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EBV questions: testing accuracy and contagious?

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Posted 7/11/2020 4:17 AM (GMT 0)
My daughter tested negative for EBV at the beginning of this whole illness so I’ve never researched or read much about it.

She is now showing positive for high EBV with current ND. Of course, different testing methods, as in not blood test.

My first question then is, are EBV blood tests accurate or does it hide like Lyme does?

Second question is if she does have EBV, do I at all worry about contagiousness since a high percentage of population actually does already have it/been exposed?
Posted 7/11/2020 4:28 AM (GMT 0)
I think one issue is you can test positive for EBV after you've had it and treated it.
Posted 7/11/2020 4:32 AM (GMT 0)
Here's a link on EBV testing.

Part way down the page there is a table showing interpretations. It may or may not be helpful.

https://labtestsonline.org/tests/epstein-barr-virus-ebv-antibody-tests
Posted 7/11/2020 5:01 AM (GMT 0)
Originally, last year, her blood test showed negative for all antibody tests. I did look at that webpage. Thank you for sending and that is what her test checked for. The doctor said no mono ever was showing up (well, no EBV).

That’s why I was wondering if it could hide and is now reading its head? Or could she have gotten it within this past year and a half?

Maybe it will be wise to do same blood test again soon.
Posted 7/11/2020 5:53 AM (GMT 0)
Did you get the test results?

Were IgM and IgG both tested?
Posted 7/11/2020 12:52 PM (GMT 0)
What testing method is now showing a positive?

I’ve found ebv blood test to be accurate.

I would repeat blood test. I’ve tested three times and my values are always pretty much the same.
Posted 7/11/2020 3:38 PM (GMT 0)
The EBV blood tests I've had have been consistent for more than two years. IgG and IgM have been consistently high. I've also read real high titers of IgG could mean it is still active. That is the part that confuses me.

One test for EBV most doctors do not do is the EBV DNA test. That is an important one as if it is positive, it means the EBV is replicating and growing. Mine was negative for three teats over a few months then loast one showed very low positive, which means it is replicating. That is what they are trying to stop here at the Biologix Center.

I have no idea why more doctors don't do the EBV DNA test. And if you do get blood tests, ask for ones that show numbers instead of a simple positive or negative.
Posted 7/11/2020 6:49 PM (GMT 0)
Hi, Blakeleysmom. I'm always glad to see that you've posted with updates. smile

When I first got very ill and started trying to figure out what was wrong, I pushed for an EBV test, which was negative, but I read that it usually is negative early on because people have not produced antibodies to it yet. Two months later, I pushed a different doctor for another EBV test, and it was a very high positive IgG and has remained high ever since, for years. I believe EBV is what weakened my system, allowing widespread dysfunction and opportunistic tick-borne infections to flourish.

She could have contracted it more recently, or perhaps she was tested when it was still a recent infection?

A lot of people do have some history with EBV, and it can be dormant and opportunistic, too. My LLMDs have emphasized the following to treat it when it's chronic:
- general immune health (fix leaky gut, probiotics, medicinal mushrooms, reduce inflammation)
- transfer factor (particularly PlasMyc from Researched Nutritional, which contains actual EBV antibodies)
- liposomal glutathione
- antiviral meds or herbs

I hope that the ND is helpful for you! I'm sure you both could use some relief ASAP!
Posted 7/12/2020 3:37 PM (GMT 0)
I had a recent reactivation of ebv while I had double viral pneumonia/ covid pneumonia. They usually test 3-4 different levels Mine showed a recent reactivation where ebv virus was recently replicating. But acute phase antibodies were neg. I am still recovering from all of it with a lot of fatigue and in therapy for a back inj and from the post pneumonia effects on my back. I also had a reactivation when I was stricken with type 1 diabetes. My doc asked if I want to go to an ifd, I will at some point to see if anti virals can help me.

EBV which I was never aware of having in the initial phase, has been linked to several cancers as well as autoimmune diseases including type 1 D.

Even though I am well past the pneumonia now, I still have a low fever nearly every day for 1–3 hours at night. I had a low grade fever on and off through the whole thing.
Posted 7/13/2020 5:30 AM (GMT 0)
We see our original LLMD this coming week. I will ask for another EBV blood test. I am gathering from these responses that we should be able to count on the accuracy of the blood test.

Last year she did show all negatives on igg and igm, which did include numbers/ranges. The ND we use does the energetic testing which showed the EBV which is why I asked the original questions. I am for sure curious to see what the blood test shows.

My husband said jokingly after the appt, “oh my goodness, what if it’s been mono this whole time?” 😐

I don’t think blakeley has ever had daily fevers in her whole life. I guess symptoms different for everyone. Her primary remaining debilitating symptoms are still extreme fatigue/weakness, vision issues, bone pain, vertigo... with random other weird stuff that occasionally comes and goes.

She has held a pretty much 60% of normal most days for the past month, with a few days of horrible in the bed days in between.
Posted 8/15/2020 8:49 PM (GMT 0)
I hope she is feeling better and you managed the test. I had several things going on healthwise with myself snd my family so I have not gone to the ids yet. I continue to have back pain but it has greatly improved, although I still need pk and patches, heat as needed. I had a flair up after cleaning up after isias. I have stopped the pt for now but I need some for my knee now which is injured after spraining my ankle badly.

In addition, I had a bad wasp sting reaction and now poison ivy and family members issues. I still have a fever on and off at night which is weird. My lungs are slowly recovering from the penumonia but they are still sensitive, any dust etc near me and I start coughing right away. I still have pressure and discomfort in my ribs, worst when laying down and eating, after all this time. I need to restart my pt exercises.
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