Hi MSMYTH,
Long story short the antibiotics didn’t do anything. I figured it was the B12 injections that helped with my concentration, sleep, brain fog, energy and anxiety. The symptoms of both are very alike so it’s always hard to tell. I was deficient when I was 15 and I’d say was borderline for the few years after and the damage to my nerves (eyes and gut) is permanent. Doctors won’t consider you deficient until you go below 190 but really one should get injections when below 300. If one has neurological symptoms, injections should be given every other day until symptoms improve.
After 12 months on antibiotics my gut was worse (of course). I tried different diets but none helped. I tried the Candida diet as overgrowth symptoms similar. I got tested with Doctors Data. Definitely worth doing as it’s very detailed.
I still had all my symptoms so I self injected b12 for a year and still do once a week (there is a great Facebook group called ‘B12 Wake Up). I saw significant improvement within a month.
I actually retested with Armin Labs in 2020 around the same time I started injections. The results were similar but each result had elevated significantly (eg. CMV went to 178) and I did test for Bartonella Henselae elispot which came back at 5. I was going to go to St Luke’s in Poland for treatment after my doctor here said he’d already treated me and wouldn’t re-treat.
Today I am still unsure whether I have it. My current symptoms are blurred static vision and that floating in a room feeling. When I’m in a room and talking to someone I can’t focus fully on their face. Maybe I need more b12 as I’ve been lax with them lately. My gut is terrible. I have severe bloating and gas. I’ve just started drinking celery juice every morning since January and I did a medical medium cleanse but have added back meat and eggs. I’ve never stuck at a diet as I’ve a sweet tooth but I do think a low carb diet works best for me. I have Endometriosis too which I’m getting surgery for soon so I’m hoping that will help. Also I started taking Diatomaceous Earth for parasites. I joined the Facebook group. I believe they can cause a lot of illnesses and gastro symptoms especially.
Sorry this is a rant and probably hasn’t helped much. If I were you I’d try get an appointment with Dr Lambert in the Mater. If you have money go to St Luke’s in Poland. There is an annual Lyme conference where you can get a lot of info on the different treatment options. Usually it’s in May. Join the Tick Talk Facebook group. It’s very helpful. If you are waiting for an appointment, buy Stephen Buhner’s book Healing Lyme. It’s brilliant. I can’t say I used his herbs for long enough. There is also a Buhner Facebook group. Also Brenda Cosentino has a blog. I have seen her for consultations online. Maybe she is worth a try actually. Step one maybe. She healed her Lyme and parasites naturally over 2 years. She was bed bound. Another book I read was Terry Wahl’s. She is a doctor who cured her MS through diet. It’s mainly paleo with lots of veg. I more or less follow it now.
Any other questions let me know. I understand how hard it is but you can heal and feel good again. You just need a bit of guidance.
