Crossroads..decisions to make..

If you are not making progress, I wouldn't stop ABX. Maybe you just need to tweek your current protocol, or change it up drastically and focus on another co-infection for awhile. What else are you taking with the Rifabutin? and are you still taking malarome? I either focused on Bart and Lyme, or Babs and Lyme at any given time. But I never tried to double up and hit Bart and Babs at the same time.

tickbite666 said...
If you are not making progress, I wouldn't stop ABX. Maybe you just need to tweek your current protocol, or change it up drastically and focus on another co-infection for awhile. What else are you taking with the Rifabutin? and are you still taking malarome? I either focused on Bart and Lyme, or Babs and Lyme at any given time. But I never tried to double up and hit Bart and Babs at the same time.

I am still taking rifabutin with malarone and biaxin, yes. I did consider switching the biaxin to minocycline but my doc opted not to do that.. forgot why. I have Bart and babs, no lyme. Thank you for the advice

How the heck does your dr know you don’t have lyme??

Try dapsone with rifabutin and biaxin. It'll hit the persisters, bart, biofilm, some parasites, and lyme if you got it.

Try adding ACS 200 silver. When I was on my first bart protocol it give me the most intense herx I have ever experienced.

Ask to get your atovaquone levels tested (quest or labcorp) since rifabutin will make malarone less effective. Make sure it is in a good range.

Do you know how many of us did not see a tick bite or signs of a tick bite - just guessing Id day at least 50%

I’m one who had no signs of a bite.

Did you test for Lyme? And if so was it with Igenex and were all bands negative?

The 3 week cycles thing is interesting. That sounds like it could be the lyme flare cycle. Came across this other patient's story:

"Also, I'm not sure if you're aware of this, but the flare ups tend to come in cycles. My cycle is about every 4 weeks now. I'll feel good for 3 weeks, then feel like I'm coming down with something. And get very tired, and easily overwhelmed. And sometimes moody.

Then it lifts, and I'm great for 3 weeks until the next cycle starts. LLMD's tend to treat until 2 months beyond the end of ANY symptoms. Over time, the severity of sx decrease, until (in theory, I haven't reached this point yet to know for sure) they're simply gone.

Then the final 2 months is sort of for good measure, in case any little spirochete found a hiding place that hadn't been found yet by the abx (I'm taking a LOT of liberties here with the analogy, but hopefully you get what I'm saying)."

Might be worth rotating meds, especially if you feel you have plateaued but have continuing symptoms. Maybe with a stronger pulse around the time you get the flares? (this was Burrascano's strategy in regards to hitting lyme). Have you ever taken minocycline? that could be a good one, combo'd with a few other things... You been on the rifabutin and biaxin for a while now? it'd be interesting to see if you flare to minocycline. Flagyl/tinidazole could be other meds to explore. Bactrim?

Hi xpeetzax like others said I’d give Mino a try. Within a week of taking the Mino I felt a lot better. It helped my inflammation a lot. I’m on month five of mino, flagyl and Zithromax. I also felt a lot better after adding in LDN. Maybe ask your doctor if that’s a possibility for you.
I too don’t remember being bite by a tick. I always get tons of mosquito bites but no ticks.
Let’s try to fight the rest of this battle!!

Post Edited (HeartsinPain) : 2/28/2019 9:28:36 AM (GMT-7)

Yup it is!! I’d for sure ask your doctor about switching to mino. Yes we did so glad to see you doing a bit better as well!