Visible Pulsating

Hey everyone,

I had this problem on and off for a long time. I can feel and see my pulse everywhere - I lay down and I actually see my stomach jumping up and down, it's actually scary. If I lay on my side I can hear my heart beat in my ears. In the mirror I clearly see my pulse on my neck. I have a constant sensation of pounding in my chest, even when falling asleep or waking up. Sometimes I feel it in my head, along with pressure, as if someone is trying to crush both of my jaw joints together. This also comes with tremors that are barely noticeable. I get poor circulation in my limbs with that too, I sleep but my arms just get 'frozen' which ever way I lay.

It kind of comes randomly (as everything in my case) and then goes away after days and days, or just diminishes to the point where it's not that significant, but then comes back out of nowhere, not related to the treatment. After I realized I had mold exposure in the house, I figured anything can be linked to that, and many things are. But I am currently not being exposed to it, and this thing is back again.
Is this a cytokine storm, perhaps something to calm the cytokines could help, like turmeric?

Could be babesia, it has like 6 week cycle or something like that? I'll write down the dates now, just to be able to check when it happens next time. I'll add A BAB back in.

Does anybody else have this crazy whole body visible pulsating? Sometimes even my vision is pulsating along, I can feel it in my face or inside my mouth. My blood pressure is fine, I've done all the heart tests, my pulse was fine last time I saw a doctor and had similar concerns, I also did an ultrasound scan of abdomen in case it's abdominal aorta, everything is fine. Of course my heart rate does go up with any physical effort. Is this just too many neuro toxins in the body?

Post Edited (Zimica) : 2/27/2019 11:06:09 AM (GMT-7)

Thanks Girlie.
I thought this was more common as a symptom. I have no clue what's this linked to..

I think seeing your pulse in your neck is normal if you're lean. That's where the carotid is. All the other stuff though is definitely not normal. It sounds like lyme.

Seeing your pulse in your belly is also normal if you are lean. There’s a huge artery that runs right along there. But the pounding feeling of your heart beating harder than usual isn’t uncommon. It can be caused by dehydration, fatigue, overexertion, a flare up of an infection, herxing. Basically, any of the things that can ramp up our autonomic system. I think most of us with Lyme have some level of dysautonomia. Gentle movement, hydration, and lots of salt are the best remedies for it. When my heart gets funky like that I just take it easy. I get lots of palpitations too which drive me nuts when that acts up.

I haven't been able to see it, but I used to feel my pulse throughout my body, including disturbing my vision with that rhythm. That went away as I treated babesia and Lyme. How/what are you treating? You may also need to get rid of the mold even though exposure may be over. Have you used any binders etc. for that?

Hi Zimica, Do you still have annoying visible pulsation? I'm dealing with same symptom for a longer time and wondering if you found ways to treat it (and if you figured out what it's related to). Thanks

Hi Girlie,

Thank you, I'm following this group for a while and you guys rock! I was diagnosed in early 2017 with Lyme/ Bart and treating it since then. I'm seeing a LLMD in LA.

Hi Alex, welcome to the forum!
Yes, it took me a long time to figure it out (and I did thanks to the forum), it's mast cell activation syndrome or MCAS that you probably read about here on the forum, there are many great posts and links about it. In my case mold toxicity was causing it, but any of these infections that cause toxicity in the body can cause it. Then there are foods or supplements that exacerbate it. Watch for reactions after you eat, there are high and low histamine foods.

What helped me was getting out of mold, and taking freeze dried stinging nettles and quercetin & bromelain to calm the mast cells.

I still sometimes get pulsing in my ears or when I lay down I feel like my heart beats a bit stronger, like after a light exercise, but it's all much better than before, and it's usually due to exposure or when I eat junk (gluten, sugar).

Also, are you detoxing? It is very important, maybe try some binders but go slow.

Hi,

I have this symptoms contsantly, I can see my pulse, in my neck, chest, abdomen, groin, feet. Nothing seems to sooth it atm, it is 24/7. I also have a constant state of altered visual perception, this is hard to describe but just not how my vision used to be, almost like a really bad hangover. Headaches and just generally feeling run down.

I have been diagnosed with Anaplasmosis after 17 months of thinking I was going insane. I’ve been trying electrolytes which do not seem to help the pulse stuff. All Doctors, including two cardiologists have assured me that my heart is operations brilliantly, I think it may be autonomic or maybe blood thickness like you say. Salt has not improved it however.

I am currently on Doxycycline 200mg!!!

I have had this ever since I could remember.

I was deployed to Iraq in 2003-2004. During that time I slept on a cot inside a huge tent. I had a couple wooden rods standing up connected to my cot and would drape my bdu top (uniform top) on it when I'd go to sleep. No lie, my heartbeat would vibrate the rods and visibly vibrate my top. I just figured I had a strong heart.

JovaLyme said...

Hoagie said...
I have had this ever since I could remember.

I was deployed to Iraq in 2003-2004. During that time I slept on a cot inside a huge tent. I had a couple wooden rods standing up connected to my cot and would drape my bdu top (uniform top) on it when I'd go to sleep. No lie, my heartbeat would vibrate the rods and visibly vibrate my top. I just figured I had a strong heart.

You didn't serve in the first Gulf War by any chance did you?

No. Luckily missed that one.