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Posted 8/4/2019 4:15 PM (GMT 0)
Hi all,

Has anyone had toxic granulation come back on their CBC? I have been blood cultured and picc line cultured. I am not on NY antibiotics right now or treatment due to my body being so beat down from mast cell and exposures. I'm a bit worried bc I am feeling so beat down and all the stress and blood work every 3 days is becoming exhausting. I have to repeat another igenex lyme test and babesia and bartonella tomorrow, or Tuesday. Of course we are in contact with our doctors and following their advice and doing all the testing needed. Just wondering if anyone else has had this.

Thanks,

Leah
Posted 8/4/2019 5:14 PM (GMT 0)
I don’t see toxic granulation on my lab results...
is it something specifically requested with the CBC?

Why are you repeating your lyme test?
Posted 8/4/2019 7:21 PM (GMT 0)
it sounds like your dealing with traumatizing regular doctors. find a llmd who can use the picc for nurturing ivs like vit c and glutithione past the 30days . some people had for 6 months or a year how long had picc been in ?

google says dohle body or granulation in vaculoles of cytoplasm were seen : translation it looks like your wbc are infected with a intercellular organism(s)(likely erlichia or rickettsia) . i dont know how they would tell that from a cbc ?without doing a giemsa stain as all the pictures show stained cytoplasm. if your blood is thick and hyper coagulated excess fibrin may be the culprit of poor blood flow and systemic enzymes on a empty tummy may help.

Post Edited (bluelyme) : 8/5/2019 12:03:04 AM (GMT-6)

Posted 8/5/2019 12:24 PM (GMT 0)
Has PCR positive Lyme and my LLMD is one of top in country. I did do glutathione and IVs and everything else back in 2015 along with 10 mths of anti malarial and antibiotics and I became so beat down with mast cell Activation syndrome bc we were living in a brand new house at the time with mold...we didn't know. My mast cell is very reactive. Very severe case.

They could tell bc they did a blood smear and stain. The picc is used for IV fluids daily as I am already on home care and this helps to basically keep me alive due to pituitary hormones being knocked out from the mold. We are actually building a safe space with positive pressure bc that is how sensitive I am and docs were hoping I would be in there before we start tx bc anything we try right now backfires. I could skin brush right now and be down for days not able to move bc my body is so reactive. Patient Worthy has written articles on my situation and health. It's very complex. The repeat test my llmd and mast cell specialist says is to know if the lyme is reactivated. She says if we treat the lyme but the mold is driving this then we will backfire again. It we treat the mold, but the lyme is driving this then again you backfire. The glutathione and vitamin Ivs nearly killed me because of the mast cell. That is what is so hard having both to contend with.

Thank you all for your help and input. This has been exhausting even more so than usual. God Bless.

Leah
Posted 8/5/2019 12:31 PM (GMT 0)
Hey Girlie,

Sorry just read yours...yep it's in a CBC with manual differential. They wont report on it if they dont see it, or if it doesnt get flagged. I have had blood work taken every week for years now to monitor everything and it's never been reported so this is new to me too. But, my understanding is if it gets flagged then they view under the microscope it's called a stain or blood smear and if it shows toxic granulation they have to report it.
Posted 8/5/2019 3:36 PM (GMT 0)
there is a double edge sword of bvt as it has a mast cell degranulating peptide. in small doses may be extremely anti inflammatory. it is anti-spirochete and kills mold /fungi . stopping the quotum sensing with herbs may be hard. have you considered plasma rife as a means of treatment?

sounds like you been thru the ringer and back . according to gh and recent post by wbf mcad may be linked to bacteria or lack of in the gi. ill keep u in my thoughts and prayers
Posted 8/5/2019 3:40 PM (GMT 0)

Leah2013 said...
Has PCR positive Lyme and my LLMD is one of top in country. I did do glutathione and IVs and everything else back in 2015 along with 10 mths of anti malarial and antibiotics and I became so beat down with mast cell Activation syndrome bc we were living in a brand new house at the time with mold...we didn't know. My mast cell is very reactive. Very severe case.

They could tell bc they did a blood smear and stain. The picc is used for IV fluids daily as I am already on home care and this helps to basically keep me alive due to pituitary hormones being knocked out from the mold. We are actually building a safe space with positive pressure bc that is how sensitive I am and docs were hoping I would be in there before we start tx bc anything we try right now backfires. I could skin brush right now and be down for days not able to move bc my body is so reactive. Patient Worthy has written articles on my situation and health. It's very complex. The repeat test my llmd and mast cell specialist says is to know if the lyme is reactivated. She says if we treat the lyme but the mold is driving this then we will backfire again. It we treat the mold, but the lyme is driving this then again you backfire. The glutathione and vitamin Ivs nearly killed me because of the mast cell. That is what is so hard having both to contend with.

Thank you all for your help and input. This has been exhausting even more so than usual. God Bless.

Leah

Leah - Gosh - you have had a really tough time...so sorry!

I'm wondering about your LL Doc doing repeat testing for lyme .... what test and which lab? If it's negative...how will he know if it's valid? (As you know false negatives are common with lyme)
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