ASEA

Anyone used this product with success lately? When I do a search I only find older articles. Seem to have a lot of bad reviews, just thought i'd ask if anyone recently tried it with success.

I have lyme, bartonella, babesia, hashimotos and just recently developed neuropathy.

Thanks.

Hey man not to beat a dead horse, but did you look into SFN? Dont want to see you wait on it and it gets worse. Particularly if you have hashimotos. Right there it's showing autoimmunity.

dcd2103 said...
Hey man not to beat a dead horse, but did you look into SFN? Dont want to see you wait on it and it gets worse. Particularly if you have hashimotos. Right there it's showing autoimmunity.

Not yet, but I will. My doc referred me to my local hospital yesterday. I really hope it won't take long for an appontment. I also looked into private practices in my country, noone is doing the test. So I have to go to my public hospital. Guess they will do a biopsi, and also there is something called a thermo test?

My ANA test were negative maybe 6 months ago, but yes I have Hashimotos. Any advice on how to improve my neuropathy with supplements perhaps? Herbs?

I havent been able to make much progress with the herbs. Nothing seems to touch it, only thing thats helped is diet. By reducing hte inflammation that I eat its helped greatly. AIP diet is whats called for, but i found it too rigid so im doing paleo.

IVIG will help for sure assuming its SFN and autoimmune. Typical SSRIs like zoloft wont help, but Cymbalta may. Gabapentin and lyrica are also often used w/ some success. What country are you in?

This area is still new, and I can only tell you what a GOOD dr will do here. Norway might be a different story.

But here, they will look for signs of autoimmunity. That usually means ANA, complete blood count, complements, ESR/CRP, antibodies against specific diseases (sjogrens, anti-thyroid and anticardiolipin being the highest correlated). If you already have a diagnosed autoimmune disease it makes it easier. A diagnosed autoimmune disease + positive skin biopsy should be enough for an autoimmune SFN diagnosis. Then they would treat with IVIG and see if you respond. A good trick is to try a methylprednisone pack for a week, and if the nerve pain responds in a meaningful way, its likely autoimmune.

Now since this is all new and there's no standardized protocol yet, they may not do this. But I will tell you this is what Annie Oaklander would do. You can read about how she selected patients for her "Apparently Autoimmune Small Fiber Neuropathy" study. Its based on a positive punch biopsy + either a systemic AI disease like Lupus, an organ specific AI disease like Hashimotos (she mentions specifically), or generic markers of an unspecified connective tissue disease like ANA, complete blood count, complements, ESR/CRP. Again, this is for criteria into her study. This is also what both of my drs used to determine if mine was likely autoimmune. I should also note that Oaklander states that 50% of cases will fall under the idiopathic category, but she believes we will eventually prove that a large portion of those are actually autoimmune.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5791555/