is it possible to herx for 5 days?

I took some interfase plus on monday and had the worst herx of my life. Had 4-5 bowel movements overnight, shakes, chills, sweats, metallic taste in the mouth, heart pounding and massive insomnia this week. One night i was able to sleep with benadryl and got one night with ambien. Took an ambien tonight and got 2 hours out of it.

My doc recommended liposmoal glutathione and GI Detox (binder) to help get rid of the reaction.
I also ordered alka seltzer gold on amazon as Dr Horowitz recommends it.

Edited to note that I have homozygous MTHFR and CBS mutations which make detoxing hard.

Any other tips to help me get through this? God bless all of you and I pray for everyone's healing. Amen.

Post Edited (luvved1234) : 8/15/2020 3:53:04 AM (GMT-6)

Technically I don’t have chronic Lyme. I’m on my first round of abx and about to start a second after I get over the Herx hump.

Interesting what you mentioned about good/bad Herx, can you explain more ? Any distinguishing characteristics ?

Edited to note I did stop the antibiotics. And I only have 2 days left on it .

"interfase plus" is a pure EDTA or something else? On EDTA there are many reports how it works in sync with abx.

Yes my infection is about 2 months from the erythema migrans. I took doxy 3 weeks and got progressively worse but didn’t take my normal supplements. My doctor is switching me to a pulse regime of 4/3 days for azithromycin and plaquenil and then later add in artemisinin/myrrh. I’m redoing tests with MDL labs as well next week.

astroman said...
"Yes my infection is about 2 months from the erythema migrans."

Thats good to hear. Chance of 100% recovery is quite high then, in minimal time too.

Thanks so much. I’m praying for a full recovery. I’m really anxious but I am so eager to get well!!💖

luvved1234,
Yes, multiple-day Herx's...they can last awhile, especially with stress or environmental triggers, or if the guts are being taxed by riled-up bugs and co-infections, parasites, and other baddies, these nasties reside in biofilms and cysts and granular forms, they open up, with powerful ABX, you can expect spirochetes to mobilize and seek other parts of the body to infest. Also, the debris from this die-off builds up. And it can be hard to tell if it is a die-off, or immune reaction, or both.

Ain't having a tick borne illness wonderful and grand? ... /s

I've been experiencing a prolonged flare myself, and I do need to start treating myself better.

Anyhoo... I've heard many horror-herx stories, especially with Bartonella/ Babesia; like air hunger and debilitating fatigue isn't enough, with the psych symptoms too.

I have PTSD from going through past Herx's and no one believing me, and it has me postponing my treatment yet again, and just trying to manage the symptoms the best I can.

Alka Seltzer Gold is very very good. I wish it were cheaper. I need some more.
Epsom Salt towel bath with warm shower is very very good for those times too.

One last note: it's important to remember that it's the Herx, not you, and to try to know the difference.
Good luck on reducing your bacterial-load and getting healthy again!

borrelioburgdorferii said...
luvved1234,
Yes, multiple-day Herx's...they can last awhile, especially with stress or environmental triggers, or if the guts are being taxed by riled-up bugs and co-infections, parasites, and other baddies, these nasties reside in biofilms and cysts and granular forms, they open up, with powerful ABX, you can expect spirochetes to mobilize and seek other parts of the body to infest. Also, the debris from this die-off builds up. And it can be hard to tell if it is a die-off, or immune reaction, or both.

Ain't having a tick borne illness wonderful and grand? ... /s

I've been experiencing a prolonged flare myself, and I do need to start treating myself better.

Anyhoo... I've heard many horror-herx stories, especially with Bartonella/ Babesia; like air hunger and debilitating fatigue isn't enough, with the psych symptoms too.

I have PTSD from going through past Herx's and no one believing me, and it has me postponing my treatment yet again, and just trying to manage the symptoms the best I can.

Alka Seltzer Gold is very very good. I wish it were cheaper. I need some more.
Epsom Salt towel bath with warm shower is very very good for those times too.

One last note: it's important to remember that it's the Herx, not you, and to try to know the difference.
Good luck on reducing your bacterial-load and getting healthy again!

I am terrified that I spread the infection further by taking the biofilm breaker--mainly that it has entered and infected my brain because I have been unable to sleep and extremely anxious. That could also just be inflammation from herxing...I don't know the difference :-/

luvved1234 said...
I took some interfase plus on monday and had the worst herx of my life. Had 4-5 bowel movements overnight, shakes, chills, sweats, metallic taste in the mouth, heart pounding and massive insomnia this week. One night i was able to sleep with benadryl and got one night with ambien. Took an ambien tonight and got 2 hours out of it.

My doc recommended liposmoal glutathione and GI Detox (binder) to help get rid of the reaction.
I also ordered alka seltzer gold on amazon as Dr Horowitz recommends it.

Edited to note that I have homozygous MTHFR and CBS mutations which make detoxing hard.

Any other tips to help me get through this? God bless all of you and I pray for everyone's healing. Amen.

You know about detoxing, right?

https://www.tiredoflyme.com/detox-methods.html

The ones that work best for me are activated charcoal, Burbur Pinella, L-Ornithine, dry skin brushing and daily epsom salt/peroxide baths. Alka seltzer Gold doesn't seem to do anything for me.

luvved1234 said...
I got the alka seltzer gold from amazon today and just took one. IT IS LIFE CHANGING.

I wonder if herxing makes the body acidic ?

Yah, well I think the way Alka Seltzer Gold works is.. I think it alkalizes the gastrointestinal tract. From my limited understanding, I think stomach and other bacteria thrive in more acidic organic environment, so when it's more on the alkaline side of the Ph-level-meter it makes it inhospitable for them (and they die? or calm down? I don't know)

I'm very happy you found some relief, I know how bad it gets. I've had similarly life-changing experiences each first time I took a powerful supplement.

Here a few more:

Probiotic: A good 60B (Physicians Choice or Schiff) probiotic has also had a great anti-anxiety, mood balancing effect at one point. Yeah I know they make a ton of money selling probiotics and it's so expensive but it works.

Cholestyramine: maybe I live in a mold infested deep South area (see about mold detox), but this improved my overall energy and cleared my brain fog over a few days. I was sleepy, achy and hurting for the first 18 hours, but the next day was a significant improvement, felt like 80% of my old self for... awhile, a day or two at least.

Lithium Orotate: this has alleviated depression for me at difficult times, I read a psych. study about it, and it seems to have worked for others as well, according to numerous anecdotes. (watch kidney function with this one though, I don't take it often, just if I need to get out of a bad headspace).

I find some overlap across different LLMD's and what they recommend, that's how I try to verify it for myself.