CDC recommends IV?

Lostcoast said...
The CDC recommends IV antibiotics for late stage Lyme with neurological and or cardiac symptoms. It's on the website. Is this new?
I was diagnosed in 2016. With neurological and cardiac symptoms. I got a month of doxy and Zithro from my local doc, then referred to a Lyme specialist who put me on oral antibiotics for over a year. Still sick though.
Why didn't I get put on I.V.? Don't local "mainstream" docs follow CDC guidelines. I'm not sure if IV would have better results or not, but I'd like the option to try it. Maybe these guidelines are new?
Also my LLMD said breathlessness is a Babesia symptom. But CDC has breathlessness listed as a neuro Lyme symptoms. Maybe all that Mepron was a waste of time. Maybe I need the I.V. drugs that are known to be the best at crossing the blood brain barrier?

Yes, they do....last I checked.

But, IIRC, it's only for Rocephin for 1 month.

I think the CDC says to start treatment before a postitive test too. I pleaded with my Dr's and showed them but they wouldn't listen. Typical it was in my head and I had anxiety they said. I have cardiac symptoms but my insurance would not pay for when I finally got a llmd to try the IV. IMHO the mainstream Drs are more of a problem then the CDC

Lostcoast said...
The CDC recommends IV antibiotics for late stage Lyme with neurological and or cardiac symptoms. It's on the website. Is this new?
I was diagnosed in 2016. With neurological and cardiac symptoms. I got a month of doxy and Zithro from my local doc, then referred to a Lyme specialist who put me on oral antibiotics for over a year. Still sick though.
Why didn't I get put on I.V.? Don't local "mainstream" docs follow CDC guidelines. I'm not sure if IV would have better results or not, but I'd like the option to try it. Maybe these guidelines are new?
Also my LLMD said breathlessness is a Babesia symptom. But CDC has breathlessness listed as a neuro Lyme symptoms. Maybe all that Mepron was a waste of time. Maybe I need the I.V. drugs that are known to be the best at crossing the blood brain barrier?

This is what I read on the CDC website:
"People with certain neurological or cardiac forms of illness may require intravenous treatment with antibiotics such as ceftriaxone or penicillin."

"may" require......

LLMD said extended oral is as effective as I.V. and I.V. has more risk and more cost.
But I'd like to know why the local doc didn't talk about IV before sending me to the LLMD. Couldn't he have sent me to a local infectious disease doc to try the recommended IV, maybe even get insurance to help with it. Like maybe we should try all available options before going into the "sign your life away, cash only" LLMDs. I mean if the CDC says it's a legit treatment...why not try it first?

Like most things the CDC says, take it with a grain of salt.

I did Mepron, cryptolepis, artemsia,Clindamycin, and Alinia for Babesia. For about six months. I feel like we tried to fight Babesia really hard. But no improvements.

But I never had the Hallmark fever, sweats, and chills assosiated with Babesia. My main sysmptom indicating Babesia was air hunger, which now I've learned may be from borrelia. I did test positive for Babesia but I have lived my whole life in the woods. I've had hundreds of tick bites in my life so I'm sure my immune system has seen all the common tick diseases and created the antibibodies for them.
I'm really starting to think the Babesia treatment was a mistake. Now that I know air hunger can be Lyme too, all my symptoms point toward borrelia in the brain. And all of the drugs I've taken are know to be weak at crossing the blood brain barrier....except for the minocycline....which is good at penetrating the brain...and caused me the biggest herx, and most noticable improvements.

Maybe. I'm just confused why I would go looking for other problems before addressing the neurological Lyme as best I can first. My symptoms are all well known neuro Lyme symptoms. Except the air hunger didn't fit ...or so we thought...but turns out that does too.
What's the best way to kill borrelia in the brain? I.V.? or maybe an oral with good penetration like Mino for extended times?
Why did I get doxy and Zithro like I was an acute case when I had unbearable pressure head aches, confusion and brain fog, extreme fatigue, muscle and joint pain, twitching, depersonalization....late stage neuro symptoms.