HealingWell
Search Close Search
☰

Going Forward- What worked for you?!

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/27/2018 12:30 AM (GMT 0)
Hello, I don't post much, but I have learned a lot reading on here in the last year, so thank you to all!

I have stagnated in my treatment and am looking for advice, ready to start trying some new things.

I was diagnosed with Babesiosis + Duncani and Microti according to Igenex a year and a half ago, and quickly went on 8 months of a changing cocktail of oral abx. I stopped those abx, with limited progress and much sickness, and have been trying some combination of Buhner protocol for the last 4 months, and while I feel a tad better, the improvement has not been substantial. If anyone has advice on treatments, herbs, activities etc. which worked for them, I would really appreciate the advice.

all the best and merry Christmas!
Posted 12/27/2018 2:31 AM (GMT 0)
4 months is not very long on the Buhner protocol, though it may seem like it. Some people don’t experience major relief until a year or more on it. Are you detoxing? Eating lots of veggies, high quality meat and minimizing sugar, dairy and gluten. Without a good diet and consistent detoxing you may not see huge strides in improvement.
Best of luck to you on your healing journey!
Posted 12/27/2018 5:34 AM (GMT 0)
I agree four months is really nothing. All I can suggest is there are plenty of protocols out there if Buhner doesn't work, like Byron White, Cowden, Zhang, to name a few. Also are you treating your babesia first? Because there is some argument as to whether co-infections or Lyme should be treated first and you might find changing your protocol to reflect that will affect your progress. I assume you have Lyme too if you have babesia.

I also agree with Sayonara, that detoxing is absolutely number one important as well as cutting out all potentially inflammatory foods, or at the very least sugar and maybe gluten if you want to be on the safe side.
Posted 12/27/2018 12:46 PM (GMT 0)
Hmm, if you've stalled a bit on the Buhner herbs you could try rotating in some other herbs. Personally I like Zhang brand allicin (I also like Pure Encapsulations Garliactive), artemisiae, houttuynia (this one is for bart), nauclea latifolia, neem. A-bab is effective for quite a few people but can be strong. Oil of oregano capsules are nice because they are pretty broad spectrum... Lots of options out there, can take trial and error and strategic rotations whenever we stall with treatment.

I've had to throw the kitchen sink at my babesia to keep knocking it back. Has taken some time. It's different for everyone, but babesia can be pretty tenacious.

And I agree with the other comments, diet is important as is detoxing. Maybe you are already doing those things, but always good to mention them smile
Posted 12/28/2018 11:58 PM (GMT 0)
Hey all, thanks so much for the great responses. In terms of detoxing, I steam room and hot baths regularly, try to exercise, cut sugar, and have reduced gluten and dairy (although I really haven't any noticed any dairy or gluten sensitivity).

I'm not specifically targeting the Babesia, just doing the herbs recommended in "Healing Lyme", is there a specific Babesia protocol you would recommend? I am not sure that I have lyme, the Igenex test didn't show it, but seems like it is a hard thing to spot and testing somewhat inaccurate.

Awesome, thank you for those herb + nutrient recommendations, I will check them all out. I have been making tea with houttuynia, as I ordered the bulk dried plant, how have you used it Sebreg?
Posted 12/29/2018 1:57 AM (GMT 0)
I think you should post what you are doing and the dosages so we can get an idea of where you are in the protocol. Also if any symptoms are particularly concerning there are herbs to target.

Because dosages are a big factor, tailored to each individuals constitution... and the protocol for multiple infections can be extensive or tailored to be less extensive and still effective. Target shooting symptoms while doing a general infection protocol has helped me with in the past.

Post Edited (Lightlife) : 12/28/2018 7:01:19 PM (GMT-7)

Posted 12/29/2018 5:52 AM (GMT 0)
You really should treat babesia first and for as long as it takes. It can prevent progress against your symptoms like it does for too many. I made almost no progress for 2 years until I treated it long and hard enough. Took over 13 consecutive months to beat it into the ground. You have two strains and the nasty one duncani so could prob take you just as long.

Might want to try the classic regimen of mepron (or malarone) and zithromax or a better choice in opinion biaxin. You can add another abx like omnicef to hit lyme. This is the core protocol Dr. J and many other prominent LLMD's use.

Herbals to me are more hit or miss given its harder to figure out what you should be taking, how much or each and for how long unless you're working with a master herbalist in Buhner herbs or someone equivalent.
Posted 12/29/2018 6:01 PM (GMT 0)
Here are the herbs/supplements I am taking in total dosages per day:
Lactoferrin 500mg, Curcumin 3000mg, flaxseed/fish oil 2500mg, Eleuthero 1000mg, Dan Shen 20 drops, Huang Qin 20 drops, Burbur Pinella 10 drops, Cordyceps 7g, Spirulina 3g, Xylitol 3g, Japanese Knotweed 4.5g, Cats Claw 9g. And I also take a teaspoon of Samasara brand's Tick Recovery ( knotweed, cats claw, sida acuta, houttuynia cordata, stevia) and make tea with gou teng and houttuynia. The only very noticeable response I have is that the Gou Teng quickly and dramatically helps my mental clarity and outlook. Despite these herbs my main symptoms of pretty crushing fatigue and mental cloudiness seem to stay the same.

Hi Rikky, yes I was on oral malarone and omnicef as well as a few others but didn't notice a difference over 8 months except feeling super sick. Still any advice appreciated.
✚ New Topic ✚ Reply