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Switching to Dr. J clinic in DC. Need NP recommendation

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Posted 5/1/2019 3:27 PM (GMT 0)
Hello all,

After being infected for 11 months, and treating for 10 months with my current LLMD,
Not only didn't I see much improvement in the 3 month cycle I did twice, but I've now been on a standstill, unable to treat for the last 2 months because of elevated liver enzymes.

In the face of not really seeing any options or glimpse of hope with my current LLMD, I'm thinking of trying something new: Dr. J. in Washington DC.

I know that the initial appointment is with a NP and not dr. J himself.
My question: Which NP at that clinic would you recommend me the most?
I'm trying to increase my chance of going somewhere this time. I'd like to see the best person possible...

Thank you
Alex

Post Edited (Alxander) : 5/1/2019 10:03:05 AM (GMT-6)

Posted 5/1/2019 3:47 PM (GMT 0)
Rachel is fantastic. Good luck!
Posted 5/1/2019 3:48 PM (GMT 0)
Dr J doesn’t have ND’s treating patients.
He has NP’s and PA’s (maybe only NP’s now)

In addition to RM, two more highly regarded ones are: AW and KF
Posted 5/1/2019 4:02 PM (GMT 0)
Sorry I meant NP's, I will fix my original post.

Thank you Girlie.
And thank you Dahlias,
Posted 5/1/2019 4:09 PM (GMT 0)

Girlie said...
Dr J doesn’t have ND’s treating patients.
He has NP’s and PA’s (maybe only NP’s now)

In addition to RM, two more highly regarded ones are: AW and KF

Which NP are you seeing right now Girlie?
Posted 5/1/2019 4:35 PM (GMT 0)
i suggest rachel
Posted 5/1/2019 4:44 PM (GMT 0)

Alxander said...

Girlie said...
Dr J doesn’t have ND’s treating patients.
He has NP’s and PA’s (maybe only NP’s now)

In addition to RM, two more highly regarded ones are: AW and KF

Which NP are you seeing right now Girlie?


//////////////////////////////////////////


I lucked out and am seeing The Man himself.

I started with a NP (I don’t think drj does initial consults) and after a month she left the practice.
They assigned a replacement and after two months she also left.

I pushed for DrJ and for my third appt I got him!!!!!!

I’ve heard from several people that they’re happy with their NP’s and aren’t even interested in switching to DrJ tho
Posted 5/1/2019 5:33 PM (GMT 0)
Feel free to email me about going to the J clinic.
Posted 5/1/2019 7:03 PM (GMT 0)
Thank you Girlie. Email sent. smile
Posted 5/1/2019 10:33 PM (GMT 0)
I am also seeing RM. I am very happy with her, and I was lucky enough to have Dr. J stop in to talk with me for a few minutes also during my initial visit.
Posted 5/2/2019 6:27 AM (GMT 0)
I see Kim F and couldn't recommend her enough. She has an answer for everything and picks up on the smallest details when taking your history.

I chose her because she treated a friend that was bed bound for years. She treated him and he is 100% better now. No antibiotics, no symptoms, nothing. He is a firefighter now.
Posted 5/2/2019 6:34 AM (GMT 0)

Sheekster said...
I see Kim F and couldn't recommend her enough. She has an answer for everything and picks up on the smallest details when taking your history.

I chose her because she treated a friend that was bed bound for years. She treated him and he is 100% better now. No antibiotics, no symptoms, nothing. He is a firefighter now.

Wow, Sheekster - that's quite the story. I think Kim has been with Dr. J the longest (out of all the NP's)


I am happy with my choice to go to the J clinic. I know there are complaints for eg. - when you phone the triage line that they don't always get back to you the same day. I'm fine with that. It is a busy clinic..and they are treating a LOT of patients.
I was a somewhat frustrated when I first started going there, I got the run around when I wanted to book an appt. with Dr. J after a few appts with a NP. But, that's all worked out now...and I feel privileged to be a patient there.
Posted 5/2/2019 9:19 PM (GMT 0)

Girlie said...

Sheekster said...
I see Kim F and couldn't recommend her enough. She has an answer for everything and picks up on the smallest details when taking your history.

I chose her because she treated a friend that was bed bound for years. She treated him and he is 100% better now. No antibiotics, no symptoms, nothing. He is a firefighter now.

Wow, Sheekster - that's quite the story. I think Kim has been with Dr. J the longest (out of all the NP's)


I am happy with my choice to go to the J clinic. I know there are complaints for eg. - when you phone the triage line that they don't always get back to you the same day. I'm fine with that. It is a busy clinic..and they are treating a LOT of patients.
I was a somewhat frustrated when I first started going there, I got the run around when I wanted to book an appt. with Dr. J after a few appts with a NP. But, that's all worked out now...and I feel privileged to be a patient there.

Hands down the best clinic for lyme and co. I saw yesterday that Dr. Horowitz opened up his practice to 10 new patients. First come first serve, but I ain't switching. I like the pulsed approach so much more smile

PS: Girlie; I emailed you awhile back. If you see this take a look.
Posted 5/2/2019 9:49 PM (GMT 0)
I do remember an email from you - but I thought I replied.

I’ll take a look a bit later.

Edit - check your emails.... if there's another one I haven't responded - just forward it to me.

lol...I hate the email program (gmail) I'm using...
Posted 5/3/2019 3:36 PM (GMT 0)
Following out of interest.
Posted 5/3/2019 4:20 PM (GMT 0)
I also see RM. I don't have anyone else in the clinic to relate her to but she's really cool. Others here seem to recommend her highly so i guess she's one of the best there
Posted 5/3/2019 4:43 PM (GMT 0)
Aerose (if you see this) - how are you doing? Have you stabilized somewhat yet?
I know it hasn't been very long...but am hoping you're doing a bit better....
Posted 5/4/2019 12:20 AM (GMT 0)
Hey Girlie,

Thanks for the shout out. Can't say I've seen any changes yet but i think in terms of protozoa treatment im still young. I had my third follow up yesterday with RM and she wants to add one more anti parasitic (don't remember which) and start me on the biofilm protocol. Plus adding in another mast cell stabalizer because histamines seem to always be a huge issue.

Here's to hoping biofilms plus a little more time will bring on some changes, my brain could use it.

How is your treatment progressing?
Posted 5/4/2019 7:57 AM (GMT 0)

Girlie said...


I lucked out and am seeing The Man himself.

I started with a NP (I don’t think drj does initial consults) and after a month she left the practice.
They assigned a replacement and after two months she also left.

I pushed for DrJ and for my third appt I got him!!!!!!

I’ve heard from several people that they’re happy with their NP’s and aren’t even interested in switching to DrJ tho

Oh my gosh Girlie, why you think two NPs left the staff so quickly?

I know it's gotta be super stressful being in this field, just a little sad that two left the practice that quickly. I know for the most part Dr. J's clinic is basically one of the best in the country.

Post Edited (Charlie55) : 5/4/2019 2:02:18 AM (GMT-6)

Posted 5/4/2019 8:52 AM (GMT 0)

Aerose91 said...
Hey Girlie,

Thanks for the shout out. Can't say I've seen any changes yet but i think in terms of protozoa treatment im still young. I had my third follow up yesterday with RM and she wants to add one more anti parasitic (don't remember which) and start me on the biofilm protocol. Plus adding in another mast cell stabalizer because histamines seem to always be a huge issue.

Here's to hoping biofilms plus a little more time will bring on some changes, my brain could use it.

How is your treatment progressing?

I'm taking Quercetin....or I WAS. I stopped - but thinking of starting it again.
I've been on biofilm protocol for about 11/12 months now. I thought it would only be with my Babesia protocol...but it continued through my Persister/Bart protocol and now on the Maintenance protocol, I still take the xylitol and lactoferrin.

I'm trying to figure out what the patterns should be - I may need to phone. I'm not symptom free...but have some good days where I'm about 90% for most of the days.

I finished my cycle a week ago (Friday) and I felt quite good M/T/W/Th. I was quite pleased with how I was feeling - symptom wise. Then yesterday and today I'm feeling quite a bit of nerve pain...along with some of the shivers...
Is it because my immune system isn't kicking in to do the job?

What should the pattern be?
My concern is I have another 2 weeks OFF the abx....
Posted 5/4/2019 8:56 AM (GMT 0)
Charlie: "Oh my gosh Girlie, why you think two NPs left the staff so quickly?

I know it's gotta be super stressful being in this field, just a little sad that two left the practice that quickly. I know for the most part Dr. J's clinic is basically one of the best in the country."


The first one I saw had been there awhile...but she left a month after I had my initial consult with her.

The second one - she was new..and I don't know why she left.

I think it's a huge learning curve...and you need to be very sharp - they are very busy there. I would think it's a burn-out type of job for some.
Posted 5/5/2019 8:11 PM (GMT 0)
both my wife and i have been seeing Dr. J personally for a bit over 2 years. while i've improved i'm nowhere near healed and my wife has gone nowhere.

dr. J isn't a miracle worker sometimes he can help sometimes he can't. his protocol is fairly standardized but timings and little tweaks are individualized.

if you haven't taken a good shot at using abx its worth trying him out.
Posted 5/5/2019 10:44 PM (GMT 0)
Hey Rikki - that’s frustrating for your wife. Does dr J have any insight as to why your wife hasn’t responded to treatment?
Posted 5/6/2019 3:07 PM (GMT 0)

Rikky1 said...
both my wife and i have been seeing Dr. J personally for a bit over 2 years. while i've improved i'm nowhere near healed and my wife has gone nowhere.

dr. J isn't a miracle worker sometimes he can help sometimes he can't. his protocol is fairly standardized but timings and little tweaks are individualized.

if you haven't taken a good shot at using abx its worth trying him out.

Hi Rikky!

I finally got a hold to someone on the phone to ask details about how things work at the clinic.
Me and my girlfriend both got sick at the same time, so I was hoping we could be seen as a "couple" but such things dosen't seem to exist.

How do you manage appointment at the clinic with your wife? Do you take 2 appointment back to back?
The money this is going to cost.... ugh
Posted 5/6/2019 3:39 PM (GMT 0)
Alexander - having appts back to back would prob be the best way - at least you’rs only travelling once.

I don’t think any Dr’s (not just lyme Drs) would have two people share one appt slot..

I can’t imagine how that would even work - going back and forth between two people?

Or focus on one patient first and then the next one after - but then that’s two appts...

You can’t divide the time - believe me it goes fast.
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