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Lyme Disease
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Posted 9/21/2019 6:47 PM (GMT 0)
I just wondered if anyone has been here and had good results. I am doing well and am back in work full time but struggling, have had so much stress in work and lots going on with the family and although I am so much better than I was I am still nowhere near the person I was. I feel robotic when I do everything, my personality and zest for life have gone and I feel permanently exhausted and stressed and am wondering whether it is worth being back in work. It is not really an option I suppose as if I don't work I can't afford the treatment.

Appreciate any feedback if anyone has experience of the clinic.

Thanks.
Posted 9/21/2019 7:03 PM (GMT 0)
Not heard of it, but do know of someone on the forum in the UK seeking Lyme treatment in the UK. So far at the mercy of the NHS system and struggling. Do you know if they're expensive?

Wishing you healing vibes. Do you have any coping mechanisms while getting through the day at work?


Thanks!
Posted 9/21/2019 7:36 PM (GMT 0)
They are expensive but then so are the herbs and everything connected with this, think the initial full consultation and three month plan is around £700 but then any blood test, herbs, medication of any kind is of course extra. In the 3 month plan there are a few phone and email follow ups.
Will pay all I have just to get back to who I was as I can't continue like this any more. Perhaps if I stopped working so hard then I would start to feel something again, hate this robotic like feeling of doing everything but not feeling anything. Hard to describe.
Posted 9/21/2019 7:57 PM (GMT 0)
Yes I think I know the other clinic you are referring to the charge almost £10k, honestly it's heartbreaking how this illness and other diseases too are a money making machine for some in the medical profession.

I just want to feel emotions again, happiness, excitement and joy but just feel everything is just another 'thing to get through' I always feel on the precipice of something bad about to happen and so negative and worried all the time. I have this pressure in my head and fog I do worry that I will end up with dementia.
Posted 9/21/2019 8:01 PM (GMT 0)
I have been doing Skype calls with them for almost 1 year.
I did test for mold, lyme, iodine and heavy metals.

I had problems with all of those and have gotten help with treatment.
For lyme and bartonella they gave my Byron White products.

I think the general thinking is good, but the adjustment of treatment based on my sensitivities wasnt that good. Also had some communication problems.
My practitioner liked Neil Nathans Toxic book, so it was nice to discuss treatment for mold from that book.
There was a good focus on binders and detox.


Tests ended up costing a lot. They have Great plains labs mycotoxins test that is very good.

Post Edited (Deep_sleep) : 9/21/2019 2:04:10 PM (GMT-6)

Posted 9/21/2019 8:09 PM (GMT 0)
Thank you Deep_sleep, my practitioner would be Paul F, are you skyping/communicating with him or another practitioner there ??

Glad it has helped you overall it seems.
Posted 9/21/2019 8:15 PM (GMT 0)
JovaLyme whereabouts in UK are you ???
Posted 9/21/2019 8:16 PM (GMT 0)
Another practitioner.

Yes it has helped, but I have done a lot of things on my own also that has been a big part of me getting better.
Posted 9/21/2019 8:19 PM (GMT 0)
Ok, so they have been a crutch along the way really and nothing more it seems.
Posted 9/21/2019 8:25 PM (GMT 0)

Suzee said...
Ok, so they have been a crutch along the way really and nothing more it seems.

No, they have done a lot of good things and made me improve.
It was 2 months since my last meeting and since then I started doing fasting, taking quercitin for MCAS and started with DNRS: You have to be active yourself also to find ways to improve.
Posted 9/21/2019 8:27 PM (GMT 0)
JovaLyme it is disgusting and despicable and I am terrified all the time at the moment. My daughter mentioned that the other day, she did actually say 'God Mum what on earth is the matter you look permanently terrified' and I replied but I am, that is just how I feel and of course no one understands that.
Posted 9/21/2019 8:49 PM (GMT 0)
JovaLyme we have had so many happy occasions as a family in the last 6 weeks but I am permanently switched to fear mode and I can't enjoy anything any more. Have had a week off work and should return Monday 23rd but really not sure I can as had no rest at all and feel even more on high alert,
Posted 9/22/2019 7:05 AM (GMT 0)
Thanks JovaLyme, let me now how you get on with the Jernigan protocol.
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