Disulfiram - Part 12

Brab8878 - DSF is a very effective anti parasitic and babesia is a parasite. It should work for babesia. One study showed it killed malaria which is very similar to babesia.

Hey all, update. Almost 3 weeks back from starting at 125, now at 250.

I feel so much better. Obviously not perfect yet, but the changes are there. Less brain fog, less dizziness, less head pressure, less anxiety when being out and about, little to no twitching (still happens here and there but discernible difference), no joint pain, little to no joint cracking.

It is mainly the photophobia which is less but still there, and still a tad bit head pressure which are still the most bothersome but still a huge difference. I plan to finish by end of Jan (I was on and off since Mid Sep so I don't think I need to go much longer than that). The DSF also is best after you get off it, so just excited at when I am fully off in a few weeks. Going to add 62.5 in a week or so and I split them up throughout the day. Little to no herx on this amount because again, low and slow and my body has built a tolerance. Fatigue is less, sleeping better (almost off my sleep meds), and eating better.

In a few weeks who knows where I will be.

Everyone who is skeptical, everyone who is afraid because of bad results, I was going to not write here because honestly gives me a bit of anxiety seeing the negative posts, but if I can even help one person, it is worth it. This works, it just takes time, and it takes patience, and it takes a lot of discipline in that you should not increase your dose until your body is ready. Some people are taking 50mg every three days, so yes, some people may require a very very low dose, and that doesn't mean you are moving any slower, it could just mean lower dose my be better for you. I am a big guy (6'1; 190), so for me 375 might be the final dose, but if you're closer to 100, 250 might be your best dose. This isn't a competition.

Some people have gone on for a week or two and stopped, yes, that will not do anything. If you have neuropathy, then you need to lower your dose even further. If you have bart, then I am hearing that the symptoms of that may be coming out, so yes, might be tougher with that, but for the other two B's it def works.

God bless you guys, I am here for you, even when I am god willing better, I am here to answer questions. Jova if you're still reading, I want you to be better too and I hope you give it a try again.

Disulfiram - Attempt 2 Log - RainyCloud

Day 1 | December 19: 62.5 mg

it's been a while since I updated but this is where my son is up to:
He is now on day 31
Days 1-14 100mg every other day with no issues.
Day 15 - current 100mg daily. The first week of that had no issues, The second week he experienced extreme fatigue and generally feeling dreadful for several days, crashing for a few hours every few days and fairly low mood. He was due to increase to 150 mg on day 30 but following discussion with LLMD this seems to have induced a herx reaction - his first real herx since the summer - so we are keeping at 100mg a day for the moment. He's been on triple antibiotics since May 2019 - so the disulfiram appears to be doing something, and we have since removed one of the antibiotics.
Lately we have noticed that some of the streaks on his arms and abdomen (we suspect these are bartonella related as he hasn't gained significant amounts of weight) have faded - most noticeably those on his arm.
He has also this week been experiencing some of the very early symptoms of his lyme (those he experienced just around the time of his EM rash and before confirmed ELISA/Western blot positive lyme test - such as stiff neck, back pain, leg ache) so we think that the disulfiram is clearly stirring up something.
He has his routine blood monitored regularly and we plan on only making changes to his dosage (up or down) on the basis of this routine blood work - it isn't a race to get to a high dose as far as we can see, rather an individualised approach monitoring how he reacts each day. I keep a daily log of any symptoms he reports to share with his LLMD.

I'm so sorry to hear that some have had such a rough ride with this - my take on this is that there is certainly not a once size fits all approach to this drug. I have no crystal ball so cannot be sure that things will stay on this trajectory, but do feel that during his herx last week he has managed to kill of a significant number of pathogens and while I certainly do not want him to be feeling rough (what kind of mother would that make me) I do feel a little sense of glee to think that he might be winning at last one or two of the internal battles that are raging in his body at the moment.

I'll be rooting for you Cignet regardless of what treatment you choose.

Hey everyone - it would be great to get an update from all those on the Disulfiram.
I've lost track of who is still taking it....and who started, but ended up stopping (like Jova) due to bad reaction/herxing.


Who is currently taking it? How are you doing so far?

Cignet , can you speak to a doctor or go to a near hospital? Just get some Doctor advice at least so you can feel more reassured.

🔹RainyCloud,

I'm really touched and humbled by your kindness Rainy. Considering what you've gone through recently, that would probably go way further than you think. I do have paypal. I'll email you.

Thank you so much. I pray we all get better soon. I hope you fare better than I have on the disulfiram.

We all deserve so much better than this, and some day soon, we will get our wish.

Girlie I'm back on Disulfiram.

This time without turmeric and it sucks.

I just can't afford the ridiculous amounts of turmeric needed to keep the inflammation down.

But there is a lesson to be learned here: turmeric is a God send for disulfiram treatment.

I've been on 62.5 for several days now.

I will post my log when I find my new phone, it's somewhere in my room.

🔹RainyCloud said...
Anyone else on disulfiram having burping, gas, diarrhea, frequent urination, etc?

Yes, all of that.

Depakote made me herx, but didn't cause nearly as much urination and gas. I think it's the disulfiram.

How is everyone doing?

I stopped on 1/1/20 I took for 3 months. Got up to 185mg every other day with 125mg on the other day. I do feel better then when I started but not better by any means. The medication just generally made me feel like crap time will tell if I keep improving.