Changing LLMD

I've been seeing the same NPLLMD for almost two years, but I'm thinking it may be time to move on to a new doc to get some new ideas and approaches. I like my doctor, but I sure wish I was making more progress. I'm wondering if you would look at where I've been and where I am now, and give me an idea as to whether you think this is progress. I feel like I'm this far in, my doc knows where I've been and where I am now, and changing docs could be a setback while they try to figure out where to go next. But, maybe not. Have any of you switched docs and had better luck with someone new?

I made some progress, early on, but I don't think much has changed for at least a year. Overall, my list of symptoms has decreased, but I'm still not feeling great. Current symptoms include (starting with most annoying): Internal vibrations, head and sinus pressure, tightness in neck/throat area, tinnitus, few events of heart skipping a beat, strong heartbeat, air hunger, muscle twitches and skin crawls. I'm wondering if maybe I should be treated for Babs.


Lyme Tests
4/9/18 - C6 Peptide was High @ 1.86 LI (1.10 LI > Positive antibody to B. Burgdorferi)

4/13/18 DNA Connexions showed Bartonella baciliformis (I was told this is a uncommon bartonella)

3/12/19 - C6 Peptide was Higher than first time @ 2.82 (1.10 LI > Positive antibody to B. Burgdorferi)

April 4, 2019 - Arminlabs (0-1 = negative, 2-3 = weak positive, >3 = positive)
*Borrelia b. Full Antigen - 3SI
*Borrelia b. OSP-Mix - 2SI
*Borrelia burgdorferi LFA-1 - 1SI

4/29/19 Galaxy Diagnostics Bart test - None Detected

7/6/19 - Great Plains GPL-Mycotox test (three out of 11 markers showed low positive results)
*Ochratoxin A - 8.2 (4-20 positive)
*Mycophenolic Acid 7.03 (5-50 positive)
*Citrinin - slightly over 10 (10-50 positive)

November 14, 2019 - Arminlabs (0-1 = negative, 2-3 = weak positive, >3 = positive)
*Borrelia b. Full Antigen - 0SI
*Borrelia b. OSP-Mix - 3SI
*Borrelia burgdorferi LFA-1 - 0SI

It appears that I'm making progress with the two new "0" readings through Arminlabs, but why would the OSP-Mix increase when the other two readings went down? Since April 2018, I've taken Doxy, Amoxicillan, Axithromycin, Rifampin (messed with my thyroid meds) , Biaxin, Plawuinil, Tinidizole, Defdinir, Sulfamethozazole, Lumbrokinase, Samento, Banderol, A-Bart, Sida Acuta, DMSA, Tumero-X, Mineral Complex, Liposomal Glutathione,, bicillin shots, LDI, LL-37 Peptide shots, and Thymosin peptide shots. NCS Nasal Spray, Cholestryramine for the mold issues.

I also had a Brain MRI - Normal

Any thoughts, ideas and/or suggestions would be appreciated.

G-Ju

I changed doctors after about 1 1/2 years of treatment because the LLND couldn’t prescribe antimalarials to treat Babesia.I was treated for lyme/Bartonella.
I had improved but felt Babesia May be in the way of my healing

I took another year off and self treated and then went to a LLMD.
He treated me for Babesia, lyme and then Bartonella.
I made more improvements and have only a few daily symptoms left with a few more random ones (except when I herx - I still suffer on that day)

HI Girlie,

Thank you for responding. I, too, feel like I'm tested out. And, it's very expensive! Ugh! I think I will suggest babs and see what the doc says. I see her on Dec 5th. I'm also having a total hip replacement on the 11th, (Another ugh!) so hopefully I'll have a new plan in place by then. If we don't move in a different direction, I think I'll be changing docs after the first of the year.

Thanks again!