Girlie said...
I’ve always been able to eat bread and sugar.
Fatigue isn’t/wasn’t a symptom.
That’s one of the reasons I never suspected lyme for the first year or so. I’d see fatigue on the list and it seemed like everyone with lyme had it.
Kind of scratching my head on this one, well you do relapse and end up on the couch with fatigue after you go off antibiotics right? By the 2nd or 3rd week, just like the rest of us? What's been keeping you disabled and from working last 6-7 years if you don't mind me asking? I mean I know some are disabled neurologically and even from spinal issues or inflammation/arthritis... There's numerous ways lyme and coinfections can disable a person, sometimes understanding these symptoms help you pinpoint what type of pathogen is affecting you, obvious it seems it's bartonella considering you still having mild foot issues and anxiety in the morning.
Girlie said...
Alxander said: “ Because of those symptoms that comes and go... my non medical expert opinion would be that they are a sign of still existing infection. Especially something as specific as foot pain which screams Bartonella.“
They don’t really go for any length of time. (The head pressure and upper left side back pain)
Most days I get it for many hours... sometimes all day/evening.
Head pressure isn’t quite as long in duration some days.
Yes, I agree the foot pain is classic bart symptom.
But it is only present now and then - like once a week or two - and it is mild.
All this sounds like bartonella flaring... Been through this as well...
I used to have severe spinal issues and even sciatica so bad I couldn't sit in a chair for more than 10 minutes because my hamstrings burned so bad...
Dapsone helped, but Disulfiram was a game changer for penetration into the spine...
I'm gonna come back and watch you Girlie... I must say, if it wasn't for you and some of the others help bring my attention on how weakly my LLMD treated for Babesia, I wouldn't be at the state I am today...
That rotating between coartem and primaquine got me on track, I could of never imagined that I had both Babesia and Bartonella 5 years ago and that's what has been keeping me sick.
Lucikly you shouldn't have to take either of those two, because both can cause some to be psychotic or have psychosis, I think you really need to try Disulfiram.. What really helped me was taking Disulfiram with some chocolate ice cream, it increased the bioavailability and brought out the bacteria... As they always say, "Sugar Helps Antibiotics Trick and Kill Deadly Bacteria" Then see what happens,again when I first got on Disulfiram, it felt as if stones were moving around in my brain... Either that or try pairing it up with Stevia
https://www.livescience.com/14124-sugar-improves-antibiotic-treatment-persistent-bacterial-infections.html#:~:text=a%20spoonful%20of%20sugar%20not,at%20wiping%20out%20bacterial%20infectionsWithout a doubt you still have a persistent infection, if you can go back to work, go for it... But I think if you try a drug like Disulfiram, kind of like you did with Rifabutin, it will set you back big time and you'll realize what a chronic infection you still got going on... I could be wrong... But considering you still have spinal issues and anxiety in the morning, some mild foot issues that hints to a lingering bartonella infection.. You gotta take Disulfiram and see where you're at... Just my opinion...
Doxycycline and Pyrazinamide seems to be very effective against bartonella for me as well, if you want to mention this combo to Dr. J. I know Dr. H uses Pyrazinamide for his bartonella patients...I'll never take those quinolones...
I'll check back every so often to see how some are doing... It's great to hear you're doing better Girlie and considering working... I'm the best I've ever been too, for once I can finally tolerate eating gluten... It seems bartonella has been the main reason for the last 10 years I get a reaction when I eat anything with gluten... Crazy right? Well my brain would flare up or it would make me super fatigued, not getting that anymore... Finally... After all these friggin years...
I think there's a lot of hope for new lyme patients that they won't have to go through the hell many of us have throughout these long years since these new drugs are out such as Disulfiram and the new one Azlocillin.
I know they're trying to recompounding Disulfiram, I suspect to reduce the side effects of the psyhosis herxing lynme patients get when taking it, maybe this is why Dr. J is waiting. I know this is why Dr. L in Saginaw Michigan is waiting to give this to his patients, he told me personally it's still too soon for him due to liability.
Post Edited (Charlie55) : 7/25/2020 11:46:42 PM (GMT-6)