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“Cyst buster” question

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Posted 5/13/2019 1:20 PM (GMT 0)
Hi guys can you all tell me the most recent consensus on cyst busting for Borrelia? Is using Flagyl or tindamax still suggested to be needed for treating Lyme in cyst form? I’ve recently read stuff that say it’s no longer believed that Lyme truly converts into a cystic form but instead into a round body form. Don’t really know the difference. I guess like always it depends on the dr and what protocol they use.
My daughter has been on doxy, zyth, rifampin and mepron for quite a while but we’ve not done any pulsed tindamax or Flagyl. I’m wondering if this could be holding her back. I recently started experimenting with grapefruit seed extract and a biofilm remedy and she herxed but then improved. Wish I wouldn’t have added them at the same time because I don’t know which had the most affect. Thinking she could have a bunch of biofilm or possibly Lyme in cyst form that’s holding her back. Trying to sort it out. Any thoughts welcome!
Posted 5/13/2019 3:44 PM (GMT 0)
My LLMD still prescribes Flagyl/tindamax for cysts.

And for biofilms he prescribes xylitol and lactoferrin.
Posted 5/13/2019 4:41 PM (GMT 0)
Thanks Girlie. Can you tell me the source and dose of xylitol and Lactoferrin you use? And I assume you take these throughout treatment for a long time?
Posted 5/13/2019 5:34 PM (GMT 0)
'Stevia' is a powerful natural cyst buster.
Posted 5/13/2019 6:06 PM (GMT 0)
Thanks Joan I’ve heard that but haven’t tried. Will give that some thought.
Posted 5/13/2019 9:37 PM (GMT 0)

Upatnite said...
Thanks Girlie. Can you tell me the source and dose of xylitol and Lactoferrin you use? And I assume you take these throughout treatment for a long time?

When I first started taking Xylitol - I started with 1/2 tsp and gradually increased to 1 or 2 tsp - I can’t remember the top dose - I’ll have to check.
I was taking it one week a month - Mon-Fri.
Then more recently I was taking it 3 days a month (maintenance protocol)
BUT I’ve just been told to go back to 5 days dosing (after I called and said I felt like I might be slipping - so my protocol was changed)
I bought the first one online - I think it was Jarrow brand - a known supplement company.

Now I buy it from our local health food store.

Lactoferrin - I buy online - can’t remember brand
I think it’s 500 mg I take with the xylitol.
I’ll check and edit later
Posted 5/14/2019 12:41 AM (GMT 0)
Dr. H’s office uses Plaquenil and Stevia.
Posted 5/14/2019 1:40 AM (GMT 0)
Stevia is not a cyst buster.
Posted 5/14/2019 2:00 AM (GMT 0)
Ok thanks guys for all the replies. Anyone else have experiences with tindamax or flagy for cyst form to share?
Posted 5/14/2019 2:02 AM (GMT 0)
I just bought Cistus tea because it’s said to be a natural biofilm buster. I bought it for $34 off Amazon’s I also pulse Flagyl and take Interfase Plus daily.
Posted 5/14/2019 2:05 AM (GMT 0)
I am on Flagyl IVs and I haven't herxed so far. They just make me a little sleepy I think.
Posted 5/14/2019 2:07 AM (GMT 0)
Ok thanks
Posted 5/14/2019 2:31 AM (GMT 0)

jb1994 said...
Stevia is not a cyst buster.

It’s for biofilms tho right?
Posted 5/14/2019 2:49 AM (GMT 0)
I don't know if there's any evidence of biofilm effectiveness either, I recall it was only in vitro/in a petri dish.
Posted 5/14/2019 4:23 AM (GMT 0)

Upatnite said...
Ok thanks guys for all the replies. Anyone else have experiences with tindamax or flagy for cyst form to share?

My experience with flagyl was that nothing much happened at first, but after a few days I got a herx. I guess it takes a while for the biofilm to dissolve after the bacteria die.

I'm on different antibiotics now, but the herxheimer reactions seem to start sooner, which suggests that there is now less biofilm protecting the bacteria.
Posted 5/14/2019 4:43 AM (GMT 0)
There are cysts and there are biofilms

Flagyl and Tindamax are for cysts

Xylitol , lactoferrin , and I think stevia are used for biofilms
Posted 5/14/2019 10:00 PM (GMT 0)

jb1994 said...
I am on Flagyl IVs and I haven't herxed so far. They just make me a little sleepy I think.

IIRC, you've said other antibiotics didn't make you herx either, which is quite unusual.

jb1994 said...
Stevia is not a cyst buster.

I took stevia and it didn't seem to do anything.
Posted 5/14/2019 10:30 PM (GMT 0)
I’ve never noticed if the cyst busters or biofilm busters are doing anything - I’m always taking them with other stuff

I just have faith that my LLMD knows what he’s doing.
The one thing he has said that when he added the biofilm busters he noticed a change for the good with his patients.
Posted 5/15/2019 1:46 AM (GMT 0)
Quin - yes, it is unusual, are you implying something? I herx on Buhner.
Posted 5/15/2019 1:48 AM (GMT 0)
Nattokinase is effective too. (Biofilms I think.) My daughter is currently flaring on it. sad I also gave myself a big flare with it.
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