Really need some advise

Branch - Im sorry you’re feeling defeated - I certainly understand.

I’m not able to get disability because Lyme disease wouldn’t be accepted - as I tested negative on the Canadian test.
I haven’t been diagnosed with anything else

I am fortunate to have my husband to lean on - but we have growing debt due to cost of appts, airfare, antibiotics, supplements.

I am anxious to get back to work and will have to work until I’m 65 to catch up.
I had wanted to retire at 60.

We may also have to sell our house and buy something smaller.

I hope you are able to get disability and that will be some relief for you.

ya if your under 18 there is that assistance fund... but sold my car , when i couldnt drive and took a family loan i m just now paying back . we may also have to sell our house and downsize . since getting well work has been a whole lot funner now its in alignment with purpose, but how many people choose that when necessity and security take precedent . welcome

My girlfriend got disabilty payment for 5 years but she just lost it. She only gets 300 $ a month now.
I have never got that but worked way less when I was sicker. I had decent savings that we lived on and used to pay for all treatments and tests.

Now I will soon start full time at the university and work 10 hours a week in the beginning. Plan to increase to 14-18 h hours work a week after a month.
I work from home and its only mandatory about once a week at the university.

We will survive for 1 more year with her only getting that little money. But we are going to hire help to get here the payment she had before. They are lying and there has been cases that prove that we are right, and her new doctor is on our side. It sucks that we have to fight this at the same time.

It would be so much easier if we could get the help we need.

Dude - I'm sorry you're having to go back to work while feeling unwell. I hope this job isn't too hard on you and you are able to pace yourself somewhat.

I wish I was able to get a few $$ somehow. I could do an easier job - maybe 2 days per week...but then my employer could terminate me - due to the fact that I'm too 'sick' to work for them...but have accepted a job elsewhere.


This disease SUCKS!

The Dude Abides said...


You were able to retire through your employer's disability plan? How much (or, little) of a fight was that process? I often wonder if I shouldn't have pursued a similar route through my previous employer.

I'm not asking specifics, but is the amount you receive enough for you to live? (Place to live, food, utilities, etc.)

I've no idea how disability retirement pays through an employer or through Social Security. I used to receive Social Security statements each year that would show how much I've paid into the system, as well as estimates for how much I would collect if I retired or went on disability. But, they stopped mailing those statements, long ago.

I hired a lawyer who specializes in disability retirement from my employer. It required supportive documentation from my doctor. It took a year to be approved. Payment is a greatly reduced % of the salary. It’s not enough for me.

I have not done anything to reduce my spending. I spend more on doctors, tests, supplements, food and gas than I have coming in. If I could ever get in a safe, mold free home and stable environment I would be much better off in every way. The only way I survive is with my mother. We’re both struggling financially and haven’t come to terms with it.

One important aspect is I retained my health insurance this way. That is very important.

I was required to apply for Soc Security at the same time. I sent all the medical records I had and they completely discounted anything in there stating the only disability I had was hearing impairment, LOL. It’s a joke. I didn’t want to hire another lawyer to try to get that. They make you see their doctors. My disabilities are largely caused by mold and chemical sensitivities. Imagine the difficulty of proving that without spending the rest of your life savings trying to find a suitable doctor who understands the illness and is willing to support a disability case.

Most doctors want nothing to do with supporting disability. I even saw a sign in my mom’s PCP office that stated the doctor will not provide disability documentation.

My PCP was the only doctor who helped me. The doctors who did the tests and were treating me provided nothing. It’s unconscionable to me for a doctor to diagnose and treat things like mold illness, environmental sensitivities, and Lyme disease not to provide the requested medical statements supporting their patients’ symptoms and limitations, knowing how devastating these illnesses are and the cost involved in treatment.

Post Edited (WalkingbyFaith) : 8/4/2019 8:00:33 AM (GMT-6)