How do you treat your Babesiosis?

So, I've been only been dipping into this forum here and there over the past few weeks. It's been a bit weird in all honesty - my wife has been feeling better than she has done in *years*. Her daily headaches have dissipated, she has a lot more energy and her other symptoms have been next to non-existent. She's reached her target dosage of the A-BAB, but just before she started feeling better, we had also introduced allicin, Stevia and Essaic tea.

Now, don't get me wrong, we're not counting our chickens; I think we just expected her alleviated symptoms to be short-lived. If you look back in this thread, in our lack of understanding of how Lyme and the cos work, we initially thought my wife was suffering solely with Babesiosis from her initial diagnosis, before deciding the likelihood is that Borrelia and Bartonella could easily have just been false negatives. Apart from the later additions of allicin, Stevia and Essaic though, we've pretty much stuck to the same protocol that was prescribed when we first started treating it all.

My question has anybody else experienced such a quick positive response? We are absolutely going to be continuing this course of treatment for the foreseeable; but I'm thinking that it will soon have to be shifted more toward treatment of Borrelia and Bart. We've been 100% herbal thus far and plan to continue doing so. It's almost like we want a herx to come along just to prove everything's working correctly. It feels too good to be true that her body's telling her at this moment that all's well!!

Any input greatly appreciated as usual. Thanks.

C

WalkingbyFaith,

Thank you for your kind words and advice. That whac-a-mole reference is great! We're more than prepared to move onto Bart and Borrelia treatment without a solid diagnosis, so maybe after Christmas when we've had over 4 months, like you say.

I'm keeping my fingers crossed, and am determined for us not to take our foot off the pedal. Thanks for taking the time to reply

C

Szabo246 said...
Which clinic are you both going to in the U.K., I was going to one in Hemel Hempstead but feel like I’m not really getting much from them

I think I know the one you mean. Shall we take offline? I can email you?

Hello,

Happy Holidays! I hope everyone is having a restful break.

I'm just writing today as my wife and are starting to think of next steps. She has been on Byron White A-BAB now for over 4 months, and isn't far off finishing her 3rd bottle of the stuff. She's been feeling miles better with only occasional symptoms for the past couple of months. To recap, she was diagnosed with Babesiosis but had negatives on the other two infections, so we targeted Babesia solely for the first period. Now we'd like to start addressing the other two, assuming she does have these as well.

I've read bits here and there on the forum about which of the infections to target next. What is everybody's experience? We're thinking of sticking to the Byron White formulas, of which there is an A-BART, and I believe the A-L Complex may be the Borrelia one, but I'm not sure? Thanks

Post Edited (ceebs13) : 12/26/2018 5:07:36 AM (GMT-7)

sebreg said...
Happy holidays and congrats! I'm so happy to hear that she's been doing so much better and that A-bab has proven helpful. I've found it to be quite effective as well.

This is what I could find on A-L complex, seems like it has a wide variety of action, but sounds like it has a good focus on borrelia: https://www.gordonmedical.com/byron-white-formulas-a-l-complex/

It can be a bit of trial and error, sometimes you try targeting an infection like bart to see if you respond. If there is no herx or improvement after a while then best to move on. Both A-bart and A-L seem like good things to try, especially given how well she has done with the byron white babesia product. Is your wife going to continue taking A-bab for a while longer?

Hey Sebreg,

Apologies for the delay in replying and thanks for your kind words. Thanks for sharing the link too.

We've got a trip away in a couple of weeks for a few nights, so I'm hoping the A-BAB lasts at least until then, as the plan is to start taking the new meds when we return. I think the A-L Complex looks like a good next move. If it can be timed so she's reducing the A-BAB dosage at the same time as starting the A-L, I think that would be ideal - but we'll see. Just need to convince the LLMD to prescribe it though, as she only really acknowledged the Babesiosis, and not the potential that she could have the other two infections too.

How long have you been on A-BAB? How did you respond to first starting with it, and what dosage are you on currently?

Wow, 12 twice a day is pretty hefty. My wife worked her way up to 15 once a day, and she's stuck to that. She went up to 12 within the first few weeks of starting it and was hit real hard with a herx, so after a week off, had to start from the bottom up again. It is potent stuff. Good to hear you've tolerated it well. What do you mean by 'empiric provocation'?

Your Babesiosis symptoms sound pretty similar to what my wife suffers (I daren't say 'suffered'!) with. I think the one med she has introduced which has really kept her symptoms at bay is Essaic tea. Not sure if you've ever tried it, but after a week of not taking it, her symptoms ever so gradually came creeping back, so it seems to be quite effective.

I am very interested in such a link! However, I'm UK-based. Are you US?

Ah ok, I'm with you, and definitely agree. However, I would say that the antimicrobial properties in something like A-BAB are so multi-functional that herxing on it wouldn't necessarily mean you have Babesiosis.

Essaic is a blood purifier, so yes, ultimately primarily a detoxer.

I haven't been sent anything, but don't have my email on my profile, so shall I email you? We've managed to arrange a very short (and thus cheaper!) follow-up with our LLMD next week either way, so hopefully she'll be open to prescribing my wife the other Byron White products and we can buy from our usual place.