Not because she doesnt want to be best friends with me, because of the way she responded. She doesnt owe me anything, but there's such a thing as common decency, especially when you're sick yourself.
First off, this was before her big atlantic article came out.
She had written another big article previously, this one:
https://www.newyorker.com/magazine/2013/08/26/whats-wrong-with-me
If you read it, the take away is that you cant get better, and just learn to live with it.
So I wrote her a very friendly message saying two things: 1.) I do think there are ways you can get better, dont give up, here are some things you can do, yada yada. 2.) I noticed you mentioned you were trying IVIG. I'm really sick and a bit afraid and I'm just starting IVIG, I was wondering if it helped you and what I could expect?
This was before I had found message boards or FB groups, she was like the first person I reached out to.
She responded literally with "If you want to see how IVIG helped me, buy my book when it comes out". So yes, that does make her a POS. She pretends to be "helping people", yet she's out there to make money and capitalize on it just like everyone else. Couldnt even lend a few words of encouragement or give me a few pointers, more concerned w/ her $13.99 book fee.
In addition, if your message is "you cant get better learn to live with it", then keep your opinion to yourself. Like I said this was one of the first articles I read as i started to learn about
my disease, and it really really made me feel hopeless.
"You can’t muscle your way through the enervation and malaise of autoimmunity—if you could, I would have. The real coming to terms with autoimmune disease is recognizing that you are sick, that the sickness will come and go, and that it is often not the kind of sick you can conquer. " At least it does seem like she's changed her tune since then.
Post Edited (dcd2103) : 1/16/2020 12:04:01 PM (GMT-7)