfeet said...
Have you tried just taking some of the supportive herbs from Buhner without any of the heavy-hitting ones to see if you can help stabilize things first? Maybe just l-arginine, magnesium, milk thistle, hawthorn, maybe cordyceps or an adaptogen next? And focus heavily on the detoxing side of things at the same time?

I hope you're able to figure out what is causing the increased sensitivity this time round. Were you highly sensitive to treatments the first time you treated?

I haven’t tried all of those, but I’ll research them each individually and try to work them in.

I was always sensitive to “recommended” doses for treatment protocols, but my sensitivity seems to have gotten worse, as now I struggle with doses that others would consider too low to treat the bugs.
Posted 12/25/2018 7:20 PM (GMT 0)
I'm having the same problem with bart, but the herx is in my joints. Right now I'm holding ground on 100 mg minocycline, sida acuta, houttuynia, knotweed, andrographis, cat's claw, clove & oregano oil. The clove worked for my depression when used in combination with the other treatments.
Posted 12/27/2018 9:21 PM (GMT 0)

sebreg said...
Hi Crosscountry89, Merry Christmas!

May want to look into MCAS (mast cell activation syndrome). ... My guess is some of us have immune hypersensitivity to the pathogen toxins/die-off which makes treatment somewhat trickier.

indeed. i found levocetirizine (xyzal) is very useful to me. when i have some bad days it takes most of symptoms away quickly and i can work. in my case itchy eyes/skin, headaches. i take xyzal and loads of vitamin C which also is good for stabilizing mast cells...
Posted 12/28/2018 12:28 AM (GMT 0)
Have you treated parasite?
Posted 12/29/2018 2:09 AM (GMT 0)
My depression anxiety go to herbs are
holy basi, ashwaganda, rhodiola.
Posted 12/30/2018 5:07 PM (GMT 0)

mpost said...

sebreg said...
Hi Crosscountry89, Merry Christmas!

May want to look into MCAS (mast cell activation syndrome). ... My guess is some of us have immune hypersensitivity to the pathogen toxins/die-off which makes treatment somewhat trickier.

indeed. i found levocetirizine (xyzal) is very useful to me. when i have some bad days it takes most of symptoms away quickly and i can work. in my case itchy eyes/skin, headaches. i take xyzal and loads of vitamin C which also is good for stabilizing mast cells...

I will check this out, thank you!
Posted 12/30/2018 5:10 PM (GMT 0)

magoo2 said...
Have you treated parasite?

I have not. I imagine I would react as poorly as I do to all other treatments but I'm open to this.
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