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HIV Cure-Hope for Lyme Cure?

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Posted 3/5/2019 4:00 PM (GMT 0)
I know they are different beasts, but I just read that 2 folks with HIV have been cured with bone marrow stem cell transplants. If only funds could be used towards finding a Lyme cure too, but it still feels like progress.

https://www.usatoday.com/story/news/health/2019/03/05/hiv-cure-london-patient-aids-treatment/3063749002/
Posted 3/5/2019 4:31 PM (GMT 0)
We can cure aids but not lyme jesus christ. Why is lyme the only illness that is common that gets no funding or research?

Post Edited By Moderator (Girlie) : 3/5/2019 10:20:56 PM (GMT-7)

Posted 3/5/2019 7:10 PM (GMT 0)
This was just on the radio right now lol. It looks like it was an unintentional cure. They said the operation is very serious and not an option for most people. Apparently the guy was dying of cancer and got the operation done.
Posted 3/5/2019 7:31 PM (GMT 0)
I don't know, but it seems like Stem Cells are the way to go.
Posted 3/5/2019 8:02 PM (GMT 0)
I agree that Lyme deserves far more research and funding, and that bigger-picture issues that contribute to chronic Lyme - like climate change, and environmental toxins, and accessible and knowledgeable health care - must be addressed. Ditto for chronic fatigue syndrome/myalgic encephalomyelitis and other disabling chronic conditions that are neglected despite being common.

Post Edited (saraeli) : 3/6/2019 7:38:23 AM (GMT-7)

Posted 3/5/2019 8:27 PM (GMT 0)
They really only cure diseases (or try too) that are easy to test positive for and / or are very deadly.

MS is another good example, which "they" still cant agree on what it is. Lupus too, its a killer, but no real good test for it, its list of autoimmune symptoms.

To make lyme more confusing, what you feel is how your immune system is reacting...or not reacting and letting it get out of hand. That is why there are many (in the timber industry) who easily test positive but are not ill with symptoms - their immune system works. Many in that industry are routinely tested.
Posted 3/5/2019 8:52 PM (GMT 0)
Great point, Astroman. This is a complex illness, much more complex than the kill-all-the-bacteria perspective of western medicine is able to approach effectively. There is much work to be done before we'll really understand everything it entails and how to fight in in a replicable way from individual to individual.
Posted 3/5/2019 9:38 PM (GMT 0)
The test for lupus is an ANA test as well as the butterfly rash typically. There is a checklist of 11 symptoms and most people need 4 to qualify. There is overlap but ultimately lupus is different in that it is autoimmune hence the ANA
Posted 3/6/2019 1:29 AM (GMT 0)
The point of the original post by CatLady should be the focus and what is needed for those stuck in the "world of Lyme." And from researching about stem cell, it seems to be the best hope, not only for Lyme, but so many other disease and conditions.

Same can be said for chronic kidney disease. It is estimated more than 30 million people have it, but still no cure. Stem cell seems to be the best hope there, from all I have read. Same, in my humble opinion, for Lyme. Problem with Lyme, and most everyone who has it understands that it is hard for others to understand because there are no outward, physical signs.

People know with Lyme are dizzy, tired, in pain, have heart problems, losing body fat and collagen, etc... But for those who don't have it, you're just a hypochondriac. With cancer there can be chemo. Kidney disease there can be dialysis. With Lyme.... you are lazy or crazy. Just a few examples.
Posted 3/6/2019 3:46 AM (GMT 0)

jb1994 said...
The test for lupus is an ANA test as well as the butterfly rash typically. There is a checklist of 11 symptoms and most people need 4 to qualify. There is overlap but ultimately lupus is different in that it is autoimmune hence the ANA

Unfortunately, Its not that easy, as a person with autoimmune and ANA all over the place in the past, I've been down that road to. Not everyone has the butterfly rash - which is obviously a sign if it shows up though.

Problem: There is no single diagnostic test for systemic lupus. The tests are simply possible common "markers". ANA is not a specific test for lupus, its autoimmune in general. A wide variety of laboratory tests are used to detect physical changes or conditions in your body that can occur with lupus. Each test result adds more information to the picture, resulting in a more accurate "guess".

"Laboratory tests alone cannot give a definite “yes” or “no” diagnosis because of the following limitations:

-No single laboratory test can determine whether a person has lupus. Not even ANA.
-Test results that suggest lupus can be due to other illnesses or can even be seen in healthy people.
-A test result may be positive one time and negative another time.
-Different laboratories may produce different test results."

Immunosuppressants and steroids may help cope, but don't cure it. Like MS, there is no cure for Lupus since the root cause has yet to be identified.

Post Edited (astroman) : 3/5/2019 8:51:47 PM (GMT-7)

Posted 3/6/2019 5:28 AM (GMT 0)
FYI - I have deleted a member’s offensive posts on this thread.

Sara - you may want to edit your post referring to one of the posts -
(not because it’s offensive but it doesn’t make sense now with the prior post removed)
Posted 3/6/2019 9:49 PM (GMT 0)
Thank you for doing that, that really made me mad. Not going to refer to it anymore.
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