New symptoms after YEARS or something else? LLMD in Southern California

Hello all,

It's been a long time since I've been on here. My Lyme, Babesia and Bartonella have always been mild and manageable.

To recap, I got diagnosed with Lyme Disease in 2013 I believe? I can't even remember. I did a year of antibiotics, then about 6 months of natural supplements (Monastery of Herbs), my symptoms leveled out and I have been able to live a normal, active life without any form of treatment after that besides healthy eating, exercise and a daily vitamin.

However, the last 2 months, I've had a new symptom creep up. I'm also not sure if it's related to Lyme. I've had hand tremors even before being diagnosed "officially" with Lyme. I always also have a starving sensation in my stomach. This seems in line with the tremors, I assumed it was low blood sugar, I would eat a candy bar and it would get a bit better.

Years later, like literally 10 years later now, I still have this starving feeling in my gut, my hand tremors never went away, and NOW my arms and my legs have tremors. I notice the leg tremors the most when I'm surfing.

My hands and feet have also started feeling like they are asleep at all times.

So, to be clear, my hand tremors and starving feeling DID NOT go away with Lyme treatment. It's just always something I lived with. I;ve seen a few doctors about it that never seemed concerned or dove deeper into figuring out what it is. However, even eating candy now, taking glucose, anything I try is not helping it anymore and the tremors are worse.

Obviously, it could be Lyme and I'm wondering if anyone else has had these symptoms?

I'm worried about 2 things...diabetes and Parkinson's disease. Both run heavily on my dad's side of the family. I am 33, so young for Parkinson's but I do know there are rare early onset cases.

ALSO, if this is Lyme, I really need a LLMD in Southern California. I've lived out here for 5.5 years now and haven't been to any Lyme doctors. If anyone knows of any (that are affordable), I would really appreciate it.

Thank you for reading!

I was treated for Bart only through natural supplements (the Monastery of Herbs I mentioned). Babesia always seemed to be the biggest pain for me so we really hammered that with antibiotics and herbs.


Thanks!
Elleon

Treat Bartonella again and see if you herx. It causes tremors and numbness.

I’d also get your b12 (and other b’s - b6, folate) checked. It’s possible to have gut issues (like h pylori) that are causing malabsorption of critical vitamins/nutrients. Low b12 causes numbness and tremor. This can easily be checked by your regular doc. Just don’t supplement with b12 before then - it can make levels in blood look normal or high even. They can order breath test for h pylori too if you don’t want to do GI map.

You may want to be checked for H. Pylori, but it could also be Bart.

I've had a strong hunger feeling in my stomach at times that I believe to be related to Bartonella - seem to be struggling with Bart and Lyme. I had blood tests for H. Pylori and tested negative. My PA said it looked like I had never had H. Pylori in my body.

Is the stomach sensation usually relieved by eating and drinking? Do you feel hungry, or is it just the physical stomach sensation? Does your stomach growl?

I'm wondering if your vagus nerve is having issues and causing that piece. Along with the tremors, it would seem that nervous system dysfunction is getting worse for you. Given the family history, I would get checked by a neurologist, but even if Parkinson's were diagnosed, I'd still explore the infection angle, since tick-borne infections are thought to trigger many neurological diseases.

In the mean time, check out the treatments available for nervous system dysfunction. Lion's mane, DHA, magnesium, DNRS limbic system retraining, meditation, tapping, frequency-specific microcurrent, craniosacral therapy, chiropractic, etc. And ways to decrease overall inflammation with diet, curcumin, etc.

Sorry that you are having these stressful issues!