Questions to Disulfiram

Hi all,

my regular familydoctor is very open for discussion in regards of new treatments for Lyme disease. And I have been to many so called LLMD's here, who have only turned me down for several years. But he wants to be assured that the risks/side effects involved is low enough before he prescribes it. I sent him a couple of youtube videos/interviews from Dr. Liegner plus some files from the files section from the "Disulfiram for Lyme Support Group (Antabuse)" facebook group.

He thinks this is very interesting, and I just got an email from him saying that there is still very little documentation of this medication, and that the number of patients who have had serious psychological side effects is too high for this to be described as harmless. Therefore he won't prescribe it for now...

There are quite a few success stories on the facebook page, so I really wanna try it.

Is it really this good, or is it too early to tell?

Anyone here using it with success?

Have any of you guys heard of any patients getting serious psychological issues using Disulfiram?

Also, what other doctors can prescribe it? We don't have any trained LLMD's in Norway that i'm aware of and I can't afford to go abroad again. I used to have an LLMD in Germany, but he does not use it in his protocols. And I guess i'm too scared to do it by myself.

Thanks!

Tommy

JovaLyme said...
I had exactly the same response from my doctor when I asked for Disulfiram. I don't think it's approved for treating Lyme anywhere as of yet, so a regular doctor is highly unlikely to prescribe it for anything other than its original use as a medication to treat chronic alcoholism.

There are clinical trials being done, but I don't think those are ending until 2021. I'm sure someone will pick me up on that if I'm wrong. I know Charlie55 has taken it and maybe a couple of others.

There is one documented case of a guy needing treatment for psychological issues during his treatment, but he claims it was unrelated and I think this is also the guy who reached full remission in just 4 months.

If you really do want it, you can buy it through All Day Chemist and another whose name escapes me at the moment. It's incredibly inexpensive as well. You can refer to information from at least two US LLMDs who have used it for dosing instructions. The general consensus seems to be starting on a low dose of 125mg or half that and working your way up to 500mg per day if you can tolerate it. I'm sure someone will correct me if I am wrong.

Thanks a lot for your reply. I will check into All Day Chemist as well to see if they ship to Norway. Maybe i'll wait a while to see how more people are doing, and go the herbal route meanwhile.

JovaLyme said...
I'm intrigued by this Facebook group.

I don't use social media anymore, so I don't know much about people's personal experiences with disulfiram.

What is the general consensus on there? Is there much in the way of success stories on there? At the moment, all I have to rely on is testimony from a small number of doctors and studies, which are few and far between.

I'm not going to join Facebook again and have my privacy invaded on quite that scale just to find out about Disulfiram.

No, there is a lack of success stories, but it is still very early. I am probably one of the first people on that FB to begin therapy (July 2). I started at 500mg. I had to take a break at 45 days due to toxicity issues. I continued treatment after the break at 375mg. This stuff will make you herx hard. I've never herxed so bad. However, I am still very sick. Hard to tell whether it will have any long term positive benefits yet. I do have Bartonella. It is unknown if it helps Bart or not.

I haven't seen any horror stories on the FB group regarding the liver yet. That's a good sign. There are real concerns about neuropathy and psychosis.

JovaLyme said...
I had exactly the same response from my doctor when I asked for Disulfiram. I don't think it's approved for treating Lyme anywhere as of yet, so a regular doctor is highly unlikely to prescribe it for anything other than its original use as a medication to treat chronic alcoholism.

There are clinical trials being done, but I don't think those are ending until 2021. I'm sure someone will pick me up on that if I'm wrong. I know Charlie55 has taken it and maybe a couple of others.

There is one documented case of a guy needing treatment for psychological issues during his treatment, but he claims it was unrelated and I think this is also the guy who reached full remission in just 4 months.

If you really do want it, you can buy it through All Day Chemist and another whose name escapes me at the moment. It's incredibly inexpensive as well. You can refer to information from at least two US LLMDs who have used it for dosing instructions. The general consensus seems to be starting on a low dose of 125mg or half that and working your way up to 500mg per day if you can tolerate it. I'm sure someone will correct me if I am wrong.

is taking it with good results so far - there’s a thread dedicated to it

The disulfiram on AllDayChemist shows it to be 17 cents a pill

https://www.alldaychemist.com/catalogsearch/result/?q=disulfiram

Sebreg and a few others are taking it. There’s a thread dedicated to it - may be on page 2 - I can’t look now - I’m in a car typing in my phone...