Bartonella, TBRF and NeuroBorreliosis

Was diagnosed with bartonella and tick borne relapsing fever (tbrf) back in March of 2020. I've been on Buhner's bartonella protocol for about 2 months and I'm seeing some amazing results. I was never able to fully do the tick borne relapsing fever protocol because my stomach couldn't handle it. I had a bunch of symptoms when things started: fatigue, painful headaches, brain fog, etc. Now the only issue is that I'm having headaches but the weird part is they're not that intense and they're only on a small part of the right of my head, it used to be my entire head. Chinese Skullcap has helped tremendously but my stomach is sensitive to it. I tried adding chinese cat's claw and didn't realize it was a sedative and of course the chinese skullcap significantly enhanced those effects and that was not fun.

So here's what I'm thinking about doing, getting off the chinese skullcap because I think my brain seemed to be more relaxed and calm when I was on the chinese cats claw. Any advice? I'm also thinking about doing it because according to igenex tbrf can cause neurorborreliosis which buhner suggests chinese cats claw to get rid of. Any help would be much appreciated.

P.S. Tested negative for lyme and did extensive tests. How long does it take before chinese skullcap is out of your system? Also, how effective has chinese cats claw been for headaches for everyone? How does it compare with chinese skullcap as far as subsiding headaches?


Thanks.

Post Edited (Rhytenow) : 11/29/2020 10:30:24 AM (GMT-7)

Rhytenow said...
Was diagnosed with bartonella and tick borne relapsing fever (tbrf) back in March of 2020. I've been on Buhner's bartonella protocol for about 2 months and I'm seeing some amazing results. I was never able to fully do the tick borne relapsing fever protocol because my stomach couldn't handle it. I had a bunch of symptoms when things started: fatigue, painful headaches, brain fog, etc. Now the only issue is that I'm having headaches but the weird part is they're not that intense and they're only on a small part of the right of my head, it used to be my entire head. Chinese Skullcap has helped tremendously but my stomach is sensitive to it. I tried adding chinese cat's claw and didn't realize it was a sedative and of course the chinese skullcap significantly enhanced those effects and that was not fun.

So here's what I'm thinking about doing, getting off the chinese skullcap because I think my brain seemed to be more relaxed and calm when I was on the chinese cats claw. Any advice? I'm also thinking about doing it because according to igenex tbrf can cause neurorborreliosis which buhner suggests chinese cats claw to get rid of. Any help would be much appreciated.

P.S. Tested negative for lyme and did extensive tests. How long does it take before chinese skullcap is out of your system? Also, how effective has chinese cats claw been for headaches for everyone? How does it compare with chinese skullcap as far as subsiding headaches?


Thanks.

I HV.tbrf bart and lyme I take sida acuta, japanese knotweed , skullcap and red root. You said you were feeling better exactly which herbs are you using from buhner protocol?? When I tried cats claw I herx bad and had really bad migraines.

sounds like a pretty good combination for TBRF/Lyme plus Bart ( to my knowledge the protocols for TBRF are the same as for Lyme at this stage)

i am on a v similar protocol

the only thing ( other than Ryncho ) i have that i think is a significant addition over that - is perhaps Red Sage root / Dan Shen
3.5ml 4x - Buhner recommends it now in pretty much all chronic bacterial infections as an "immune adaptogen" i think it helps my body fight back over the long term

the Kudzu, lions mane, and knotweed are also good for neuroborreliosis as they act on the CNS

I first experienced symptoms in July of 2018, thought it was a sinus infection. Was told it was low vitamin d. After about a year and a half my symptoms still didn't go away. Saw on TV where a magician had the same symptoms and he had Lyme, got tested by my doctor and the Lyme test was negative. I brought up coinfections and he shot my down. Went to my friend's wife who is a naturopath doctor, she told me about igenex, did an extensive test for absolutely everything and find out it was Bartonella and tbrf.

Also, I wasn't aware of any tick bite. No rash either.

Post Edited (Rhytenow) : 11/30/2020 12:11:39 PM (GMT-7)

Rhytenow said...
I'm taking rhodolia, ashwaganda, lions mane, kudzu, cordyceps, Chinese skullcap, sida acuta, houttyiana, red root, hawthorne and Japanese knotweed. Also taking vitamin c, quercetin, green tea extract, b complex, milk thistle, lutein, bilberry and oregano oil. I also added cinnamon (herb pharm) because of the recent reports on it and Bartonella. Also, vitamin d, magnesium and larginine. I had low vitamin d which triggered all of this into me finding out that I had Bartonella and tbrf. From what I'm told tbrf is very similar to Lyme. I initially thought I had Lyme and was doing a protocol for that until I was formally diagnosed.

I noticed a huge difference when I added oregano oil to the protocol and Chinese skullcap.

It also took me a while to get in the full Bartonella protocol because I was on just doxycycline but that obviously didn't do much. I started the buhner protocol during my last month of the doxycycline. For whatever reason it was easier for my stomach to handle the entire protocol when I was on the doxycycline. I tried getting on the full protocol before then but I had extremely bad pain in my stomach.

do U take pill form for the vitamin c, quercetin, green tea extract, b complex, milk thistle, lutein, bilberry ? I feel I'm taking way too many pills and get filled up with pills and water taking my appetite to eat away it sucks. Wt type of oregano oil? I ordered one I'm pretty sure it was for aromatherapy as it said external use only so that did not work out good. 1 drop was way too spicy and bitter thought I was gonna choke and die.i was doing lyme protocol as well because I didn't know I had tbrf as well and it didnt seem to make much difference.

I take the rhodiola and mix it with the ashwagandha to negate any wired issues. I've taken rhodiola by itself and it was not a fun feeling. I don't have any issues when it's taken together with the ashwagandha, I just make sure there's an equal amount of each herb in the water.

All the herbs below I take are tinctures:

Cinnamon (Herb Pharm)
Rhodiola & Ashwagandha
Lions Mane, Kudzu, Cordyceps, Chinese Skullcap
Houttuynia, Sida Acuta
Red Root, Hawthorn and Japanese Knotweed.

The following below are pill form:
Green Tea Extract: https://www.amazon.com/extract-capsules-non-gmo-potency-metabolism/dp/b077l81z17/ref=sxts_sxwds-bia-wc-drs1_0?cv_ct_cx=green+tea+extract&dchild=1&keywords=green+tea+extract&pd_rd_i=b077l81z17&pd_rd_r=5edf8a29-b49a-49b4-87b6-37fcd4e736ab&pd_rd_w=pmjtt&pd_rd_wg=owq1d&pf_rd_p=c33e4373-edb9-47f9-a7e6-5d3d6a7a4ad0&pf_rd_r=7tmq3t249c3azb460yeq&psc=1&qid=1606762290&sr=1-1-5e875a02-02b1-4426-9916-8a5c26cd5a14

Oregano Oil: https://www.amazon.com/aromavita-oregano-oil-capsules-containing/dp/b084z1n2lt/ref=pd_nav_hcs_rp_1/140-8518213-3884061?_encoding=utf8&pd_rd_i=b084z1n2lt&pd_rd_r=b2767d86-69d3-4ad3-a4a9-7ed308b7db47&pd_rd_w=ov09d&pd_rd_wg=0sohs&pf_rd_p=b90f7456-95ee-4d98-80f8-00c4e91c331c&pf_rd_r=6df1sf5ajerk5h9d9xzq&psc=1&refrid=6df1sf5ajerk5h9d9xzq

Quercetin: https://www.amazon.com/quercetin-powerfully-cardiovascular-bioflavonoids-celllular/dp/b07h9lgdpm/ref=sr_1_10?dchild=1&keywords=quercetin&qid=1606762598&s=hpc&sr=1-10

Milk Thistle: https://www.amazon.com/capsules-silymarin-powerfully-supports-detoxification/dp/b07vqp1mjd/ref=sr_1_5?dchild=1&keywords=milk+thistle+naturebell&qid=1606762626&s=hpc&sr=1-5

Vitamin C: https://www.amazon.com/naturelo-premium-vitamin-organic-bioflavonoids/dp/b0719c9n9f/ref=sr_1_1_sspa?dchild=1&keywords=vitamin+c+plant+based&qid=1606762650&s=hpc&sr=1-1-spons&psc=1&spla=zw5jcnlwdgvkuxvhbglmawvypueyvzc2nvgwofbsrkhqjmvuy3j5chrlzelkpuewnty1ndmxmlhyme1kou5lr1c2myzlbmnyexb0zwrbzelkpuewmda3nti5mktvru9motfeseu1ncz3awrnzxroyw1lpxnwx2f0zizhy3rpb249y2xpy2tszwrpcmvjdczkb05vdexvz0nsawnrpxrydwu=

Lutein: https://www.amazon.com/doctors-best-featuring-lutemax-softgels/dp/b00l9tk484/ref=sr_1_18?dchild=1&keywords=lutein&qid=1606762681&s=hpc&sr=1-18

Bilberry: https://www.amazon.com/puritans-pride-bilberry-softgels-count/dp/b004r68mfs/ref=sr_1_4?dchild=1&keywords=bilberry&qid=1606762706&s=hpc&sr=1-4

B Complex: https://www.amazon.com/gp/product/b08p56y25f/ref=ppx_yo_dt_b_asin_image_o02_s00?ie=utf8&psc=1

Also with the l-arginine buhner calls for a higher dosage but it gave me severe anxiety and made my heart race. This dosage works perfect for me.

The reason why I added the lutein and bilberry for me specifically is because I had eye issues. I couldn't take the stephania because it gave me really bad constipation and stomach cramps, even with upping my dosage of vitamin c.

Buhner also states the green tea extract must have a specific amount of EGCG, catchetins and polyphenols. That's why I chose the specific one I did. I chose the plant based vitamins because they're easier on me and don't get me dizzy or wired.

Also early on I was taking eluthero for fatigue and it worked wonders!

To me the pill form of oregano was much easier on my stomach than the liquid form. Also I take the oregano pill last after taking all of my other pills so it's easier on my stomach.

L-arginine: https://www.amazon.com/now-supplements-l-arginine-amino-capsules/dp/b000j6dyjo/ref=sr_1_9?dchild=1&keywords=l-arginine&qid=1606763035&s=hpc&sr=1-9

I listed the exact item at Amazon just in case anyone wanted to buy the exact thing. Just trying to be helpful. I know I was looking for a lot of help when I was initially going through things.

Also the reason why I take the specific oregano pill I do is because it's 86% carvracrol which has shown significant activity against standing (persistent) bartonella.

Also this probiotic has significantly helped in my stomach being able to handle all of the herbs I take

PB8: https://www.amazon.com/nutrition-now-probiotic-acidophilus-vegetarian/dp/b001e0t5o2/ref=sr_1_8?dchild=1&keywords=pb8&qid=1606764652&sr=8-8

Post Edited (Rhytenow) : 11/30/2020 12:18:33 PM (GMT-7)