Disulfiram Poll

How can I see the results of the poll without taking part in the poll? Is this possible? Because no answer fits for me (not started DSF yet).

Cignet.☄️ said...
Create another option for haven't taken dsf and you can see it then



I took 62.5mg for 5 days, 125mg for 5 day and then 187.5mg for 5 days before stopping. Felt improvements but not worth the side effects given my current state. If I could knock the worst of it back with abx then use disulfiram, I would - which is what Dr Liegner, Kinderlehrer et al have been doing.

I’m guessing someone has already mentioned this to you but just in case they haven’t this schedule may seem benign but I’ve read about doctors that put there patient on 62.5 or 125 once every four days or even once a week because they are so sensitive etc.. Getting up to 125 every day after 5 days seems very quick. Just something to think about. Best of luck to you.

_Markus_ said...
Is it impossible to see the poll results without taking part? That would be very bad, because I didn't include the option "Not tried DSF yet". I don't know how I can change the poll options now. Besides that, only 6 options are possible and I've used 6 already...

Would it makes sense to make a complete new poll?

With other polls, I'm quite sure i've seen results without participating in the poll.

Maybe no one has taken part in the poll yet?

Girlie said...
Maybe no one has taken part in the poll yet?

I just answered "did not improve my symptoms, but gave me only minor/no side effects" as a dummy answer and now I can see the results. Can anyone else who hasn't taken part in the poll see the results? It seems that one can see the results only after taking part in the poll, which is fairly useless for the people who want to decide if they shall take DSF or not.

i've heard from some folks it can take 6-8 weeks before you know what you feel like on a daily basis post-DSF. It not only takes up to 2 weeks to clear from your system also whatever impact its causing has to resolve as well. Weeks to resolve seems to be the common thing i hear.

dsf also seems to be a good biofilm buster given long past symptoms seem to reemerge for many folks. that could be the biofilm busting or deeper tissue penetration where the bugs are hiding out.

*bump*

Started today with 125 mg DSF. Okay or to much?

Markus I would start with 125 every 3rd day or every other day for at least a week and see how you do on that first. Good luck.

I had no problem with dsf + minocycline.

I voted "improved my symptoms moderately or strongly I had only minor/no side effects" but would like to add a caveat:
Without supplementing zinc and without putting my DSF in enteric capsules, I believe the side effects would have gotten much worse for me.

I bought my empty enteric capsules from capsuline.com. They are also available on Amazon. Because the DSF isn't being sealed inside the capsules, I actually bought size 0 and size 00 so that I could double them up.

Zinc: I took one cap of Garden of Life brand daily which was 50 mg (this brand also includes a little bit of vitamin C). Too much zinc can give you problems with too low copper.. just something to be aware of.

My opinion is that taking DSF on an empty stomach is best.. it should help avoid metabolite formation in the stomach- the same reason for taking it in enteric capsules.

It's tricky though... We know that if unmodified DSF gets to the bloodstream, that it is good for killing borrelia. But we still don't know much about how DSF taken orally might kill babesia, or how it might affect other pathogens in ways beneficial to us. Many metabolites are formed when DSF is in the stomach.

There's still a lot of research that needs to be done and not a lot of funding. There was talk about reformulating DSF which I assume would solve the funding problem because there would be a new patent.. but I haven't heard anything new lately. I fear the researchers are moving on to other things...

potsnpans said...

_Markus_ said...
Question to all: Do I have to take DSF on an empty stomach or apart from calcium rich foods?

I believe it's copper rich foods you are thinking of.

Yes, that's possible. I did not much research into DSF, because my energy is very limited and I find it very confusing. Seems to me like everyone says some different things, but nothing is backed up by evidence. Right?

Ok, thanks. Do you know how the treatment works for the patients? I mean many patients take DSF but only a few took part in the poll here. Maybe you know of more experiences on Facebook, etc.