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Disulfiram - Part 1

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Posted 8/29/2019 8:25 PM (GMT 0)
Right on Girlie! do you have an intuition as to which infection is holding you back at this point?
Posted 8/29/2019 10:53 PM (GMT 0)

sebreg said...
Right on Girlie! do you have an intuition as to which infection is holding you back at this point?

I'm torn. When I sweat (usually just lightly in morning upon waking) I wonder about Babesia. (plus I still have some head pressure behind my eyes)

But, the foot pain (mild) and the nerve pain...I tend to think it's bartonella. Plus, the fact that I was bitten, scratched many many times - since about the age of 4....and a few anomalies health wise point to it as well.
I also had two lymph nodes disappear when treating bart. So, it makes sense for it to be difficult to treat - being with me so long.


Then there's the POTS. Dysautonmia is a babs symptom...but it can also be Bart messing with the CNS/ANS.

I really don't know. I self-treated Babs in 2017 - can't remember how long - approx. 6 months with Mepron.
Then at the J clinic they treated me for Babs (2018) from February until August....and that was double dose Mepron.
Was also on Alinia when I was treating Bart/persisters...from August to February....


I don't know....hope someone at the J clinic knows...lol. I feel like I'm at a cross-roads now.
Posted 8/30/2019 12:50 AM (GMT 0)
I’m wondering if any of you on disulfiram take herbal tinctures? It just hit me that my tinctures are alcohol based. Just wondering if taking the tinctures gave you any problems?
Posted 8/30/2019 12:54 AM (GMT 0)

Inspiredby3 said...
I’m wondering if any of you on disulfiram take herbal tinctures? It just hit me that my tinctures are alcohol based. Just wondering if taking the tinctures gave you any problems?

I don’t think any alcohol is allowed.

I’m sure sebreg will be able to confirm that.
Posted 8/30/2019 4:16 AM (GMT 0)
Girlie is correct. Don’t take any alcohol tinctures if I’m disulfiram
Posted 8/30/2019 5:31 AM (GMT 0)

Inspiredby3 said...
I’m wondering if any of you on disulfiram take herbal tinctures? It just hit me that my tinctures are alcohol based. Just wondering if taking the tinctures gave you any problems?

short answer: NO.

even a tiny amount of alcohol will trigger a disulfiram reaction which can be quite severe. It looks and feels EXACTLY like a herx .... In your case, since you are treating for lyme, you will confuse this reaction with a herx, which will make things even worse because you would believe "the medication is working", while in reality you just got the reaction alcohol addicts have when on disulfiram.

So please stay away of alcohol in all products. Some cookies contain alchool too, but it is enough to make you very sick, so read the labels
- mouth washes
- honeybuns
- vanilla extract
- hand sanitizers (this may be safe but im not sure how much alcohol is absorbed through skin...)
- any cookie containing real alcohol for flavoring
- etc etc
Posted 8/30/2019 5:19 PM (GMT 0)
some few alcoholics can find they tolerate a bit of a drink while on DSF, but even for most of that patient class it is absolutely intolerable. And when you take a population like lyme patients who are already very sick, dealing with vast array of sensitivities, intolerances, coupled with herxheimer flare issues? our capacity for the alcohol/DSF response is probably even worse. So yeah, best to avoid any alcohol or products with alcohol in them, including tinctures!!!
Posted 8/30/2019 5:59 PM (GMT 0)
Important: When Using Disulfiram for the Treatment of Lyme Disease
https://www.youtube.com/watch?v=4jd_umbnfb0
Posted 8/30/2019 8:37 PM (GMT 0)
Thank you guys!! Hopefully the med will make me better and I won’t need the tinctures. Otherwise if I stop them, I will have to go back to 1 drop when I restart and build up all over again. I herx pretty bad from just 1 extra drop. Took me so long to build up, would hate to start all over...
Posted 8/31/2019 1:03 AM (GMT 0)

mpost said...
Important: When Using Disulfiram for the Treatment of Lyme Disease
https://www.youtube.com/watch?v=4jd_umbnfb0

Good share, thank you!!!

Inspiredby3: Disulfiram can give very very strong flares. If you are prone to strong flares, def suggest checking out Dr Liegner's suggested ramp-up dosage strategies. It could be that if you successfully lower your pathogen load with DSF over time, and wish to restart herbal tinctures once you are done with that therapy, you will have fewer issues with flare responses in general due to lower pathogen load. And ideally it would be a moot point, if all goes well with DSF, the hope would be you would have pretty much fully lowered the pathogen load beyond the point of being able to draw out flares!
Posted 8/31/2019 2:35 AM (GMT 0)

Somebody said...


Tetraethylthiuram disulfide (Antabuse) inhibits the human malaria parasite Plasmodium falciparum.

Abstract

Plasmodium falciparum in culture grows optimally at 3% oxygen. Oxygen levels down to 0.5% still support growth, but anaerobic conditions do not. These findings, and the absence of the Krebs cycle in Plasmodium, suggested that in this organism oxygen may not function in electron transport but rather may act through metalloprotein oxygenases. Tetraethylthiuram disulfide (Antabuse, disulfiram) and its reduction product diethyldithiocarbamate inhibit many metalloprotein oxygenases and have a lipid/H2O partition coefficient and high binding constant for metal ions, favoring selective toxicity to the malaria parasite. These compounds exhibited active antimalarial effects in vitro in concentrations down to 0.1 microgram/ml, the lowest level tested. Tetraethylthiuram disulfide at a level as low as 1 microgram/ml inhibited parasite glycolysis with no effect on glycolysis of normal erythrocytes. Erythrocytes pretreated with this drug at 10 microgram/ml did not support growth of the parasite.

Posted 8/31/2019 2:38 AM (GMT 0)
this would mean that DSF would in fact be highly effective against Babesia and the mechanism would be inhibiting glycolysis of the Babesia parasite while not effecting human Erythrocytes ie, red blood cells
Posted 8/31/2019 2:55 AM (GMT 0)
alldaychemist.com has it under the name Dizone. It's $30 bucks for 90 days worth.
Posted 8/31/2019 3:00 PM (GMT 0)

Somebody said...
alldaychemist.com has it under the name Dizone. It's $30 bucks for 90 days worth.


Any tips on checking out at alldaychemist.com?
What is the safest way to pay? Do they accept bitcoin?
Checkout page is asking for "best time to call". What is the purpose of the phone call?
Posted 8/31/2019 3:06 PM (GMT 0)
go on the FB DSF group and ask about alldaychemist, they will help you
Posted 8/31/2019 3:35 PM (GMT 0)

potsnpans said...

Somebody said...
alldaychemist.com has it under the name Dizone. It's $30 bucks for 90 days worth.


Any tips on checking out at alldaychemist.com?
What is the safest way to pay? Do they accept bitcoin?
Checkout page is asking for "best time to call". What is the purpose of the phone call?


========================


I purchased from ADC but they don’t ship to Canada so I had them ship to a friend and she then sent the products to me. PITA

Payment - this is where is gets sketchy. I had to go to my bank and do a transfer of funds from my account to the ADC owner’s account. Something I would never ever do prior to lyme (and feeling desperate)
I’m surprised my husband was okay with it...

It all worked out tho.

Doubt they accept bitcoin.
Prob visa is payment method
You can ask them questions online
Posted 8/31/2019 10:16 PM (GMT 0)
Thanks for sharing your experience Girlie. BTW I can relate- my tolerance for risk has also really evolved with things like this.
Posted 9/1/2019 12:11 AM (GMT 0)

Girlie said...

I purchased from ADC but they don’t ship to Canada so I had them ship to a friend and she then sent the products to me. PITA

Payment - this is where is gets sketchy. I had to go to my bank and do a transfer of funds from my account to the ADC owner’s account. Something I would never ever do prior to lyme (and feeling desperate)
I’m surprised my husband was okay with it...

It all worked out tho.

Doubt they accept bitcoin.
Prob visa is payment method
You can ask them questions online

Yes, they accept bitcoin and ethereum.
They don't take visa.
Posted 9/1/2019 2:49 AM (GMT 0)
Quin - they mention visa on their website.
Are you sure about that?

“ We at AllDayChemist aim to provide you with a 100% Satisfaction Guarantee. We live by the adage of healthy life and affordable medical expenses. You can buy drugs online by paying us through check/money orders, or credit cards.“
Posted 9/1/2019 5:15 AM (GMT 0)
u guys sure u want to do DSF without medical supervision ?

at least please do some regular liver/kidney tests. it can do liver damage...

i think if we wait some more months we will get more llmds that prescribe it. it has exploded in use for lyme disease in last year....
Posted 9/1/2019 12:11 PM (GMT 0)
In the US you can order blood tests through requestatest.com no doctor needed. I get CBC and CMP panels through them. Its cheaper with my huge deductible then going through a hospital to get them done. The last time I had them done it was $42 for both.
Posted 9/1/2019 1:35 PM (GMT 0)

mpost said...
u guys sure u want to do DSF without medical supervision ?

at least please do some regular liver/kidney tests. it can do liver damage...

i think if we wait some more months we will get more llmds that prescribe it. it has exploded in use for lyme disease in last year....

agreed, regular liver testing is a must if you are going to do DSF
Posted 9/1/2019 2:44 PM (GMT 0)
I’m on disulfiram. Haven’t heard from my doctor about getting blood tested yet. How often do they usually test for liver etc?
Posted 9/1/2019 3:38 PM (GMT 0)
When on lyme and CO’s treatment monthly labs should be done - especially when on abx... etc.

I though all llmd’s/llnds did that??
Posted 9/1/2019 4:25 PM (GMT 0)

Girlie said...
I though all llmd’s/llnds did that??

they dont sad

my first llmd did not test me for anything and the first 6 months were my worst possible because i took hi doses of ... any of the traditional lyme abx.... i did one test every 2 months out of my own personal initiative. i tested liver stuff (transaminases, bilirubin) plus kindeys.
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