babesia questions

playing off my other thread I want to explore the babesia thing, as this is a possible thing for me.
To recap my symptoms are persistent 100% of the time:
tight squeezing feeilng in my diaphragm chest heart and lungs making me feel I am suffocating, accompanied by a severe bloating that is also a tightness and comes all the time even when I dont eat, sometimes worse than others.

no sweating or chills or fevers or joint aches.

For some reason I ahve not tested for it other than a basic blood test last yr that was not ignenex, I really need to do the igenex babesia blood tests and am not sure why I havent yet but plan to next.

so does this sound like babesia or not? anyone else have similar feelings?
I had low iron a few years back but not now as far as I know though its been 6 months since a blod test, last one was not low iron.

I heard cryptolepsis artemesia and curcumin are soem of the things ppl use to treat babesia. what antibiotics or antimalarials are used?
how accurate are the igenex tests?
Can accupuncture of chinese medicine work on this kind of thing? I know it is a blood virus.
any more info? ugh its been so long I should have figured this out by now, should have gotten the igenex test rather than the other blood tests I did too many of in the last two years that helped not at all.

Last year was doing a bab, artemesia, curcumin, did about a month of cryptolepsis- noo change with any of it.

This does not sound like Babesia to me, especially since all the Babesia treatments you tried had no effect. My money is on nervous system issues. Have you used any Bartonella-specific treatment?

Personally I like the PCR urine test from DNA ConneXions, as it tests for a variety of tick-borne illnesses, and it seems to match well with people's clinical diagnoses, even when their immune systems are weak and not producing antibodies (because it doesn't look for antibodies like other types of testing but rather the bacteria's DNA).

saraeli thanks so much! so not babesia you dont think?
so the PCR urine test from DNA ConneXions I guess I can google that? is it somehting a doctor has to get? and you said I can find out a bunch of co infections testing from just urine? that sounds good to me. how accurate is it ( compared to igenex and compared to blood tests).
Yeah what I have is WEIRD. I am all over the place trying to figure it out. I know lyme and coinfection symptoms are wierd too and mine dont fit in any box.
maybe nervous system but it is CONSTANT and TIGHT. I guess that could be the nerves like squeezing the muscles but it never lets up for a moment and I would think the nevres would calm down flare up where this is either terrible, severe or code red severe.
ugh
Thanks so much you guys for helping me try to sort this. It is only in lyme disease forums where people brainstorm with me- all other places people say go to the doctor! Because you guys can relate to haivng to figure it out on our own.
it is so uncomfortable in my body I need to fix this.

thanks! I have had a lot of things tested not sure abot those. no low iron currently.
But this is beyond the iron its like an actually gripping squeezing in my chest heart lungs diaphragm ugh absolutely scary. I have an appoitment next month with a pulmonologist bt I dont htink they will help. had a pft and chest x rays already. ugh. its all so hard

p.s. good luck figuring it out! From what I've read, though, Babesia is not a blood virus, but it a protozoan--has some similarities to malaria, and that's why antimalarial abx and herbs work on it. It becomes an intracellular parasite in red blood cells, and I think causes the red blood cells to not carry enough oxygen. Hence, the air-hunger and yawning that can be common symptoms.

Could it be possible that you have a hernia in your diaphragm and it is causing your stomach to bulge up and press on your lungs? Or could you just have a severe case of stomach bloating (is your stomach very bloated?). I don't know. Or you could have inflammation in the muscles around your chest.

If you are going to seek out a new LLMD, I'd hold off on testing for Babesia.

Dr. J. won't require it...and I know others' don't. And if the LLMD wants you to test, he/she most likely has one that they prefer.

If you test negative...it could be a false negative, so a clinical diagnosis would be used anyway.

flowergarden said...
and how long and with what ( sorry have asked this many times in the past) works to treat babesia if I do have it?

Pharmaceuticals - Mepron, Malarone, Coartem, Alinia
(Combined with an antibiotic - eg: minocycline, azithromycin, Ceftin, bactrim ) etc.

Some of the many Herbals: cryptolepis, Artemisinin, Sida Acuta, Biden’s pilosa, alchornea cordifolia

Could it be reflux/GERD?

I have those same symptoms and it is borrelia causing it, believe me when I say that go old school on that with penicillin, cefidinir, mino and you will heal real fast, garlic too. Lauricidin. Do one abx first like pen, then after a month you will have the bac load down add the second and do garlic with it three times a day. Then after three months switch to mino and cefdinir and do for three months you will feel so much better. It worked for my aunt and she told me and now I am doing it and it is working I feel I may heal now.

Take a look at this:
https://suzycohen.com/articles/lyme_babesia_treatment/

Also look at the symptom list further down in the green box

flowergarden said...
playing off my other thread I want to explore the babesia thing, as this is a possible thing for me.
To recap my symptoms are persistent 100% of the time:
tight squeezing feeilng in my diaphragm chest heart and lungs making me feel I am suffocating, accompanied by a severe bloating that is also a tightness and comes all the time even when I dont eat, sometimes worse than others.

no sweating or chills or fevers or joint aches.

For some reason I ahve not tested for it other than a basic blood test last yr that was not ignenex, I really need to do the igenex babesia blood tests and am not sure why I havent yet but plan to next.

so does this sound like babesia or not? anyone else have similar feelings?
I had low iron a few years back but not now as far as I know though its been 6 months since a blod test, last one was not low iron.

I heard cryptolepsis artemesia and curcumin are soem of the things ppl use to treat babesia. what antibiotics or antimalarials are used?
how accurate are the igenex tests?
Can accupuncture of chinese medicine work on this kind of thing? I know it is a blood virus.
any more info? ugh its been so long I should have figured this out by now, should have gotten the igenex test rather than the other blood tests I did too many of in the last two years that helped not at all.

Last year was doing a bab, artemesia, curcumin, did about a month of cryptolepsis- noo change with any of it.

I read an article by one LLMD. I just can’t remember the doctors name. I’ll try to find it. He said a good way to test for babesia is with byron whites A-BAB. They’re supposed to be super strong. Some people can’t tolerate it. He uses it to rule it out since testing is often unreliable. 1-2 drops and slowly increases to see if you get a babs herx. Just an idea but proceed with caution or with your doctor. I’ve never used his formulations. I’ve heard some doctors don’t like it because it can facilitate a big herx, but even if just to see if you have a response to confirm or negate your suspicion .

Have you gotten a good neurological exam? What you are experiencing could also be an MS hug, so I would rule out other conditions as well.

What were you diagnosed clinically? Did you test positive for anything? Of course tests aren’t the most reliable.

flowergarden, how was your visit with the new practitioner? Any progress so far?