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Might be my last hopeful attempt
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Lyme Disease
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Hope.still
Regular Member
Joined : Nov 2019
Posts : 62
Posted 4/24/2020 8:43 PM (GMT 0)
I have a phone appointment coming up with an LLMD or atleast someone that has experience treating Lyme and other problems. Im at point where im ready to try some big stuff and hope my body responds and get better. Ive been going slow and trying things like supplements and detox methods but nothing seems to improve and actually still get worse. I want to switch it up to try bigger and heavier stuff and maybe my body will clear some of it that way and respond better. I do feel like doing this there's a chance I might not come back from it but maybe it will make all the difference in the world. it's something I'm willing to do. I have high tests indicating strep/pandas, hhv6, Marcons, suspect parasites. Have tried binders for mold after remediating with now low ERMI scores but to no effect. Were actually not 100% sure but we highly suspect Lyme and co infections being this sick. So where should I possibly start with this? My gut health is horrible so Im thinking stuff through an IV or port as it will probably be more effective anyways. Possibly Disulfiram? Anything else? I can feel layers of things around my head and face, feelings like throughout the insides of my entire arms are filled with stuff if this helps. The other thing I was considering is going to the Sophia health institute as I think there approach might work for me as I am very complex and am pretty much bed ridden. I don't think I could make it half way across the country plane or car. Is there something that he could prescribe that could almost shut down my nervous system or something so I could feel considerably less pain/sensations so i could possibly make the trip. Regular pain killers or anti anxiety medications have no effect when Ive taken them same with cbd. It would have to be something way more/different.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 4/24/2020 9:14 PM (GMT 0)
Have you tried gabapentine or lyrica for your nerves?
It didn’t work for me but many people get relief with it.
“ LLMD or atleast someone that has experience treating Lyme and other problems.“
I would recommend you see an experienced LLMD who is highly regarded and has lots of experience - since you perhaps have a more complicated case.
You can start another thread - “Looking for LLMD in/near_____”
Members can email you with suggestions/recommendations.
WalkingbyFaith
Veteran Member
Joined : Aug 2017
Posts : 8146
Posted 4/25/2020 4:11 AM (GMT 0)
Hope still,
So sorry for the difficulty you’re having. I, too, have mold and have had a difficult time getting any real breakthrough. Anti-fungals (Nystatin and Fluconazole) helped me. I wish I had done that sooner. TUDCA Plus also helped me.
It’s very difficult to pinpoint the most important infection or dysfunction to treat. I haven’t figured mine out yet, even after almost 3 years. I basically just tried to address everything.
dcd2103
Veteran Member
Joined : Nov 2019
Posts : 2422
Posted 4/25/2020 5:14 PM (GMT 0)
Did you try Xanax?
Hope.still
Regular Member
Joined : Nov 2019
Posts : 62
Posted 4/25/2020 5:29 PM (GMT 0)
Tried Xanax and Gabapentin to no effect.
Hoagie
Veteran Member
Joined : Jul 2017
Posts : 1084
Posted 4/25/2020 6:35 PM (GMT 0)
https://www.pollenpeddlers.com/bvt-success-stories#/
There will be another live success stort/Q&A today at 4pm EST.
Girlie
Forum Moderator
Joined : May 2014
Posts : 48365
Posted 4/25/2020 7:51 PM (GMT 0)
Hope.still said...
Tried Xanax and Gabapentin to no effect.
Lyrica?
Hope.still
Regular Member
Joined : Nov 2019
Posts : 62
Posted 4/25/2020 7:56 PM (GMT 0)
I haven't
magoo2
Veteran Member
Joined : Mar 2015
Posts : 1667
Posted 4/25/2020 10:53 PM (GMT 0)
Have you been checked by a biological dds?
Do you have dental work?
Where your wisdom teeth removed by a conventional dds?
My strongest medicine was dental-if you havent been checked you should
dcd2103
Veteran Member
Joined : Nov 2019
Posts : 2422
Posted 4/25/2020 10:56 PM (GMT 0)
Cavitations root canals or amalgams? Which was your poison magoo?
Hope.still
Regular Member
Joined : Nov 2019
Posts : 62
Posted 4/25/2020 11:08 PM (GMT 0)
I have had amalgams taken out but can't remember all other dental stuff. Everything dental in my life was done conventionally except when they were taken out.
dcd2103
Veteran Member
Joined : Nov 2019
Posts : 2422
Posted 4/26/2020 12:33 AM (GMT 0)
Did you get worse after having yours removed?
Hope.still
Regular Member
Joined : Nov 2019
Posts : 62
Posted 4/26/2020 12:40 AM (GMT 0)
Somewhat in a sense but I don't think it's the reason. I was already heading downhill fast. Couldn't work, drive, move in with my parents before i did get them out. I just think as time progressed so did my illness. I think metals are part of the puzzle but many other factors as well. It's why i did get them out.
Hope.still
Regular Member
Joined : Nov 2019
Posts : 62
Posted 4/26/2020 5:50 PM (GMT 0)
I'm sure the doctor i'm seeing will have recommendations and will prescribe what he thinks best but he does listen and takes your considerations and options you think might be best. Many here have just as much knowledge as many practitioners though (if not more). What antibiotics/prescript
ions should i start with possibly plus doses? Looking to do iv or injection of some kind as my gut is so off. Ones that have an affinity for the brain/blood brain barrier since that's where a lot of my sensations are? Co Infections first? Address them all at the same time? ABX combinations? This is my first time using abx or other prescript
ions like disulfiram if that's on the table.
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