Successful Disulfiram cases

oregonhay said...
hi. I took DSF for 4-5 weeks started at 50-60mg and stopped at 250mg but not because it wasn't working, because I started a job. it has been two weeks plus a few days off it and I've felt great. I am started at 50-60mg everyday indefinitely again. I have been symptom free from just my initial try, and eventually want to get back up to 250+ dosage.

That’s great - please keep us updated !!

Most folks were avoiding any that had alcohol. I stopped all tinctures and powders.

Have you looked into powders instead?

Inspiredby3: I stopped all tinctures and powdered herbs a few days ago because of uncertainty around drug interactions. Herbs containing polyphenols *could be* contributing to the neuropathy that is being reported by some patients... especially EGCG (green tea extract).

Jova: Supplementing glutathione may affect DSF action on borellia. I don't know how, but it's something I picked up from the FB group (I have been taking notes). I believe NAC is a precursor to glutathione so it could be a problem as well.

I will be taking l-oranthine, taurine, and milk thistle daily as supportive supplements. Also continuing combo of l-arginine and citrulline (not in relation to DSF)

For detoxing, or as needed I will have Dihydromycetin, Alka Seltzer Gold, and Epsom salt (baths).

Ok. It's the drug itself that can cause liver problems in some patients though. If you watch/rewatch the video interview with Dr Leigner, he talks about his prescribed schedule for labs and other ways of monitoring liver and kidney function through treatment.

You know how the Co2 the world is emitting now won't have its full effect on our planet for years down the road? Disulfiram has such a long half life, even if you notice a problem and stop the drug, the problem can still get worse before it gets better.

I don't know if this would be of help to you in the UK, but perhaps there is a similar service available to you. Check out requestatest.com

Post Edited (potsnpans) : 10/12/2019 12:49:37 PM (GMT-6)

JovaLyme said...

Girlie said...
Make a chart for the days of the week and write down am and pm with the dose you’re going to take - then tick it with a red pen when you take it.

That’s what I do - but it’s not infallible with lyme brain - as I’ll see one of the meds not ticked off sometimes and then will be thinking “didn’t I take it? - Did I forget to tick it off?”
Sometimes my husband will confirm I did take it.
Other times if I’m not sure - I don’t take it - as I do not want a double dose.

Some people have an App on their phone that will alert them it’s time to take the meds.

Thanks Girlie,

This is all stuff I keep thinking I am going to do. Make lists, write down my protocol etc etc. And then as soon as I think that thought it's gone again in a split second and I forget completely. I sometimes have to get my wife to read out some of my posts on here and if I write letters just to double check what I've written in case I've put something down wrong or if it sounds bad or offensive in some way.

It's partly the Lyme and also partly because I had multiple personality disorder and if I "switched" I wouldn't have a clue what I'd done. The amount of times I would buy a pair of shoes and then buy another pair not realising that I'd already bought some beggars belief. I was always doing it. Coming home to find clothes I had no memory of buying and never wearing them because they weren't my taste. It's a bit of a nightmare. I'm sort of cured of that now but the Lyme brain thing kind of effects me in the same way. This is a bit of a double whammy!

I will buy some Disulfiram and then come up with a protocol. I think I wrote some things down somewhere already - it's just a matter of finding it! I really need to get my wife more involved in all this, but she is run ragged as it is working all the hours God sends and having to look after our little boy, cook, clean, try and help me. She's cracking under all the pressure too. I feel absolutely useless.

I'm sure you can relate to all this - apart from the multiple personality disorder obviously!

Hi Jova!!!

I was wondering where you would buy the disulfiram from because I was thinking of doing the exact same thing but don’t want to get a prescription!! Please let me know if you have any ideas!

JovaLyme said...
Yeah, I genuinely believe God has looked after me. I can only put it down to Him because I really shouldn't still be here to be honest.

Oh, THE Dr. J? You're in good hands.

Have you tried the full-on liver/gall bladder cleanse? It's been posted on here somewhere. It's intense, but if you're going to do disulfiram, you really should make sure your liver is in good shape before hand. It works really well.

Will Dr. J not prescribe you disulfiram?

Truthfully...I’m too scared to ask him!! I will do a very big cleanse before disulfiram. Dr. J is wonderful and brilliant but definitely pushing IV at this point and I don’t know if he’d prescribe disulfiram before I take IV.

My liver is inflamed and truthfully it’s because his protocols are very strong and I just need it to calm down for a little. My mom has been on disulfiram for alcoholism and I mean she was in her 60s and drank her entire life. I guarantee she had liver damage so I think I will be fine taking the drug. I will notice and stop it if I have side effects!