HealingWell
Search Close Search
☰

LLMD in TX

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 12/12/2020 1:30 PM (GMT 0)
Hi everyone! I was diagnosed with Lymes about 15 years ago and my symptoms come back on and off but when I moved to Texas my symptoms were gone for a while so I never looked into finding a PCP here, let alone an LLMD. For the past month or so my symptoms have gotten pretty bad, to the point where any basic movements are extremely painful. I am seriously struggling to find a LLMD in TX, preferably in the San Antonio area, that has decent reviews. I’ve tried all of those typical lymes sites that have referrals but they all come up with nothing at all in like a 100 mile radius. This is kind of my last resort so any help at all would be appreciated!
Posted 12/17/2020 3:51 PM (GMT 0)
amariab,

Whoops! We missed your post! So sorry about that. Welcome to the forum.

Bumping this for more views in case someone from TX has some suggestions for you.

Sometimes people with Lyme will be fine and then get symptoms again after mold exposure. Have you had any known or suspected exposure to mold or water damaged buildings?

I got to visit San Antonio some years back. It was a dream come true. I rode the little boat down the river and ate under the colored umbrellas. I grew up seeing pictures of those scenes in Southern Living magazines and always dreamed of going there.

If I remember right, they had flooding, at least in the downtown area. Any place prone to flooding is high risk for mold exposure.
Posted 12/17/2020 4:11 PM (GMT 0)
Have you tried typing "San Antonio, TX" into the Google maps search bar and then using the "search nearby" function to look for "functional medicine" offices? Sometimes the term "holistic" can be helpful as well. Go to the websites for all the offices that come up, and look for folks who talk about chronic infections or complex conditions. (They're unlikely to say Lyme specifically.) You also can call the functional or holistic medicine practices and ask if any of the practitioners have Lyme treatment experience. I just checked this myself and there were over a dozen options; though they won't all have Lyme experience, they might know who in the area does and could help to guide you toward resources.

I know finding a good LLMD is hard sometimes. I have seen a lot, but most I would call only okay. At some point, many of us end up using an LLMD as a sounding board and as a person to order tests we can't order for ourselves, but we hold the reigns in terms of our own treatment directions and decisions. I hope you find the balance you're looking for!
Posted 12/17/2020 4:15 PM (GMT 0)
There’s one doctor in San Antonio whom I found on the ISEAI site. I looked at her website. She’s a neurologist. Lyme and mold were not listed as conditions she treats, but she tests for them. She treats PANS/PANDAS and other auto immune neurological illnesses. If interested, you could call and ask. She takes insurance, so she may not advertise that she treats Lyme or mold.

https://www.suzannegazdamd.com
Posted 12/17/2020 4:28 PM (GMT 0)
There’s a San Antonio Lyme support group. You might try to find out from other members which doctors might be helpful for you.

https://m.facebook.com/sanantoniolymesupport/
Posted 12/19/2020 3:26 AM (GMT 0)
@WalkingByFaith No worries on the late replies, any and all help is appreciated. As for the question about mold, yes I am like 99% sure I was exposed to mold. The ceiling in my bathroom cracked and part of it fell due to water damage about a year ago and my apartment complex did a half-hazard job at fixing it. A couple months ago the ceiling started leaking in the same spot looks slightly discolored but they still won’t do anything about it. (My lease is up in May thank god so I will be getting the hell out of here). I wouldn’t be surprised if there is mold up there tbh.

Also yessss downtown San Antonio is so beautiful! The river walk is especially gorgeous this time of year with all the lights and decorations.

Thank you so much for the sites you linked, you have no idea how happy I was to read/see those posts. I found this forum through a post on Reddit and I had no idea how helpful it would truly be. Seriously, thank you.
Posted 12/19/2020 3:30 AM (GMT 0)
@saraeli No I never even thought of searching that way tbh. When I was first diagnosed I was only like 8 or 9 years old so I had no part in finding care for myself so I had no idea where to even begin. I searched all of the popular lymes sites that have referrals but they were all dead ends. Then I was just simply googling “LLMD near me” but most of the MDs that showed up said they don’t treat lymes when I’d call the offices. Thank you so much for the advice on what to search, I will definitely be trying that out first thing in the morning. I also really appreciate the words of encouragement, it truly means a lot to me. smile
Posted 12/19/2020 5:17 AM (GMT 0)
Oh, wow!!! Yeah, mold is very likely the problem. It’s entirely possible that you are experiencing CIRS from mold exposure rather than a Lyme relapse.

Check out information about CIRS: https://www.survivingmold.com/diagnosis

Just so you’re aware, a lot of doctors who once followed the Shoemaker protocol have moved away from that model, as it is very rigid and some patients need a different approach.

Dr. Neil Nathan’s book Toxic is very informative, I hear. I haven’t read it, but others here have.

Definitely get out of that mold exposure for sure. The sooner the better. When you move, make sure you don’t end up in another moldy place. It’s very easy to do, as mold is often hidden.

The doctors who treat mold recommend using the ERMI or HERTSMI-2 test from Mycometrics Lab to test buildings to see how moldy they are and make educated guesses as to whether or not they are safe for a sensitive person.
Posted 12/19/2020 3:01 PM (GMT 0)
I should have included some information about possessions in a moldy environment. Water damaged buildings have molds that produce mycotoxins. Mycotoxins are very hard to remove and can cause ongoing inflammation in susceptible people. Here’s some information about what to do about possessions. You will definitely want to learn about this before you relocate.

https://paradigmchange.me/wp/stuff/
✚ New Topic ✚ Reply