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? For those who have had a lot of twitching

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Posted 10/4/2020 9:44 PM (GMT 0)
I have had a lot of twitching, jerking and electric shocks type thin throughout this whole ordeal. In the last few weeks it has been greatly reduced for the most part with a few bad days. I'm just curious, does it ever go completely away or will there always be some twitching and jerking even after you have cleared the infections?

I guess what I'm asking is can you be cured but still have the twitches and jerks? Are they caused by nerve damage from infection or by the infection itself or something else all together?
Posted 10/4/2020 11:36 PM (GMT 0)

WV Mike said...

I guess what I'm asking is can you be cured but still have the twitches and jerks? Are they caused by nerve damage from infection or by the infection itself or something else all together?

IMO, you should not be twitching and jerking if you’re cured. That ain’t normal. I don’t think it’s “damage.”

I never even had twitching, jerking, or electrical zaps through the head until I started treating bartonella with houttuynia and sida acuta.
Posted 10/5/2020 12:06 AM (GMT 0)
My bart neuro sx did improved greatly over time, but some still linger. So not sure if some of the damage is permanent.
Posted 10/5/2020 1:54 AM (GMT 0)

WV Mike said...
I have had a lot of twitching, jerking and electric shocks type thin throughout this whole ordeal. In the last few weeks it has been greatly reduced for the most part with a few bad days. I'm just curious, does it ever go completely away or will there always be some twitching and jerking even after you have cleared the infections?

I guess what I'm asking is can you be cured but still have the twitches and jerks? Are they caused by nerve damage from infection or by the infection itself or something else all together?

I think eventually the twitching, jerking and electric shocks should go away with treatment and time to heal.

My twitching went away after treatment - I think it was at least a year after treatment started.
I only had jerking when I was herxing while on DrJ’s Persisters/Bart protocol.
Worst herx ever!

My nerve issues have improved a lot with treatment - still have nerve pain - upper left side of my back, left arm and hand. That’s the area that was inflicted first in 2013
Posted 10/5/2020 1:40 PM (GMT 0)

Cignet said...

WalkingbyFaith said...


IMO, you should not be twitching and jerking if you’re cured. That ain’t normal. I don’t think it’s “damage.”

I never even had twitching, jerking, or electrical zaps through the head until I started treating bartonella with houttuynia and sida acuta.

WalkingbyFaith,

Which houttuynia did you use? Were you using fresh or dried stuff? Just curious, Buhner says the fresh stuff is miles better and I bit the bullet and ordered some in from woodland essence. Just wondering which ones you used.

just chipping in on this as i also recall reading that buhner said that fresh houttuynia was best - but unless you grow it (i think its an annual? so takes the best part of a year ) it's very hard to source fresh.

i tried dried and initially doubled his doses to account for the dried vs fresh strength differences
the herx at this level was massive and unmanageable

later i was able to compare it to the doses needed to get strong herx of other buhner anti-microbial herbs - like Sida, mahonia, and Cryptolepis, and found that i would get strong herx by around 33 to 50% of his recommended dose of all of them
so this seems to support that dried works plenty good enough
based on this i think dried will work just fine

initially, i sourced the dried leaf powder from 1stchinese herbs - plumb flower brand
i now source it from Lymeherbs.eu
both were comparable in quality
Posted 10/5/2020 2:53 PM (GMT 0)
I used fresh houttuynia tincture from Woodland Essence.
Posted 10/5/2020 2:57 PM (GMT 0)
I have heard others talk of houttuynia tea. I assume they used dried cut or powder. Not sure where they got it from.

Cignet,

If this is your first time with houtty, start with 2-5 drops. I started at 2 and got zaps.
Posted 10/5/2020 6:13 PM (GMT 0)
Electrical zaps are a hallmark of mold illness, according to Neil Nathan, and twitching is common with mold as well. If you feel like you have treated extensively for tick-borne infections but still have those symptoms, then it might be worth exploring the mold angle if you have not already.
Posted 10/5/2020 6:24 PM (GMT 0)
“ I guess what I'm asking is can you be cured but still have the twitches and jerks? Are they caused by nerve damage from infection or by the infection itself or something else all together?“

They can take awhile to resolve after treatment IMO
Posted 10/5/2020 6:39 PM (GMT 0)
Yeah, I know they say that about mold, but I never had electrical zaps in the head, twitching or jerking until I added houttuynia.

Shoemaker describes electrical shocks due to salt on the skin. Was that related to low ADH/osmolality? Anyway, that is like people who get shocked frequently. That’s different. There was a time when I did get shocked frequently when pumping gas or flipping a light switch. That doesn’t happen anymore.

I did have electrical pain when symptoms first started way back in 2009. I was at work when it happened. Felt like electricity running across my knuckles and there were actually visible thin, red jagged lines like lightening streaks on my knuckles and fingers. I also had a sharp zap to the side of my neck. When I looked in the mirror, I found a jagged, boomerang shaped mark where I felt the zap. It’s still there. When it happened and when it flares, it turns a dark reddish purple color like the lines across my abdomen. All that seems much more likely to be bart or Lyme than mold.
Posted 10/5/2020 6:42 PM (GMT 0)
Early on when I started searching for information on Lyme/co, I saw videos of people who had constant fasciculations and jerking. I was horrified when I saw how bad people can get. Praying you get resolution to all those symptoms.
Posted 10/6/2020 12:42 AM (GMT 0)

WalkingbyFaith said...
Early on when I started searching for information on Lyme/co, I saw videos of people who had constant fasciculations and jerking. I was horrified when I saw how bad people can get. Praying you get resolution to all those symptoms.

That's me sad. Not so much anymore but it was really bad for awhile. I couldn't sleep and neither could my wife. I jerked and twitched all night shaking the bed and bumping her. Muscles in my face, arms etc would twitch really fast and freak people out who saw it. I still have spells but it's not constant anymore and has really improved. I even have entire days without any at all now. They're acting up today however, just twitching.
Posted 10/6/2020 2:41 AM (GMT 0)

WV Mike said...

That's me sad. Not so much anymore but it was really bad for awhile. I couldn't sleep and neither could my wife. I jerked and twitched all night shaking the bed and bumping her. Muscles in my face, arms etc would twitch really fast and freak people out who saw it. I still have spells but it's not constant anymore and has really improved. I even have entire days without any at all now. They're acting up today however, just twitching.

I’m so sorry that you’ve suffered such horrors. How have you been treating - abx, herbs, other?

Was all that mainly from Lyme, bartonella, or something else?
Posted 10/6/2020 12:09 PM (GMT 0)
I've been on multiple abx for over three years plus herbs. First year iv rocephrin plus oral abx. Started dsf a few weeks ago. Also did two years of bvt. I'm throwing everything at it. It has improved greatly since the beginning. There was a time when I couldn't sleep for five days because I was jerking so much and so violently.

When I was at my worst I had problems with my speech as well. I.coild talk but I couldn't get the words in the right order no matter how hard I tried. Those were scary times. I'm thrilled to be where I'm at now, not healed but not bed bound flopping around like a fish out of water either. I thought my life was over, I'm starting to have hope again.
Honestly I found the heart issues and anxiety to be worse than the twitching)jerking for the most part. I never had experienced either before this. I definitely have a lot more empathy for people who suffer from anxiety now. Not that information don't before but I had no idea what they were going through. Can't imagine feeling like that all of the time.
Lyme and Bartonella bacilliformis.
Posted 10/6/2020 5:19 PM (GMT 0)
twitching subsided with iv magnesium and kilos of royal jelly ...nerves can grow back its just slow , but nutritional deficiencies can be as bad or worse than the offending pathogens...try slathering mag oil all over , let it dry then rinse in epsom salts bath...see if it offers relief
Posted 10/13/2020 8:03 PM (GMT 0)
My twitching had resolved with treatment. I would only get it occasionally when herxing. I stopped my herbs to start Disulfiram since the tinctures had alcohol in them. Twitching came back big time! My lymphatic system got so congested in my right leg that the swelling left bruising and it was really painful. I went back to taking hawthorn and houttuynia and both symptoms resolved.
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