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Lyme Disease
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outofit
Regular Member
Joined : Oct 2017
Posts : 45
Posted 3/11/2019 2:46 PM (GMT 0)
Hi, I have lyme, react ebv, bart,brucella strep, maybe babeshia and I feel it in my lungs mostly cant bo anyhting
have no appetite
cry a lot
nothing seems to work I also have that mf gene and mast activation
so hard to detox
feel like I am dying
my poor family
anyne similar
thanks, Ginny
saraeli
Forum Moderator
Joined : Jan 2019
Posts : 3717
Posted 3/11/2019 6:16 PM (GMT 0)
Hi, Ginny,
Anyone similar? Absolutely. You are far from alone with that symptom descript
ion and those conditions. I also have Lyme and a bunch of co-infections, along with detox issues and MCAS and mold toxicity concerns. I understand how hard this is for loved ones, and how hard it is to feel like you can't contribute, and can't seem to get well. It's miserable to be on this slog for so long, feeling like we're dying. And it's so demoralizing to try therapy after therapy without seeing the improvement we're hoping for!
Do you have a Lyme-literate doctor or other care practitioner you trust? Are you using any kind of treatment right now? What have your treatment experiences been like? Please feel free to share more!
I'm so sorry you're having such a hard time.
Lapis_29
Veteran Member
Joined : Sep 2017
Posts : 1777
Posted 3/11/2019 9:26 PM (GMT 0)
you might try my protocol here
https://www.healingwell.com/community/default.aspx?f=30&m=4106891
experiment with different oils see what you respond to. Cinnamon and eucalyptus work great for me.
goshawk
Veteran Member
Joined : Sep 2016
Posts : 2653
Posted 3/11/2019 10:09 PM (GMT 0)
Ginny I am so sorry or what you are dealing with. Please don't give up hope.
Have you been able to start any treatment for the Babesia?
When you get down remember that others here understand and many have been going through similar symptoms and experiences like you, so keep asking questions here and reach out foe support whenever you need to.
It can be a long and difficult road to healing but its possible....take care
xpeetzax
Regular Member
Joined : May 2018
Posts : 254
Posted 3/12/2019 9:19 PM (GMT 0)
Sounds like babesia or bart. I've had those exact symptoms. Please don't give up hope, it really does get better with treatment!
Roxie60
Veteran Member
Joined : Jun 2011
Posts : 1244
Posted 3/12/2019 9:59 PM (GMT 0)
Don't give up. I hope you are seeing a LLMD or similar that can help you develop a protocol to target your symps. It seems darkest before the dawn....eh forget the platitudes...it just sucks...but keep fighting to get better...we can't let Lyme, coinfections or current conventional medical policies keep us from fighting and beating this.
goshawk
Veteran Member
Joined : Sep 2016
Posts : 2653
Posted 3/13/2019 2:16 AM (GMT 0)
Outofit hope you are having a better day today, hang in there, Take care
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