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Posted 5/15/2020 3:35 PM (GMT 0)
Just got a call from my doctor and she said my results came back high for Ochratoxin A and wants me to start testing my home, car, work, etc for mold.

Does anyone know what kind of symptoms this would cause? Would this truly cause all my current symptoms, brain fog, headaches, fatigue, etc?

What's the best way to detox this specific mold?
Posted 5/15/2020 3:52 PM (GMT 0)
My home tested ok for mold spores. My high test results for ochratoxin A from GP is likely from food.

I use activated charcoal, garlicin and chlorella.

My VCS eye test went to normal after on those supps for a couple months.
Posted 5/15/2020 4:01 PM (GMT 0)
What were your symptoms and did they improve on the supplements?
Posted 5/16/2020 12:34 AM (GMT 0)
The king mold detoxer is cholestryramine

https://www.survivingmold.com/treatment

okra powder is natural alternative
Posted 5/16/2020 1:56 AM (GMT 0)
Here's a recent thread about ochratoxin A with a few ideas for you.
https://www.healingwell.com/community/default.aspx?f=30&m=4199715&g=4199725#m4199725

Pick up Neil Nathan's book Toxic if you have not read it yet.

Good luck!
Posted 5/16/2020 2:15 AM (GMT 0)
I had that one too on Great Plains as well as mycophenolic acid. What was your ochratoxin level?

My results included this about ochratoxin:

Ochratoxin: Ochratoxin A (OTA) is a nephrotoxic, immunotoxic, and carcinogenic mycotoxin. This chemical is produced by molds in the Aspergillus and Penicillium families. Exposure is done primarily through water damaged buildings. Minimal exposure can occur through contaminated foods such as cereals, grape juices, dairy, spices, wine, dried vine fruit, and coffee. Exposure to OTA can also come from inhalation exposure in water-damaged buildings. OTA can lead to kidney disease and adverse neurological effects. Studies have shown that OTA can lead to significant oxidative damage to multiple brain regions and is highly nephrotoxic. Dopamine levels in the brain of mice have been shown to be decreased after exposure to OTA. Some studies have hypothesized that OTA may contribute to the development of neurodegenerative diseases such as Alzheimer’s and Parkinson’s. Treatment should be aimed at removing the source of exposure. Agents such as oral cholestyramine, charcoal, and phenylalanine can help prevent the absorption of these toxins from food. Antioxidants such as vitamins A, E, C, NAC, rosmarinic acid, and liposomal glutathione alone or in combination have been shown to mitigate the oxidative effects of the toxin. Bentonite or zeolite clay is reported to reduce the absorption of multiple mycotoxins found in food, including OTA. Studies have also shown that OTA is present in sweat, which supports the use of sauna as a treatment to increase the excretion of OTA. (PMID 17195275, 16621780, 16293235, 27521635, 22069626, 24792326, 22253638, 16140385, 2467220, 16844142, 19148691, 22069658, 16019795, 18286403, 15781206, 11439224, 17092826, 32710148)
Posted 5/16/2020 1:46 PM (GMT 0)
My ochratoxin A result was 29, without any sort of preparation before the test (I know many will use glutathione, a sauna, etc. to make sure there's lots of stuff in their urine sample). My LLMDs said that some elevation is possible from food, but not that much. There's not a definitive cut-off there, of course, and you still can react to molds in foods, but I think it's still important to test your living spaces and consider replacing suspicious items - mattress, used or old furniture, etc.
Posted 5/16/2020 1:54 PM (GMT 0)
Yes, and I only eat two of the food sources listed in my post. Dairy & coffee. The coffee I drink is bulletproof or purity which is tested for mold so good there. Dairy would be only source.
Posted 5/16/2020 2:08 PM (GMT 0)
Peanuts (especially fragments of nuts and peanut butter) is very high in molds, as well as many grains, especially if you eat organic food that has not been treated with fungicide. Odd that those are not on the list from Great Plains.
Posted 5/16/2020 3:44 PM (GMT 0)
WhT are your symptoms? Did anyone get better. I have that also at 15 have brain fog.
Major depression feeling like loosing my mind
Getting worse daily.

Do mold symptoms have a pattern

All day everyday
In morning then go away
Only in environment

Mine are worse mornings upon waking g and now lasting thru first part of day.

Need help figuring out ifmold is my big problem before I spend thousands on LLMD

Post Edited (Lightlife) : 5/16/2020 9:50:34 AM (GMT-6)

Posted 5/17/2020 12:02 AM (GMT 0)
Nic - I don't know your full situation, but have you tried all of the "low-hanging fruit" in terms of general diet, etc. already?

I had fatigue, brainfog, headaches, etc. years ago pre-Lyme, and it turned out to be a pretty strong gluten intolerance. Off gluten for 48-72 hours and I felt a world of difference. After awhile I realized I needed to give up casein (dairy) as well. I probably developed these intolerances due to candida/leaky gut.

Just my $0.02, but I would try eating "clean" (no wheat/gluten, dairy, sugar or common allergens) for a week or so and see if it helps, if you haven't done so already.

Getting into mold remediation stuff can be very expensive and life-disrupting and I would see that as a last resort if it is truly isolated as the cause.
Posted 5/17/2020 12:35 AM (GMT 0)
Nic,

I have always thought your symptoms sounded like possible mold. Glad you’re finally looking into this. Do the Mycometrics dust cloth test. Do one on your house and one on your office or wherever else you spend a lot of time.

For what it’s worth, I have done 6 ERMI tests and 3 mycotoxin tests and the mycotoxin test results have always reflected the exposures found on the ERMI. My personal opinion of those who think food is their source of exposure as opposed to the environment is that they are likely missing something.
Posted 5/17/2020 10:58 PM (GMT 0)
Thanks everyone!! I don't know what my level is yet because I haven't seen the results first hand.

WalkingbyFaith - Yes! I know you have mentioned mold several times to me! My doctor is going to call me back to disucss what kind of home/office testing she wants me to do, but that Mycometric sounds awesome. Seems really affordable.

Does anyone know how well CSM works for symptoms? Has it dramatically helped anyone's brain fog our fatigue? I'm hoping it's something my doctor puts me on right away, but I have a feeling she will want to try to pin point where this is coming from first.

Also - I believe 3 years ago I was living in an apartment that had water damage and am wondering if I could still test positive after all this time? That is when I got so terribly sick that I could barely function. Since moving out I have slowly been getting better and I mean slowly... symptoms are gradually lessening but I still struggle some days.
Posted 5/18/2020 1:19 PM (GMT 0)
I feel like the article below is a good article on mold illness and treatment. It keeps it simple and isn't overwhelming. The basic steps are:

-Remediate and get rid of mold in their environment or encourage them to move.
-Use mycotoxin binders.
-Treat the patient for mold colonization in their body.

The treatment order of operations is:
- Deal with the environment that is causing the problem first. This isn’t usually a quick fix, but a process that can take time.
- Begin binder treatment at the same time.
- If minimal or no response, treat for colonization.

The article goes into a little more detail on each step. Headache, fatigue and cognitive changes are specifically listed in symptoms.

https://drruscio.com/treatment-of-mold-toxicity/?fbclid=iwar231ezwnq27rtq8i9jyk2nzepwehptlc69so3nyutuuhaas1zebzhgqluo

Post Edited (k07) : 5/18/2020 7:23:41 AM (GMT-6)

Posted 5/20/2020 4:00 PM (GMT 0)
Nic,

Everything I have read and was told about CIRS from water damaged buildings is that once the CIRS is triggered, the person continues to be ill until successfully treated, even if the triggering exposure was in the past.

I was given regular CSM in the beginning and couldn’t tolerate it. I ramped up too fast. Pure CSM is best, as it doesn’t have the toxic additives in it. Start very slowly. It has a domino effect. It causes your body to “dump” toxins, and you may have herx like reactions to the toxins as they get dumped. With each dose, the dumping continues. I would start with very small doses for a week or longer to see how it makes you feel.
Posted 6/20/2020 5:38 AM (GMT 0)
Nic,

Just came across this post again tonight. How are you doing? Did you do any ERMI or HERTSMI-2 tests to find out where you’re being exposed to mold?
Posted 6/20/2020 4:43 PM (GMT 0)
How long does it take to get results from Great Plains, MycoTOX Profile for mold?
Posted 6/29/2020 12:52 PM (GMT 0)

WalkingbyFaith said...
Nic,

Just came across this post again tonight. How are you doing? Did you do any ERMI or HERTSMI-2 tests to find out where you’re being exposed to mold?

I had a really good 4-6 weeks where i honestly felt about 80-90%. Then, this weekend I suddenly slipped back to 40-50%. My head hurts, I feel light headed, weak legs, etc. I have no idea what caused my sx to come back so quickly and so randomly. Maybe I'm dealing with a bug, but it seems like old sx appearing again.

I haven't done any testing yet, because my next appt. with my doc is next Thursday and she wants to discuss everything at that point..

Wondering if that week of L Glutathione is what improved my sx so much and now the positives are wearing off? I'm going to start it back up this afternoon again.

What are your thoughts?
Posted 7/27/2022 5:00 AM (GMT 0)
Hi all, new here and reading through this thread. I recently had a Great Plains test done and my levels came back for Ochratoxin A at 28.37. My doc told me it’s from food but I don’t eat any of the most common foods listed, and don’t drink coffee or wine anymore sad

It seems high in relation to the reference range, and I’ve been living in a water damaged building, with lab verified samples having come back with the highest levels of mold possible.

Something about his comment about it being from food just doesn’t sit right with me. Has anyone else received a diagnosis for levels this high where it wasn’t explained away by food? I’m considering a second opinion with another doctor. Your reply is appreciated. Thank you smile
Posted 7/27/2022 3:07 PM (GMT 0)
I had high levels for everything on my mold test and got my numbers down across the board with a mix of optifiber lean, chlorella, bentonite clay and charcoal. Charcoal gave me a bad reaction. I'd highly recommend the optifiber lean, it was the easiest for me to tolerate, though it gets on everything and can clog the dishwasher if you don't get it out of the cups first - I'd buy some small disposable paper ones. I was never able to isolate what was causing what with mold as I also have bart and lyme and histamine issues, but I suspect mold and associated histamine responses caused me years of pelvic and back pain pre-diagnosis. Good luck.
Posted 7/27/2022 3:21 PM (GMT 0)
Bar-one-1111,

Hello and welcome!! I have always had my doubts about mycotoxins coming from food, but it’s possible.

Are you out of the moldy house now, or are you still there?

Did the results of any of the other mycotoxins have a number value that was below the positive range, or were all the others at zero?

Had you already been taking glutathione and/or binders for a while prior to the test?
Posted 7/27/2022 3:31 PM (GMT 0)
Hi, thanks for the message. Yes, I’m still here but moving out on Monday! As far as the other results they were all zero except for mycophenolic acid which was in normal range.

I’ve been taking NAC, turmeric and Quercetin for about two years without even knowing about the mold, or that they helped clear mold from your body, they’re just supplements I started taking when Covid hit.
Posted 7/27/2022 3:34 PM (GMT 0)
VT1578 - thanks for the recommendations. I’ve been taking NAC, turmeric and Quercetin for a couple years, before I knew there was a mold problem. I just started taking charcoal, and am going to do another lead test for further investigation. Apparently I have high levels of lead in my hair sample so they’re sending chelating pills for me to do another urinalysis to get a better idea of how much is stored in my body.
Posted 7/27/2022 3:41 PM (GMT 0)
Glad you are able to move. Have you tested the place you’re moving to? If not, you’ll want to do that. Also, be very careful about what possessions you take with you out of the moldy place. You might want to read this article for some perspective. Papers and fabric and upholstered items tend to be the worst.
https://paradigmchange.me/wp/stuff/

Whatever you do decide to bring with you, clean it before bringing into the new place. Vacuum, wash in dishwasher, wipe down with alcohol solution or quat solution (quaternary ammonia).
Posted 7/27/2022 4:23 PM (GMT 0)
WalkingbyFaith - I’m throwing out all of my books, area rugs, throw pillows and my sofa. I am taking my mattress but it has a protective cover that can be replaced, everything else is going into the wash and/or the dry cleaner.

New place checks out. I can’t wait to move. Thanks for the tip and the link. Really appreciate it.
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