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Bee Venom Therapy for Lyme Disease (bvt) - Part 4

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Posted 6/14/2019 10:41 PM (GMT 0)
well dont get discouraged: and that looks way better than that 1st bloody horror freakshow you posted . were you able to find medical grade allicin or andrographis to add in?

insomnia- mustardseed made a beginners guide to microscopy thread here. for bartonella-conclusively one is supposeda do a giemsa stain with brightfield , ditto for babs but i use a quik dip vet kit nice n easy....
at my sickest i would do 30-35 bees with 15-22 full stings in a session. now please keep in mind i was able inject 25gram doses of vit c intravenously to handle it . with loads of glutithione , juicing and nourishing things..

bullekid - i did not see noticeable gains until 9months in ,,: life just started to suck a little bit less a day at a time the one day i saw the symptoms fade . the nerve /circulation thing may be aided by load of efa , fish n krill oil, flax , sunflower lecithin if you cannot inject phosphatycholine... i had to take circulationp formula from zhang for a while.
anecdotally i heard of a lady doing 75 bees a day in mexico til she got better however if the bees are like their beef their not as lively.
Posted 6/15/2019 1:38 PM (GMT 0)
Thank you all for your answers.
I do 10 stings along the spine, and I am so tired of all this pain that I do stings where it hurts. I stung my knees, my shoulders, the horrible trigger point I have under the right shoulder blade, the same point on my abdomen ( it is like if a knife come in and out all the day).

I wait before to do neck stings because the reactiobs are quite intense when I sting my upper back.

I have some andrographis powder yes. I take some oral phosphatidylcholine too.
L carnitine high dose.

I know I must be patient and that is not a magic bullet 😅.

Insomnia, I can t do a tuto about microscopy, it is very painful for me to sit. I am bedridden most of the time because of this back pain and neuropathy in arm and leg. But as Bluelyme said, I am sure this forum is full of good informations about it.

Bluelyme, do you see some babesia on this video ? A member of the facebook group said it seemed there were babesia rings in RBC... my stained samples never were very clear, I never could say a clear yes to babesia....
Posted 6/15/2019 1:45 PM (GMT 0)
Oh I forget.
Could you recommand a good brand of fish oil, epa thing ? On Iherb ?
I am lost with all the pbs of heavy metals in them, bad quality....
And your amazon products never deliver in France, and the French amazon never has nothing.
Ahhhh, I wish I could be American !!!!!
IV vit c aren t allowed here, we are at the stone age in my country, grrrr !
Posted 6/18/2019 4:19 PM (GMT 0)
thanks RC for that euro study link ...
i been good and bizzy like a bee still doing maintenance stings and gearing up for a cleanse. debating whether to keep my port in or not ? after a winter of diet cheating and "partying" has given candida a jump.

real life has been easier to deal with . i engineered a new component for our startup the other and it felt great to have a bit of the ol wit back.
im needing to expand my hives and clientelle , how does don downs do it? however i bottled my first ever mulberry mead using our family berries and honey. i know drinking is contradicted but im take a week or two off to enjoy while on holiday....sometimes it really is the little things in life are the most rewarding.

bullekid - im not sure what brands are available to you but there is a nordic brand that they filter...also barleans flax flavored stuff should be hm free....
Posted 6/18/2019 9:04 PM (GMT 0)
@Hoagie
The other day you asked me to keep you updated on the development of my BLO type rash which I decided to sting.
Well guess what. The rash quickly disappeared within a day or two.
Now a new, different type of rash has suddenly made its sinister appearance on my leathery skin. It kind of reminds me of the Milky Way galaxy. Time to collect some bees and surround that dragon like bluelyme always says.

Post Edited (insomniaaa) : 11/13/2020 2:01:49 PM (GMT-7)

Posted 6/29/2019 4:42 AM (GMT 0)

RainyCloud said...

I just wanted to say that because I know these type of forums come and go, but it would be nice to stay in touch, if, God forbid, something happened to this forum.

Well, this forum has been around since 2007 - hopefully it will be around for awhile longer.
Posted 6/30/2019 5:09 PM (GMT 0)
thanks for posting that study .... sometimes i think the areas of wasting are growing back at least appear so .

yes long live hw , i will save contacts for sure
Posted 7/1/2019 12:46 AM (GMT 0)

RainyCloud said...
Hoagie how are you?

Hi RC! Thank you for the inquiry!

If I was doing any better I couldn't stand it.

That's what an older friend of mine says to me every time I ask him how he's doing. It's infectious.

But, really, I'm doing well. There are certain things I could complain about, I suppose. But, why?

I'll try to keep it short. I was feeling bad about a month ago. Got an infected tooth pulled and I was feeling better within a week. When I first started feeling better after 3 months of bvt, I was able to do about 1000 jumps on the trampoline before my legs started giving out and my back would start hurting. I can't run, so I would jump on the trampoline for exercise (which I've learned is a whole lot better than running anyway). Then I read you shouldn't do it if you have bulging discs in your spine. I have several plus a torn disc at L4-L5. I took a break. Started back up again after the tooth extraction last month. I'm up to 2000 jumps per session now with no pain. It has actually strengthened my back. I've been drinking high ph electrolyte water with nuun to combat my low adh and it has been doing wonders.

Besides my ongoing walking issues, which seems to be getting slightly better, I can't really complain. I'm at 1121 @ 10 stings as of today. (Actually got the stingers in back as I'm typing this).

BVT has been a miracle.

I will jot down your email for sure.

How are you doing?
Posted 7/1/2019 12:59 AM (GMT 0)

Hoagie said...
I've been drinking high ph electrolyte water with nuun to combat my low adh and it has been doing wonders.

Hoagie,

Can you tell me more about this and where to get it? What is nuun? I have low adh, too. Did your ADH actually increase per labs, or did it just help symptoms?

Also, glad to hear you’re back on the up-and-up. 😊
Posted 7/1/2019 6:33 AM (GMT 0)

WalkingbyFaith said...

Hoagie said...
I've been drinking high ph electrolyte water with nuun to combat my low adh and it has been doing wonders.

Hoagie,

Can you tell me more about this and where to get it? What is nuun? I have low adh, too. Did your ADH actually increase per labs, or did it just help symptoms?

Also, glad to hear you’re back on the up-and-up. 😊

Thanks WBF.

Walmart sells a high ph water with electrolytes. NUUN sells electrolyte tablets that dissolve in water much like alka seltzer does. Some of their products have added caffeine and one that I'm taking now says it supports the immune system. You can order them online. I usually get mine at Sprouts or Target.

I have not had any labs drawn. But, I am retaining water better now. I used to drink 16 ounces of water and it was coming out 30 minutes later. I was also getting up to go to the bathroom 3 to 4 times per night. When I'm drinking NUUN, it seems to help me hold on to the water. I only have 1 bathroom visit a night when drinking it regularly. By regularly, I mean 2 to 3 tabs per day.

I did some research on electrolytes and found some interesting and helpful Information. I believe I have been chronically dehydrated for a lot of my life.

How are you doing?
Posted 7/1/2019 2:14 PM (GMT 0)
Thank you, Hoagie. I will look this up.

I’m hanging in there. Mold is still my biggest hurdle. My mother and I bought a house in April. The whole thing has been an ongoing disaster. The two contractors we hired to make corrections to prevent further water damage both caused immense water and structural damage. I’ll spare you the wretched details.
Posted 7/19/2020 5:55 PM (GMT 0)
bump for brandiwine...
Posted 7/19/2020 7:11 PM (GMT 0)
bluelyme how can I get more info about BVT?
Posted 7/19/2020 10:25 PM (GMT 0)
Is there a premier suggested group for Bvt
Posted 7/20/2020 5:03 PM (GMT 0)
it was sad to see my friends honeybeehealers site down . but i like they present it here .

https://thehealhive.com/beeinformed im not on fb but i believe there is a bvt for lyme group
Posted 8/3/2020 7:07 PM (GMT 0)
bump
Posted 11/13/2020 8:10 PM (GMT 0)

insomniaaa said...
I'm also thinking about upping my oral vitamin c intake. I've been ingesting a few small teaspoons of the ascorbic acid powder which I bought in bulk the other day. Either my absorption rate isn't good enough or I've been simply not taking enough of this stuff to make the adrenals happy. This could be another reason why I got the hives the other day. Just a thought.

WV Mike said...
Insomniaaa, if you think there is even a chance that you got hives after stinging I would be very careful. Do you keep an Epipen on site when you sting if you are doing it yourself? Next time try one sting first and wait an hour to see how you react to it. Make sure someone is with you and knows how to use your Epipen. May be nothing or it could be an allergic reaction. Be safe.

Over a year and thousands of bee stings later I got another episode of the hives.
Is my BVT therapy coming to an abrupt end (I'm only in my 2nd year of BVT) ? I would be very sad if this were the case. The bees have given me a second chance at life and I am eternally grateful for that.

Is my body simply fed up with all that venom? Should I continue micro-dosing maybe a bee sting every week or give my body a little break from the bee venom (couple of months of abstinence maybe)?
What are your thoughts on this bluelyme? Have you ever gotten the hives from a bee sting?
Thanks!

Post Edited (insomniaaa) : 11/13/2020 1:29:31 PM (GMT-7)

Posted 11/14/2020 4:22 AM (GMT 0)
well its an interesting predicament. i recently had a client who was doing well the first couple treatments really responding then bam super hives systemic reaction. fortunately benadryl calmed but twas concerning. she thought it may have been bacteria dying that lead to reaction but its hard to say . upon further inquiry she had been doing and parasite flush and drinking wine the previous week?! myself had a hively time when i injected suramin and again when i got anesthesia for my port . but my leaky gut made my proverbial bucket very full all the time .its too busy mopping up proteins and sugars to handle all the extra with meds and venom . so i was able to use ivs to reduce my toxin burden and venom is very much a toxin. bentonite baths were a savior! s boulardi kombucha and vsl helped get a layer quik. one client take claritin and does ivs to tolerate but take some weeks off when sleep or hormones are compromised. i say take a couple weeks detox like mad then try microstinging with liquid bendryl and epi handy . the guy who makes venex cannot have any more stings after so many in a lifetime.
Posted 1/9/2021 3:38 AM (GMT 0)
Hello, brand new member. Signed up because i was looking for info regarding my bvt journey and am not getting much insight at my normal place with ellie lobel at the helm. guessing i am beyond their normal protocol. Searching brought me here primarily because of bluelyme. was infected about 6 yrs ago did multiple years of abx along with many many other things. started bvt 33mo ago and have done that with coiling and other things with disulfiram being the most recent(almost 12 mo of ramping up and down with some breaks and about 2 mo at target dose, going to do 2 more). I have had success and failure over the entire time until fairly recent when joints have become worse as well as eyesight issues being more continual and sleep being random(disulfiram has made that weird all along). I have seen a few of you stating stinging beyond the semi accepted 3 years. since i am not 100 percent i intend to sting until i am. I also intend to coil until 100 as well. Curious who else out there went the duration and has felt need to continue farther and if so was there a point past 3yrs that became a new end. Also would love to see if bluelyme or other longtimers have any posts with entire history so I can see mindset on the evolution of treatments. I have a llnd but she is basically used as a means for testing and bouncing ideas off through my research and me acting as a self guinea pig. All other dr's i have seen were either a waste of money or unwilling to try novel or cutting edge treatments. It is great to find others that have treated so long and had some success. Thanks
Posted 1/9/2021 6:30 AM (GMT 0)
hello BLM, welcome.
ya ten bees on back alone doesn't cut it for some. other intolerances like mixing abx may be frowned upon and the dsf / bvt pioneers are likely few if at all. my llmd wouldn't approve. ...and with its structure close to sulfa and my folate levels and love of tinctures i decided to use other pharmaceuticals and herbs.
concerning bees i still maintenance sting couple times a month or as needed but have taken a few month long breaks in my years treating. they say when stings get large in size one is close to done with bees .
so how is your folate ? can u get meyers iv or shots . on your coil is a ol scool doug or can u program frequencies? what is your schedule and pathogens rifed for? my eyes got better after i got rid of toxoplasmosis and got blood sugars regulating...how is your emf sensitivities? what is your bvt dose n schedule like ? and ur dsf dose and frequency? do u sting joints directly? have you tried the bee venom eye drops? just suggestions from gleaning ur post +
i am glad my posts haven't been entirely in vain especially if they have inspired some one so thanks for mentioning what is your main questions or concerns i can maybe address to find u some relief or forwards progress ? welcome again
Posted 1/9/2021 9:31 PM (GMT 0)
thank you for the reply, my stings still don't get much reaction that is one part of why i plan to continue.I have done mainly the 10 on spine 3x/wk but also sting joints, sometimes every day,that are most problematic and accupuncture points near many joints as well as some scalp. I do not know the last time my folate was tested, that is a good idea. I do have the eye drops and use them when my eyes get pretty irritated and it helps almost immediately but i have been cautious with regular use(maybe just a paranoia since i was diagnosed with pinguecal and wonder what really prompted it. DSF is at 500mg/day every day working on hitting 120 days. I have done meyers cocktail but not iv however never really felt a benefit, but maybe not given it a big enough chance. My coil for about 2.5 years was the ampcoil but they changed the software about 6 months into use and it drastically reduced power levels, plus they make it very difficult to program specific frequencies so I recently changed to a similar unit called the element pemf that is much higher power and uses a program called frex16 that is much more customizable. since it is so new to me and the ampcoil is based on voice analysis(which I have my thoughts on whether it really does anything) and does not show specific pathogens I am just learning how to coil with the new unit. There does seem to be some pretty good support with the new machine so i have been trying to educated myself.
questions for you or others with the info:
where did you get your info and plan of action with coiling? I have seen some good rife books but not pulled the trigger. My program is loaded with basically the whole cafl.
How did you determine the number of spine stings that worked for you?and how often did you sting specific joint points?I usually leave an area until is is no longer sore from a previous sting.
What diet has worked best for you?
Have you tried any long fasts? I have done a few 3 day and had some very good results but dr doesn't want me to go further without oversight and i dont want to spend money to go to a clinic. I have seen evidence of a few people that went 14 days and felt i made the difference to recovery.
Posted 1/10/2021 8:34 PM (GMT 0)
Hello Beaverlake what eye drops are you speaking of and have they been beneficial?
Also you mentioned that the Doug coyle software recently downgraded a lot of the power output I wonder if spooky is doing the same thing I'm curious that these companies are afraid of liability? Thanks
Posted 1/11/2021 2:36 AM (GMT 0)
beaverlakeman,

Welcome to the forum! Glad you decided to join and tell us about your experience.

I am not a bvt’r, but I read these posts from time to time with interest and curiosity. Anyway, I found your experience interesting.

Multiple yrs abx
Coil 2.5 yrs
33 mths bvt
DSF - 12 mths including 2mths @ 500mg
“I have had success and failure over the entire time until fairly recent when joints have become worse as well as eyesight issues being more continual and sleep being random(disulfiram has made that weird all along).”

Sounds like you have done some very heavy, long term treatment. That’s a very long time on DSF and 500mg is a very high dose. From what I have read on the DSF posts, it’s generally not recommended to go that high anymore.

I’m curious if you have bartonella and if you have other symptoms besides joints, eyes, and sleep. From what I understand, neither DSF nor bvt are known to eradicate bartonella.
Posted 1/11/2021 5:19 AM (GMT 0)
The eye drops are a very dilute of bee venom meant for eyes. It was very stressful to use first time because i didn't know what would happen, but was actually pretty mellow. I wouldn't suggest to anyone without first knowing that you don't have history of anaphylaxis and also have a epipen just in case. They are from dancing bee acres.

As far as coil strength, yes I do know that some manufacturers are concerned with power output, mainly due to the high possibility for pemf coils to get very hot and in some cases catch fire. Ampcoil is a quite a bit different than all other coil machines due to their proprietary software, and although I do not currently use, I did get some benefit, but I do know that they lowered their power output via their software. My new machine is called an elementpemf and was designed by the people who originally built the first ampcoils before they went into mass production(very interesting, kind of long story. I have spoken to all parties involved and it gets a little crazy).

Based on my exp and info I don't see a definitive answer on BVT and Bart. I have treated bart along the line, but never as a constant. That is one change my dr and I have recently agreed to change. Hopefully it will turn a corner.
The Dsf is based on the info me and my dr and compiled. I think the lower dosing is based on dr's with less experience being very cautious, which I agree with. The reason my treatment has been so long is due to 2 intial scares with liver levels elevated and nerve pain. Everything resolved after stopping, we then restarted and ramped much more slowly. I also had to stop twice due to drug shortages. the 500mg is based on 4-5mg/kg bodyweight. I have not seen too many able to make a absolute declaration on effectiveness until after stopping use for multiple weeks, so I will do the same.
I do want to thank all who continue to post their findings and history. It has helped me tremendously over the years. I sometimes value knowledgable patients higher than lyme docs and definitely higher than MD's in the arena of lyme and coinfections.
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