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Borrellia and Bartonella treatment advice

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Posted 6/19/2019 4:54 PM (GMT 0)
Hi. I've been lurking around for a while and gathering a lot of really valuable information so thank you to each and every one of you. I'm a Lyme Mum. My son developed a EM rash but took a bit too long to tell me (he had just started university) but when he did get to his GP they clinically diagnosed Lyme, started him on 3 weeks doxycline and took his bloods. It came back positive for borrelia and we hoped we had nipped things in the bud. Sadly it was too little too late, and roll on 6 months he is now seeing a LLMD who has tested him positive for borrelia and bartonella. No symptoms of babesia but I guess we have to wait and see if he's got all 3. He's on a combination protocol of doxycycline, rifampin and azithromycin along with a whole cupboard full of gut probiotics and herbal inflammation support/vitamins/omega 3 etc. He had another set of bloods taken and the borrelia, chlamydia and bartonella markers have increased - is this what would normally be expected? It was explained to me that it was but I'm keen to know of others' experiences with this combination.
Posted 6/19/2019 5:05 PM (GMT 0)
Hi L4m3MOM

Welcome to our community.

Unfortunately 3 weeks of antibiotics isn't enough for even an acute case of lyme disease.
treatment should be a minimum 6 weeks- that's if all he has is a bullseye rash.

Good decision to take him to a LLMD. It is still EARLY on and the earlier one gets treatment, the higher the chances remission will come without a lot of complications.

I'm not sure what retesting your son had - but there isn't really a definitive test to show us that treatment is working...or not... You can continue to produce antibodies even after you're in remission.
I'm thinking it's not an antibody test - do you know what type of markers this was?

Your son should focus on the symptoms...and when they're abated...then treat for a few weeks longer.

...and if symptoms come back...get right back on treatment....don't wait.
Posted 6/19/2019 5:12 PM (GMT 0)
Thanks Girlie. He's been on this protocol for 8 weeks - and had a few weeks more doxy before he started it. The clinic retested him using the German BCA lab and the markers they use for the three infections were lower last time around than after 7 weeks treatment. His CD57 (although I gather that isn't really a reliable marker of anything other than possible related in some way to immune status) has gone up a little bit but still very low.

I've just looked it all up and it is Lymespot and Bartonella Elispot - perhaps it means that his body is now producing increased levels of antibodies?

He had been making good progress with increased energy levels but set back a bit this week with a viral infection (which his girlfriend has too...) He's been given another 8 week plan with review again in 7 weeks and I had come to the conclusion a while ago to expect it to take time.

I guess I am just wondering if there is anything in all of this to worry myself more about ;-)

Post Edited (L4m3M0M) : 6/19/2019 11:17:02 AM (GMT-6)

Posted 6/19/2019 6:32 PM (GMT 0)
His abx for lyme and Bart are good ones.
But I’m wondering about the cyst form if lyme.
Flagyl or tinidazole are two that are often prescribed for cysts.

I have read that Rifampin may work on the cyst form.
Maybe ask the LLMD next time you talk to him.

The main thing is to focus on symptom abatement - if he continues to do well - then he’s on the right track.
Posted 6/19/2019 8:20 PM (GMT 0)
Thank you for this advice. I think some of the herbal supplements are designed to deal with the cyst form too but I think you’re right to be more focused on his symptoms rather than any blood tests. We’re next seeing the doctor in 8 weeks so here’s hoping things will keep improving.
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